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Update Miliah Prinsloo: Urgent Medical Care and Specialist Support Needed

Miliah Prinsloo

Living with a rare genetic chromosome disorder, 16q11.2q21 Duplication

Imagine a condition so rare that fewer than ten people worldwide have it. This is Miliah’s reality. Her rare chromosome disorder is largely unchartered territory, leaving local medical professionals with very little data or guidance to help her. Finding answers and funding the specialised care she needs is a constant, uphill battle.

Miliah, is facing a complex and challenging health journey. Her diagnoses include global developmental delay, speech impairment, neurological and behavioural difficulties, self harm tendencies, absent seizures, and hypermobility with an ankle valgus deformity. Physically, she also copes with lordosis, incontinence, irritable bowel syndrome, fatty liver disease, and severe inflammation throughout her entire digestive system, from her oesophagus to her colon.

To thrive, Miliah needs ongoing Specialist care, constant therapy, daily medications, and nappies. The financial reality of these medical costs is overwhelming.

It has been shared with us by Miliah’s mother that, following specialist intervention, a psychiatric admission has been recommended for Miliah, with the process needing to begin as soon as possible due to the seriousness of her current condition.

This has understandably been an incredibly distressing time for the family. One of the greatest concerns is the initial 72-hour observation period, during which parents may not be permitted to remain with their child, a heartbreaking prospect for any parent facing such circumstances.

Miliah has been experiencing severe emotional dysregulation and an escalation in self-harming behaviours, which have significantly impacted both her home and school life.

Her family is navigating an immensely challenging season, emotionally and financially, as urgent medical care and specialist support become necessary.

WAYS THAT YOU CAN HELP MILIAH

Should you feel moved to support Miliah’s journey, any contribution, no matter how big or small, would be deeply appreciated in helping ease the growing burden of medical expenses during this difficult time.

Please keep Miliah and her family in your thoughts and prayers.

DONATIONS
Account Holder: Arms of Mercy NPC
Bank: Standard Bank
Account Type: Cheque Account
Account Number: 10114699702
Branch Code: 051001
Swift Code: SBZA ZA JJ
REF: MILIAH

SUPPORT OUR BRACELET FUNDRAISER PROJECT
Browse our “nominate beneficiary” category in the online store. You can nominate Miliah when buying any of the bracelets in this selection and we’ll allocate all proceeds to her Fund, to help cover her ongoing medical care and expenses where needed. Click here.

MILIAH’S BACKABUDDY CAMPAIGN
Click here to support her current campaign on BackaBuddy.

There are illnesses no one talks about. Diseases many people have never even heard of.

Behind closed doors, families are fighting daily battles — surgeries, hospital visits, pain, fear, and exhaustion — while the world stays silent.

Rare diseases deserve awareness.
Patients deserve understanding.
Caregivers deserve support.
Children deserve to be seen.

We need more voices. More education. More compassion. More research.

Because “rare” should never mean invisible.

Source: Facebook – Miliah’s Journey – 16q11.2q21 dup

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The Architecture of Love: How Affirmations Shape a Child’s Brain

affirmations positive child development

It is a common saying in parenting circles: “The way we talk to our children becomes their inner voice.” But this isn’t just a sentimental sentiment—it is a neurobiological fact. MRI scans have shown that practicing self-affirmation activates the ventromedial prefrontal cortex, the specific part of the brain involved in self-related processing and positive valuation.

This means that consistent love and affirmations aren’t just “wishful thinking” or “spoiling” a child; they are active forms of brain-building. By choosing our words and actions carefully, we are literally training a child’s brain to view the “self” as valuable, resilient, and capable. This internal foundation is one of the single most massive predictors of long-term mental health and success.

Here is how consistent love and positive words change the trajectory of a child’s life across five key areas:

1. Building a “Safe Base”

Consistent love creates Secure Attachment. When a child feels unconditionally safe, their nervous system stays regulated. This “safety net” allows them to step out of survival mode and into “learning mode,” giving them the courage to explore the world and take healthy risks.

These affirmations reinforce that your love is a constant, regardless of their performance or behaviour.

