Our faith remains strong: God is in control.
Eliana Snyders, born healthy, began experiencing alarming startle movements at just weeks old. Diagnosed with infantile spasms and hypsarrhythmia (epilepsy), her journey has been a relentless battle. What we believed was a victory over the initial diagnosis quickly turned into a series of escalating seizures, breathing difficulties, and emergency hospitalizations.
Insurance hurdles compounded our distress. We faced a R162,500 loan to secure Eliana’s critical ICU care when insurance denied coverage. During her extended hospital stay, we were told three times to prepare for the worst. Doctors diagnosed catastrophic, drug-resistant epilepsy and identified brain stem damage. Eliana now relies on a feeding tube and oxygen.
Despite these challenges, a miracle occurred: her seizures lessened. However, setbacks persist, with recurring cycles of seizures. We’ve added specialized medication, navigating complex approvals and out-of-pocket expenses due to insurance exclusions.
Eliana needs a PEG tube for safe feeding and medication administration, a crucial step toward exploring a ketogenic diet, which offers potential relief. The estimated R200,000 surgery must be paid in cash.
At nearly nine months old, Eliana’s development is that of a newborn. She hasn’t experienced laughter, play, or typical milestones. Furthermore, my employment was terminated in totality, impacting our finances further to care for Eliana and manage her extensive medical team.
We believe in Eliana’s healing and the purpose of her life. We trust God will provide the necessary resources. Eliana’s story will be a testament to His greatness.
How You Can Hep
We urgently need financial assistance to cover Eliana’s PEG tube surgery, ongoing medical expenses, and specialized therapies (Palliative Dr, Pediatrician, Neurologist, Speech Therapist, Occupational Therapist, Neuro-Physiotherapist, Pediatric Surgeon, and Dietician).
Your generous support will provide Eliana with the chance to access potentially life-saving treatments and improve her quality of life.
Please join us in supporting Eliana’s fight. Your prayers, shares, and donations make a world of difference.
Support a little one’s fight with our Eliana’s Journey Bracelets; featuring a gentle blend of sunny yellow and pure white wooden beads, representing warmth and innocence, interspersed with sparkling crystal, silver and diamante accents. Choose between a ‘Tree of Life’ heart charm or a diamante crown, knowing that each bracelet supports a precious baby in need. Your purchase brings a ray of light to their journey. Proceeds are donated towards her ongoing medical expenses.
Make a Donation
Account Holder: Arms of Mercy NPC
Bank: Standard Bank
Account Type: Cheque Account
Account Number: 10114699702
Branch Code: 051001
Swift Code: SBZA ZA JJ
REF: ELIANA SNYDERS
Alternatively, make a donation online with Payfast.
