Lirie van der Merwe is 10 months old and has paraplegia from the chest-line down, respiratory inability, multi-lobar lung collapse, osteopenia, and epilepsy.
Lirie was born at 32 weeks. After 4 weeks in the NICU she suffered a neck injury that led to paraplegia from the chest-line down. Due to this, her diaphragm is paralyzed and she is unable to breathe on her own and is on a home ventilator to breathe for her. She also suffered from a femur break due to her bones being so brittle.
Lirie is currently at home but her home-care is R28 000.00 per month. She gets her feeds through a feeding tube and she is suctioned regularly. She also has a cough assist to get her secretions loose and keep her lungs from collapsing. She has a vigorous daily medical and mediation routine that needs to be followed. The Medical aid is depleted, and Lirie needs her physio and speech therapy sessions.
By supporting our fundraising efforts you can be directly involved in making a positive difference in Lirie`s life. All proceeds from the “Shine Your Light” bracelets are donated towards her ongoing medical care and expenses. Together we CAN change the world, and help a child in need!
Alternatively, please consider a donation; any and all donations welcome. REF: Lirie van der Merwe.