“Lenè was born a bit early at 36.5 weeks but she was a normal healthy baby as far as the eye could see. When she turned 1 years old I started to worry because she was far behind her cousin who was 2 months older than her. We stayed in a small town with no therapists and doctors, and my father said we must be patient with her as she might just be a bit slow.
When she turned 19 months old she started to lift herself and at 21 months she was walking, but not that well. We moved back to Klerksdorp when she was about 2.5 years old. I was still worried at this stage as she was still on nappies and did not talk. We took her to the Potch University – Care2Kids program to get her assessed and see if there is maybe something wrong. After this I finally got a school that had the time to care for her as the special needs school had her for 1 week and asked us to rather take her out as there is something seriously wrong with her.
In February 2022 she was assessed by Dr J.C.K Strauss who found her to have an intellectual disability as well as a serious communication delay. We started looking around for a Paediatric Neurologist to assess Lenè as we need assistance with treatment and advise on the way forward. In May 2022 she went to see Dr C Erasmus in Pretoria who diagnosed her with Prader Willi Syndrome and ADHD among a list of things. She has a wide range of symptoms and we are eager to find answers so that we can help her have a better quality life.
Lenè turns 5 years old in February 2023. She is currently on 2ml Risperdal a day. This alone is R1900.00 a month. The day to day from our medical covers it but this will soon be depleted. Thereafter, all medicine must be paid in cash. School costs R1850.00 a month and then nappies work out to R165.00 a week. I cannot look for better employment as I need to take off a lot, when she gets sick or is too difficult, so I only get commission on cases completed… no work, no pay.”
Please open your heart to Lenè and support our fundraiser for this family in need – all proceeds from the “Uplifted in Faith” bracelets are donated towards her ongoing medical care and expenses. Together we CAN make a difference!
Alternatively, please consider making a donation. Any and all donations welcome. REF: Lenè Grobler.