  • “My love for you doesn’t change, even when you’re having a hard day.”
  • “You are safe here, and I am always on your team.”
  • “There is nothing you could do that would make me love you less.”
  • “I love watching you grow and learn.”

2. Rewiring for Resilience

Positive interactions lower cortisol and boost oxytocin. This chemical balance strengthens the brain’s ability to regulate emotions. Instead of being overwhelmed by stress, the child’s brain is wired to “bounce back” from setbacks more efficiently. Love literally makes them mentally tougher.

These affirmations help the brain to view challenges as opportunities rather than threats.

  • “You can do hard things.”
  • “Mistakes are just how our brains learn something new.”
  • “I love how you didn’t give up, even when that was tricky.”
  • “It’s okay to feel frustrated; let’s take a breath and try a different way.”

3. The Internal Script

Neural pathways for self-valuation are formed through repetition. Affirmations replace the “Inner Critic” with an “Inner Advocate.” When they face a challenge, their default thought becomes “I can figure this out,” rather than “I’m not good enough.” You are giving them the mental tools to navigate life’s challenges long after they leave your home.

These affirmations help form a positive internal script about their own capabilities.

  • “Your ideas matter.”
  • “You are a kind and thoughtful friend.”
  • “You are enough, exactly as you are right now.”
  • “I trust your judgment.”

4. Fostering Empathy and Boundaries

When we talk about “fostering empathy” and “modelling healthy boundaries,” we are looking at the social-emotional blueprint of a child.

Mirror neurons allow children to adopt the behaviours they observe. Research in developmental psychology shows that children don’t just learn how to act by being told – they learn by absorbing the relationship dynamics they experience every day. When you consistently offer love and validation, you are giving your child a first-hand experience of what it feels like to be understood.

It’s a common misconception that boundaries are mean or restrictive. In reality, boundaries are a form of love that provides the structure children need to feel safe.

By receiving empathy, they learn to give it. By experiencing healthy boundaries from you, they learn how to set their own and respect others’. You are providing them with the social blueprint for healthy adult relationships.

Children are the world’s greatest observers. If they see you using positive affirmations and staying calm during a conflict, they learn that disagreement doesn’t equal a lack of love.

“Empathy is the soil, and boundaries are the fence.”

Without empathy, the fence feels like a cage. Without boundaries, the soil washes away in the storm. By combining consistent love with clear limits, you aren’t just “managing behaviour” – you are raising a human who knows how to love themselves and respect the world around them.

These affirmations model how to respect themselves and others.

  • “It’s okay to say ‘no’ if you feel uncomfortable.”
  • “I’m proud of how you noticed your friend was sad and tried to help.”
  • “You have the right to your own space and your own feelings.”
  • “Being kind is a superpower, and you use it well.”

5. The Growth Factor

Think of Love as the Soil and Words as the Water. A child can survive without these, but they cannot thrive without them. Together, these two elements grow an adult who is not only successful on the outside but secure and whole on the inside.

The Lifelong Harvest

In the busy, often chaotic day-to-day of parenting, it can be easy to view our words and hugs as small gestures. However, as the science shows, these “small” moments are actually the foundational bricks of a child’s mental architecture. By providing consistent love and intentional affirmations, you are doing far more than making your child feel good in the moment; you are equipping them with a biological and psychological toolkit that will serve them for the rest of their lives.

You are giving them the resilience to handle hardship, the empathy to build deep connections, and the unshakeable belief that they are worthy of respect.

The Bottom Line: We may not be able to protect our children from every storm life sends their way, but by nurturing their “inner advocate” today, we ensure they have the internal strength to navigate those storms with confidence.

If you aren’t sure where to begin, start small. Choose one affirmation today—something as simple as, “You are a great problem solver” or “I love being your parent”—and watch how those words begin to take root.

Disclaimer: The information provided in this article is for educational and informational purposes only and is not intended as medical, psychological, or professional advice. While based on research in developmental psychology and neuroscience, every child is unique. If you have concerns about your child’s development or mental health, please consult a qualified healthcare professional or child psychologist.

