NEW Blessed in Blue Bracelets for Reece Trumpelmann – Gorlin Goltz Syndrome
Twelve year old Reece Trumpelmann was diagnosed in 2016 with Gorlin Goltz Syndrome.
After receiving a bump on his jaw while playing on a jumping castle, he was taken through to Steve Biko Hospital where he was X Rayed and tested extensively. The doctors discovered he not only has Cancer, but Gorlin Goltz Syndrome, BCCNS – an extremely rare condition which is virtually unknown in South Africa.
In South Africa, there are only 3 known cases, and incidences reported worldwide ranges from 1 in 50,000 to 1 in 150,000. Gorlin Goltz affects multiple organs and need a multi-disciplinary approach. After many months and hugely expensive genetic tests, it was established that Reece has the PTCH1 and Sonic Hedgehog Pathway ( SAFU) genes present, so gene therapy is not an option.
Reece`s condition include: Jaw cysts, Calcification of the meninges, Problems with the endocrine glands, Nervous system issues, Skin cancer, Issues with skeletal bone structure, Multiple tumors in his jaw, Basal Cell Carcinomas, Calcification of the flax cerebral, Bifid ribs, Multiple pitting of the hands and feet, Major endocrine system problems, Scoliosis, Hypogonadism, Enlarged cranium, Heart problems, Glucoma, Skeletal problems, Crohn`s disease, Chronic gastritis, Pituitary gland tumor..
His Facial Bone structure is being severely compromised, to the extent that his jaw, cheekbones and sinus area are disintegrating. Sixteen adult teeth have already been removed as well.
Help us raise funds for Reece Trumpelmann
The Blessed in Blue Bracelets for Reece cost R30 each; consisting of navy coloured wooden beads – with an Anchor or Cross charm – or as a plain bracelet without a charm. To place an order, please contact the agent in your area or shop online. Alternatively, please consider a donation. Any and all donations welcome.
“When you start to count your blessings, you will feel safe and anchored in Christ.”
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