“Emané Van Eeden is 4 months old and has been in ICU in Witbank Hospital from birth. They told me she had CHARGE Abnormality [Choanal Atresia] and they should operate. Emané was barely a week old when she went for the 1st operation, thereafter, they told me that the operation worked but 3 days later they came back and told me that the nose was closed again.
She went for another 2 operations that didn`t work and was then transferred over to Steve Biko in Pretoria. She was there for 2 weeks and had surgery again and I was not allowed to see her at all. They discharged her and called me and told me I could go and pick her up on the 29th of December. When I arrives, they told me that they couldn’t give me my child, and that it was a case of miscommunication between them. Witbank’s ambulance should fetch her there.
I had to come home without her. I called every day and were told that they were still waiting for the Ambulance, so on Monday the 4th of January I went to Witbank Hospital and asked them if they could not help me get my child back to Witbank. The Dr then called and said I could fetch her.
She was home until the 7th of January and then I had to go back to the hospital again with her because she struggled to breathe. On the 9th of January at 02:30 in the morning, Emané`s heart had already stopped 2 times and she had blood in her lungs but they could not tell me what was the reason or what caused it. She stayed at the hospital for another 2 weeks.
We went home and everything was fine until a month later when one morning she struggled to breathe again. I took her to a Pediatrician in Cosmos with the money we raised for her, and he told me that her heart and lungs were fine. I then took her to an ENT Dr also in Cosmos. Dr Nico Ligthel send her for a ST Scan and saw that the nose was closing again, so he referred me to Dr Gerrie Moolman, who confirmed that the nose was closing. The right side was already closed and the left side was 0.2 mm open. He told us that he will help us.
She has to go for a 5th operation to help open up her nose. We found a good-hearted Doctor who is prepared to do the operation for free from his side – but we need to pay for the hospital and the theater that they will be using. It is a lot of money and I wish I did have it but I don’t, and Emané really needs this operation. She is struggling each day with little things like drinking her bottle or even just breathing. The Hospital sent us a quote for the theater and the equipment they will be using and the amount is R 67 695.98. If it is possible that anyone can help, we would be so grateful PLEASE?”
Please open you heart and support our fundraising efforts for Emané; all proceeds from the “Loving Angel” Bracelets are donated to her medical care and expenses. Together we can make a difference, one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. REF: Emané van Eeden.