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July is Mental Health Awareness Month

mental health awareness month

Mental health refers to a person’s condition with regard to their psychological, emotional, and social well-being. According to World Health Organization (WHO), it is a “state of well-being in which the individual realizes his or her abilities, can cope with the normal stresses of life, can work productively and fruitfully, and can contribute to his or her community”.

Mental Health: Challenges and Solutions

Many factors influence mental well-being. These can be personal, family-related, community-based, or even larger societal issues. While most people can bounce back from difficulties, those facing poverty, violence, disability, or inequality are more likely to experience mental health challenges.

The good news? Many mental health conditions are treatable and affordable. The bad news? Healthcare systems often lack the resources to provide proper treatment, and there’s a significant gap between need and access. Additionally, the quality of care can be inconsistent, and people with mental health conditions may face stigma and discrimination.

Mental health conditions are widespread. Roughly 1 in 5 adults experience a mental illness each year. These conditions can develop at any point in life, but often begin earlier on.

Prevention isn’t perfect, but help is available. There’s no guaranteed way to prevent mental illness. However, if you experience signs or symptoms, seeking professional help from your doctor or a mental health professional is crucial. Remember, most mental illnesses won’t improve by themselves and can worsen over time, leading to serious problems.

Types of Mental Illness

Mental health conditions come in many forms, each with unique symptoms. Here’s a breakdown of some major categories:

  • Mood disorders: These affect emotional well-being, like depression and bipolar disorder.
  • Eating disorders: These involve unhealthy eating habits and distorted body image, such as anorexia nervosa.
  • Anxiety disorders: These cause excessive worry and fear, including generalized anxiety disorder and phobias.
  • Personality disorders: These involve inflexible and long-lasting personality traits that can cause problems in relationships, like borderline personality disorder.
  • Substance use disorders: These involve problematic use of drugs or alcohol, leading to addiction.
  • Psychotic disorders: These can cause hallucinations or a detachment from reality, like schizophrenia.
  • Obsessive-compulsive disorder (OCD): This involves unwanted thoughts and urges that lead to repetitive behaviors.
  • Trauma-related disorders: These develop after experiencing a traumatic event, like post-traumatic stress disorder (PTSD).

Beyond these common categories, there are less frequent conditions like dissociative disorders (disruptions in memory or identity), stress response syndrome, and tic disorders (involuntary movements or sounds).

Signs of Mental Illness

Many people experience mental health concerns from time to time, however, a mental health concern becomes a mental illness when the ongoing signs and symptoms cause frequent stress and affect the person’s ability to function.

  • withdrawing from people, friends and activities
  • feeling sad or down
  • lack of motivation
  • unreasonable anger or irritability, hostility or violence
  • extreme mood swings and changes in highs and lows
  • sex drive changes
  • obsession with a topic like religion or death
  • poor concentration and memory, not being able to follow a conversation
  • unusual or illogical thoughts
  • hearing voices that no one else can hear
  • decreased or increased sleep
  • increased or low appetite, preoccupied with control over food, calories, and excessive exercise
  • alcohol and drug use/abuse
  • letting go of personal hygiene and other responsibilities
  • not doing well at school or at work
  • suicidal thoughts or feeling that life is not worth living

MENTAL HEALTH MATTERS
Contact The South African Depression and Anxiety Group.
Phone 0800 567 567
www.sadag.org

Suicide Awareness

Looking out for our friends and loved ones is an important part of preventing suicides. Easy access to mental health treatment can be key to saving the life of someone who struggles with suicidal thoughts. Seeing them go through the pain and struggle to cope with their thoughts and feelings can be hard, and approaching and encouraging them to seek therapy can be a tricky situation. Learn more about suicide risk factors, warning signs, and prevention.

Visit the links below for more information on mental illness.


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Suicide Awareness and Prevention

Suicide Awareness and Prevention

Looking out for our friends and loved ones is an important part of preventing suicides. Easy access to mental health treatment can be key to saving the life of someone who struggles with suicidal thoughts. Seeing them go through the pain and struggle to cope with their thoughts and feelings can be hard, and approaching and encouraging them to seek therapy can be a tricky situation. If done incorrectly, you could alienate the person or turn them against the idea entirely. However, there is an effective way to have this conversation. Learn How to Encourage Someone to See a Therapist.

