Divan Conway is a 11 year old boy who was diagnosed with Lissencephaly (smooth brain), Cerebral Palsy, and Epilepsy (West Syndrome). He currently weighs 40kg, he can not walk or talk at all, and his mother has to carry him everywhere.
Divan suffers from extreme cerebral palsy therefore he cannot walk or sit on his own nor can he speak. As a result of constantly being in bed he developed chronic lung damage. He will be using nappies for the rest of his life and therefore also linen savers.
Due to his special needs, mom had to leave her job to take care of him.
Divan has epilepsy and has 5/6 fits on a daily basis, and is on six types of medication: Epilim, Keppra, Sabril, Rivotril, Epanutin and Ativan. The epilepsy is extremely challenging to control.
He regularly contracts infection in his lungs due to all the mucus and lack of movement, and has been admitted to hospital repeatedly for Acute Upper Respiratory infection. Mom has to clean his throat and nose with a suction machine to remove all the mucus that he doesn’t swallow. Divan has a feeding tube because he can’t eat and drink, and can only consume milk and water. He also struggles with bladder infections because his bladder does not get rid of all the urine. It is mom`s duty to empty his bladder for him at home using catheters.
Please open your heart and support our fundraiser for Divan by purchasing any of his “Little Soldier” bracelets, “Hope for Divan” bracelets or key ring. All proceeds are donated towards his ongoing medical are and expenses – together we CAN make a difference in their lives!
Alternatively, please consider a donation, any and all donations welcome. REF: Divan Conway.