CJ Matthee is a seventeen-year-old young man from Kathu; a kind, gentle soul with a smile that brightens any room.
CJ was born with Menke-Hennekam Syndrome (MKHK), a rare genetic condition that impacts various aspects of his development. He is also on the autism spectrum, which adds specific challenges but further defines the sweet, unique character his family loves so deeply.
Over the years, his condition has affected his development and feeding, as well as his muscles and legs. Living with chronic pain and weakness, CJ finds walking and standing particularly difficult. On many days, even simple movements lead to discomfort and exhaustion. Despite these hurdles, he maintains a quiet strength and never gives up.
CJ was also diagnosed with Gastroparesis, a condition where the stomach empties slowly due to nerve and muscle damage. As he cannot eat or digest food normally, he relies on a GJ feeding button to receive nutrition and medication directly into his intestines.
Although this intervention has provided immense support, it requires continuous care, medical supplies, and hospital visits that take a significant emotional and financial toll.
Overseeing his pain management, leg physiotherapy, and specialist consultations demands a steadfast commitment of both time and resources.
CJ faces more in a single day than many encounter in a lifetime, yet there is so much more to him than his medical condition; he is a funny, caring, and remarkably brave individual. He finds his greatest happiness in music, quiet cuddles, and being surrounded by those who provide him with a sense of safety.
The family wishes to express their deepest gratitude to everyone who has read his story and chosen to support him. Your kindness brings a sense of hope and renewed strength to CJ’s life every single day.
Medical Fundraiser – How You Can Help
If CJ’s story has touched your heart, please consider making a donation today. Every donation, no matter the size, will directly support his healing journey.
We have also launched a heartfelt bracelet project to help raise funds for his ongoing medical expenses. Purchase a bracelet today and join CJ’s circle of hope and support!
Make a Donation
Account Holder: Arms of Mercy NPC
Bank: Standard Bank
Account Type: Cheque Account
Account Number: 10114699702
Branch Code: 051001
Swift Code: SBZA ZA JJ
REF: CJ MATTHEE
Alternatively, make a donation online with Payfast.
