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Update on Conor: ESRD

Update on Conor: ESRD

A very difficult decision was recently made to bring Conor to the United States in the hope of giving him the best possible chance at life. His family remains deeply grateful for the exceptional care and treatment he received in South Africa. However, they felt strongly that time was running out and that Conor urgently needed more intensive, specialised medical treatment.

Earlier this week, Conor arrived safely in the USA, although he was extremely exhausted after the long journey. He is currently being cared for in the Intensive Care Unit (ICU) at Boston Children’s Hospital.

Following dialysis, the combination of the lengthy flight and his End-Stage Renal Disease (ESRD) caused Conor to suffer a seizure. Thankfully, the incredible medical team acted swiftly, stabilising him. Over the coming days, he will undergo a number of additional tests as his doctors carefully assess his condition and determine the best course of treatment.

This is an incredibly difficult and uncertain time for Conor and his family. We ask our amazing community to please keep them in your thoughts and prayers as they face the days ahead.

“Heavenly Father, we lift precious Conor into Your loving hands. Surround him with Your healing presence, strengthen his little body, and guide every doctor, nurse, and specialist caring for him. Grant wisdom to his medical team, comfort to his family, and peace in the midst of uncertainty. May Your love give them hope, courage, and strength with each new day. We pray for complete healing according to Your perfect will and ask that Your grace and mercy cover Conor every step of this journey.” Amen.

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Hope for Conor: The Urgent Search for a Kidney Donor to Help Save Conor’s Life

Conor van Baalen

An update by Conor van Baalen’s mom regarding his journey toward receiving a life-saving kidney transplant.
Sadly, she has been informed that she is not eligible to be a living donor for Conor.

While this news is deeply disappointing for the family, they remain hopeful and determined as they continue exploring every possible option for his transplant.

The search is now being widened to include potential donors of any blood group who may be willing to donate a kidney to help save Conor’s life.

Anyone who feels led to consider becoming a donor is encouraged to make contact so that the Living Donor Questionnaire can be shared and completed. Contact: hopeforconor@gmail.com.

At this stage, the family is carefully investigating every available avenue and continues to hold onto hope as they seek a suitable donor for Conor.

Please keep Conor and his family in your thoughts and prayers as they continue this journey.