Tag: Ewing Sarcoma
Updated on March 25, 2019 by AOM
As we are still mourning the passing of this precious angel child Nicole van Rooyen, we would like to give our supporters and everyone who loved her…
Updated on March 7, 2019 by AOM
Rest in Peace, Angel, Nicole It was with such sadness that we received the news that Nicole (17) passed away this morning. She is at peace now and free from pain. Nicole was a shining star, had such… Read More
- NEW Puzzle of My Heart Bracelets for Janu Swart – Cerebral Palsy & Epilepsy
- NEW My Miracle Bracelets for Marno Van As – Myotonic Dystrophy
- NEW One Love Bracelets for Ashley Janse Van Vuuren – Mowat-Wilson Syndrome
- NEW Little Hero Bracelets for Jandré Van Coller – Early Precursor Acute Lymphoblastic Leukaemia
- ‘With a little help from my friends’ Fundraiser in Aid of Joshua Nel – Baxter Concert Hall – 2 October
- CHARITY RAFFLE: Help a Child in need to WIN 7 Nights in Phuket Worth R15000!
- Arms of Mercy High Tea Fundraiser in aid of Cancer Awareness – Marlenique Estate in Simondium – 2 November
“Your children are not your children. They are the sons and daughters of Life`s longing for itself. They come through you but not from you, And though they are with you yet they belong not to you.” – Kahlil Gibran
🧡🧩Puzzle of my Heart Bracelets 🧩🧡
We are so excited to become a part of little Janu's journey with these bracelets.
Puzzle of My Heart Bracelets for Janu Swart – Cerebral Palsy & Epilepsy
Consisting of light grey & white wooden beads with crystals – and a Puzzle piece, Faith, and Sword charm.
“Be patient, like building a puzzle – it takes time for all the pieces of your life to come together.”
Three beautiful different bracelets available for only R30 per bracelet 🧡🧩
🧩To place and order, contact the agent in your area or shop online. Alternatively, please consider a donation; any and all donations welcome.
Janu Swart, from Klerksdorp, was born premature at 29 weeks. He had a birth weight of 1.29kg and thrived, but by the time he was 10 months old he could not sit on his own yet and seemed floppy. Janu was only diagnosed at the age of 3 with Cerebral Palsy, due to Periventricular Leukomalacia. In February 2017 he started having seizures, and was diagnosed with epilepsy.
Janu is now 5 years old, he has visual problems and gross motor skills are impaired. He still can’t sit by himself or walk, and remains on epilepsy medication. He is seeing an occupational therapist once a week, and his speech improved remarkably since having neuro-development therapy.
Janu is in a school with a caretaker that goes with him and otherwise his mom takes care of him. He is attending a normal school because his speech improved so much, even though he struggles with writing and fine motor skills. It would be ideal for him to have a computer with a special keyboard to assist him in his learning process.
Janu is using a walker but needs his own walker that can assist him with independent walking. To get to that point, he would have to get foot and ankle orthosis (afo’s), which the medical aid doesn’t fund. He will have to undergo botox for his legs in the near future, and might be a good candidate for selective dorsal rhizotomy (SDR) surgery, which is only done in Cape Town or America.
Stem-cell therapy would also improve his gross motor skills and can make a big difference in his life. Another option is Hyberbaric Oxygen Therapy (HBOT) which can improve spacticity in his legs. In the meantime he started with swimming therapy and is showing improvement.
Janu is such a friendly, happy child and gives everyone compliments. He is surely a CP warrior, constantly proving doctors wrong with his development.
🧩🧡Help us raise funds for Janu🧡🧩