Our hearts are heavy as we share the story of precious five-month-old Ayva-Lee Engelbrecht, recently diagnosed with a severe and rare form of cerebral epilepsy. Adding to this, our little princess is also blind, her world limited to the perception of light. This devastating news has turned her loving family’s lives upside down.
Initial tests indicate Ayva-Lee’s epilepsy is likely neurological, a more complex and challenging path than a metabolic condition. The crucial chromosome and genetic test results that will provide a clearer understanding are still pending and will take time. In the meantime, doctors are diligently adjusting her medication, hoping to achieve stability. The longing to return home to her son and husband weighs heavily on Ayva-Lee’s devoted mommy, Alicia, who remains by her side in the hospital, waiting for at least three seizure-free days.
Once the vital test results are in, neurologist Dr. Aduc will provide a detailed explanation of Ayva-Lee’s condition and guide the next steps. Her mommy had to step away from her job to provide the constant care Ayva-Lee needs, placing immense emotional and financial pressure on the family.
While she remains in the hospital, we are incredibly relieved that her current medication is working well. The plan upon their return home involves careful monitoring and gradual adjustments to her treatment, including at-home EEG monitoring, allowing Ayva-Lee to be in the comfort of her own bed.
We believe in the strength and compassion of our Arms of Mercy community. Please, will you stand with us for Ayva-Lee? Your support can help this little princess get the answers she desperately needs and access the best possible treatment.
If Ayva-Lee’s story has touched your heart, please consider making a donation using the banking details below. We have also launched a heartfelt bracelet project to help raise funds for her ongoing medical expenses to further support her journey. Please keep baby Ayva-Lee and her family in your thoughts and prayers.
Make a Donation
Account Holder: Arms of Mercy NPC
Bank: Standard Bank
Account Type: Cheque Account
Account Number: 10114699702
Branch Code: 051001
Swift Code: SBZA ZA JJ
REF: Ayva-Lee
