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Read more about the article Be Elliatt’s Hero: Help Cover the Costs of His Crucial Medical Care

Be Elliatt’s Hero: Help Cover the Costs of His Crucial Medical Care

  • Post author:AOM
  • Post published:01/05/2025
  • Post category:Updates 2025

Elliatt Strauss( 2 years old) has a rare genetic condition called Diamond-Blackfan Anemia (DBA). This disorder affects his bone marrow, which means his body cannot produce enough red blood cells.…

Continue ReadingBe Elliatt’s Hero: Help Cover the Costs of His Crucial Medical Care
Read more about the article May is Prader-Willi Syndrome Awareness Month

May is Prader-Willi Syndrome Awareness Month

  • Post author:AOM
  • Post published:11/05/2022
  • Post category:Blog

Prader-Willi Syndrome (PWS) is a rare genetic multisystem neurodevelopmental disorder that affects a part of the brain called the hypothalamus. The hypothalamus is a gland in your brain which is…

Continue ReadingMay is Prader-Willi Syndrome Awareness Month
Read more about the article What is Cystic Fibrosis?

What is Cystic Fibrosis?

  • Post author:AOM
  • Post published:03/05/2022
  • Post category:Blog

Cystic Fibrosis (CF) is an inherited life-threatening disorder that damages the lungs. It is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over…

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Read more about the article What is Mowat-Wilson Syndrome?

What is Mowat-Wilson Syndrome?

  • Post author:AOM
  • Post published:31/03/2022
  • Post category:Blog

Mowat-Wilson Syndrome (MWS) is a rare genetic disorder that may be apparent at birth or later in childhood. It is caused by an abnormality in the ZEB2 gene that is usually the…

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Read more about the article 23 February – Noonan Syndrome Awareness Day

23 February – Noonan Syndrome Awareness Day

  • Post author:AOM
  • Post published:09/02/2022
  • Post category:Blog

February is Noonan Syndrome Awareness Month, and 23 February is Noonan Syndrome Awareness Day. Wearing an Awareness Bracelet creates an opportunity to start a conversation and share information about a…

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Read more about the article Williams Syndrome: Causes, Symptoms, Common Features and Treatment

Williams Syndrome: Causes, Symptoms, Common Features and Treatment

  • Post author:AOM
  • Post published:20/05/2020
  • Post category:Blog

Williams Syndrome (WS), also known as Williams-Beuren syndrome, is a rare genetic disorder that is present at birth. The condition can affect anybody, and is known to occur equally in…

Continue ReadingWilliams Syndrome: Causes, Symptoms, Common Features and Treatment

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