Jordan (4 y/o) is a beloved foster child who has been with his primary caregiver since he was a baby of six and a half months. Throughout his young life, Jordan has been plagued by illness, leading to more than 14 hospitalizations for issues concerning his lungs and stomach. His foster family has always known that something was seriously wrong, and earlier this year, their fears were confirmed with not one, but two life-altering diagnoses.
In March, the family learned Jordan has Arnold Chiari Malformation, a condition where brain tissue extends into the spinal canal. Then, in June, they received the devastating news that he also has Cystic Fibrosis (CF). This is a lot for any family to process, especially as they navigated a regimen of extensive medication and preparation for Jordan to undergo his first major surgery – a crucial brain operation on the 12th of September 2025.
The Overwhelming Cost of Care
While Jordan is surrounded by a caring foster/adopting family, the financial burden of his ongoing medical needs is overwhelming. His foster parent does have medical aid, but it does not cover all the bills, and the family’s savings are completely depleted.
They are currently blessed to receive some necessary medications, like Creon, from the Johannesburg Clinic, but the most critical financial hurdle is the cost of medication for his Cystic Fibrosis. The life-saving drug Trikafta, cost an astronomical R174 000 per month, which is not covered as a chronic medication by medical aid. This is simply unattainable.
As it stands, the foster parent pays all doctors’ bills and other incidental costs in cash, highlighting the family’s current struggle to provide everything Jordan needs.
How You Can Help
Little Jordan is a lovely boy whose family is taking excellent care of him, but they cannot do this alone. They need immediate financial assistance to cover the soaring costs of his medications, treatment, and long-term care.
If Jordan’s story has touched your heart, please consider making a donation today. Every donation, no matter the size, will directly support his fight against these two serious conditions, offering him the chance for a healthier, more stable future. Every contribution moves this loving family closer to securing the R174,000 per month needed for his life-saving medication.
We have also launched a heartfelt bracelet project to help raise funds for his ongoing medical expenses to further support his journey.
Make a Donation
Account Holder: Arms of Mercy NPC
Bank: Standard Bank
Account Type: Cheque Account
Account Number: 10114699702
Branch Code: 051001
Swift Code: SBZA ZA JJ
REF: JORDAN
Alternatively, make a donation online with Payfast.