World Suicide Prevention Day is commemorated around the world on the 10th of September to promote commitment and action to prevent suicide. On average, almost 3 000 people commit suicide every day, and for each person who completes a suicide, 20 or more may attempt to end their lives.

About one million people commit suicide each year. Every 40 seconds, the loss of a person who killed themselves shatters the lives of family and friends. Those who stay behind are affected severely and the it can take many, many years to deal with the emotional trauma, and to heal from such an ordeal.

“A suicide is like a pebble in a pond. The waves ripple outward.”

Suicide Hotlines and Crises lines in South Africa

In South Africa, 23 suicides a day are recorded and 230 serious attempts. You can call SADAG  to talk on behalf of a loved one, colleague, or friend. Trained counsellors are there to help and refer you to local counsellors, facilities and Support Groups.

Risk Factors

All people can be at risk of suicide. The risk factors for someone feeling suicidal or making an attempt at suicide may include:

  • Depression, other mental disorders, or substance abuse disorder
  • Certain medical conditions
  • Chronic pain
  • A prior suicide attempt
  • Family history of a mental disorder or substance abuse
  • Family history of suicide
  • Family violence, including physical or sexual abuse
  • Having guns or other firearms in the home
  • Having recently been released from prison or jail
  • Being exposed to others’ suicidal behavior, such as that of family members, peers, or celebrities

Warning Signs

The warning signs of suicide can allow you to direct individuals who may be considering suicide to get help. Behaviors that may be warning signs include:

  1. Talking about wanting to die or wanting to kill themselves
  2. Suicidal ideation: thinking, talking, or writing about suicide, planning for suicide
  3. Substance abuse
  4. Feelings of purposelessness
  5. Anxiety, agitation, being unable to sleep, or sleeping all the time
  6. Feelings of being trapped
  7. Feelings of hopelessness
  8. Social withdrawal
  9. Displaying extreme mood swings, suddenly changing from sad to very calm or happy
  10. Recklessness or impulsiveness, taking risks that could lead to death, such as driving extremely fast
  11. Mood changes including depression
  12. Feelings of uselessness
  13. Settling outstanding affairs, giving away prized or valuable possessions, or making amends when they are otherwise not expected to die (as an example, this behavior would be typical in a terminal cancer patient but not a healthy young adult)
  14. Strong feelings of pain, either emotional or physical
  15. Considering oneself burdensome
  16. Increased use of drugs or alcohol

How You Can Help

How To Be Helpful to Someone Who Is Threatening Suicide:

• Be direct. Talk openly and matter-of-factly about suicide.
• Be willing to listen. Allow expressions of feelings. Accept the feelings.
• Be non-judgmental. Don’t debate whether suicide is right or wrong, or whether feelings are good or bad. Don’t lecture on the value of life.
• Get involved. Become available. Show interest and support.
• Don’t dare him or her to do it.
• Don’t act shocked. This will put distance between you.
• Don’t be sworn to secrecy. Seek support.
• Offer hope that alternatives are available but do not offer glib reassurance.
• Ask if you may contact a family member
• Take action. Remove means, such as guns or stockpiled pills.
• Don’t leave them alone, get help from persons specializing in crisis intervention and suicide prevention.
• If necessary get in touch with the police

Be Aware of Feelings: Many people at some time in their lives think about suicide. Most decide to live because they eventually come to realize that the crisis is temporary and death is permanent. On the other hand, people having a crisis sometimes perceive their dilemma as inescapable and feel an utter loss of control. These are some of the feelings and thoughts they experience:

  • Feeling Hopeless
  • I can`t stop the pain
  • I`m not worthy
  • Can not sleep
  • Can not work
  • Can not eat
  • I can`t make the sadness go away
  • I can not see a way out
  • Can`t make decisions
  • Can`t take control
  • Feeling helpless
  • Can`t see a future without pain
  • Can`t get someone`s attention
  • Can`t think clearly
  • Can`t get out of depression

Sources: www.gov.za, www.sadag.org, www.nami.org, en.wikipedia.org