“Ra’naa Khan is a beautiful 7 year old angel with Cerebral Palsy, cortical blindness and epilepsy. She is nonverbal and non-mobile, and is tube fed. Ra’naa suffers from chronic pneumonia, as well as early heart failure .
Mom is a single-parent who has dedicated her life to caring for Ra’naa full time as she is prone to being hospitalized and having severe problems with her respiratory system.
Ra’naa has a lot of special needs including medication, nappies, going to physio and OT. There are also outstanding hospital accounts that mom needs assistance with as she has no financial support. She has been placed on medical aid after she went through hardships at the local hospital, which almost cost Ra’naa her life.
The medical aid is active, but she does not receive therapy of any sort from medical aid. Two types of medication are also not covered through the chronic benefit which cost quite a bit each month.”
Please open your heart and support our fundraiser for this family in need – all proceeds from the “Forever My Angel” bracelets are donated towards her ongoing medical care and expenses. Together we CAN make a difference!
Alternatively, please consider making a donation. Any and all donations welcome. REF: Ra’naa Khan.
Fundraising for Ra’naa Khan
Forever My Angel Bracelets
The “Forever My Angel Bracelets” for consist of beige, grey and green wooden beads with silver and diamante fillers.
It was with such sadness and a heavy heart that I need to inform you that our brave little princess, Isabella Visser, ran into the arms of Jesus last night. The battle with Spastic Tetraplegia Cerebral Palsy and Epileptic Encephalopathy is over and she is at peace now and free from pain.
To Isabella`s family: Please accept our deepest sympathies for the loss of your baby girl. We pray that the light of God’s love shines upon you as you face the darkness of your pain and your grief. Know that God will never forsake you. He will always look after you because you are His child and He is your Father. May you be blessed with the peace and comfort that you seek during this difficult time.
May God give you all the Grace to accept what has happened and the serenity to carry on living.
Karin Harmse & AOM Team.
Isabella`s “Angel of Light” bracelets will be available until the 15th of July 2022. Wear yours in memory of a brave little girl who fought until the bitter end, and who was loved by so many. Order from our agents or shop online.
“Ronan Benson was diagnosed with cerebral palsy a while back. At birth he had a cord prolapse and swallowed amniotic fluid, it’s a miracle that our little boy is here. From there he was in and out of the hospital but more in than out. He is now 9 months old and was roughly a month and a half at home between all the hospital admissions. He can’t swallow or suck and because he can not drink normally, he has a PEG in his stomach and we feed him like that.
Because of cerebral palsy, Ronan`s muscles are very stiff and his joints are bent all the time. To improve, Ronan needs Speech therapy to help him swallow and suck, Physiotherapy to get his muscles relaxed and in shape, and Occupational therapy to improve his reflex and senses. We also do not have medical aid and to send Ronan for all the things he needs is going to cost a lot of money and it’s just out of our reach financially.”
By supporting our fundraiser for Ronan you can make a positive difference in his life – all proceeds from the “Greatest Love” bracelets are donated towards his ongoing medical care and expenses. Together we CAN change the world and help a child in need!
Alternatively, please consider a donation; any and all donations welcome. REF: Ronan Benson.
“Lisa Le Roux is 6 years old and has Spastic Diplegic Cerebral Palsy. She has a great spirit with a will to do everything, but she can’t walk. She started school in January at Elizabeth Conradie School Kimberley (Elcon) and she needs a new wheelchair.
At this stage she has a Shonaquip 8″ Sully wheelchair but needs a new one as she has outgrown it. This wheelchair works best for her and she really needs it for school as it’s nice and small with a detachable table, but the cost of a new Shonaquip 10″ or 12″ wheelchair is ±R15 000. Lisa is fun-loving and one big sweetheart that draws in anyone that just looks at her.”
By supporting our fundraising efforts you can be directly involved in making a positive difference in her life! All proceeds from the “Butterfly Wishes” bracelets are donated towards her ongoing medical care and expenses. Together we can change the world… one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. REF: Lisa le Roux.
Fundraising for Lisa Le Roux
The “Butterfly Wishes” bracelets for Lisa consist of green and cream wooden beads with silver and diamante fillers.
Sheryhar is a 6 year old boy from Queenstown in the Eastern Cape who has Spastic Quadriplegic Cerebral Palsy with mild scoliosis and global development delays.
He needs a lot of care and as such his mom is 24/7 with him. She is an unemployed mother, and Sheryhar’s father owns a small cell phone counter where he rents the space. They unfortunately are not well-off and sometimes need assistance with Sheryhar’s expenses, especially in terms of buying nappies, medication, food and other living expenses. He also has to be taken to East London for check-ups on his ears on a regular basis. Sheryhar used to attend private therapy, but since the pandemic, and due to his high risk status, that has been put on hold. A little help will really do this family so much good.
Sheryhar has to regularly see a physiotherapist, occupational therapist, speech therapist and audiologist. He has recently received hearing aids as he was unable to hear from both ears. He receives medication every month and visits his doctor once a year.
Please open your heart and support our fundraising efforts for Sheryhar– all proceeds from the “Gift from Above” bracelets are donated towards his ongoing medical care and expenses. Together we CAN make a positive difference and help a child in need. Together we can change the world… one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. REF: Sheryhar Saleem.
Fundraising for Sheryhar Saleem
Gift from Above Bracelets
The “Gift from Above ” bracelets for Sheryhar consist of blue and silver wooden beads with silver and diamante fillers.
Charm options: Snowflake / Tree of Life / Hope-Awareness Ribbon.
“Brayden Roux was born on 39 weeks. It was a wonderful pregnancy, but Brayden suffered severe brain damage due to a failed water-birth. After many attempts and hours spent, Brayden was born via Emergency C-Section. He had bleeding on the brain due to forceps and had gone in to distress. He was not breathing properly and seemed almost unresponsive at birth. Brayden spent 2 weeks in the NICU where he also showed signs of silent seizures, which later became more visible.
Brayden was diagnosed with Cerebral Palsy, Cortical Visual Impairment – which means his eyes does not make contact with his brain, leaving him unaware of what he sees.
He has focal epilepsy and West Syndrome which has left us, some days in a bit of a panic. His medication ranges between R2500-R3500 per month. He receives therapy on a weekly basis. (Physio and Occupational).
His epilepsy has not been sorted out and we have been fighting this battle non stop. We are sometimes required to visit his neurologist 2 times a month for EEG followups and blood tests. Brayden turned 2 in November. He still can’t sit, walk or talk.”
Please support our fundraising efforts for Brayden, all proceeds from his “We Believe” bracelets are donated towards his ongoing medical care and expenses. Together we CAN make a difference and help a child in need – one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. REF: Brayden Roux.
Fundraising for Brayden Roux
We Believe Bracelets
The “We Believe Bracelets” for Brayden consist of wooden beads with silver and diamante fillers.
Bracelet options: 1. White with We Believe charm 2. Grey with Armour Shield charm 3. Navy with Angel charm
Zack Prins is a 3 year old little boy from Hopefield in the Western Cape. He had severe jaundice which caused brain damage when he was only 5 days old, and was diagnosed with cerebral palsy disorder on the 10th day after having a blood transfusion. Zack has been receiving physiotherapy since he was 3 weeks old.
Zack currently needs a custom-made tricycle to assist in brain development. The tricycle will help the left brain to talk to the right brain which will speed up the process for him to start walking. He still needs physiotherapy, occupational therapy and speech therapy. He also attends a local daycare to help him with development.
You can help us to raise funds for Zack by ordering his special “Hold on to Hope” bracelets – all proceeds are donated towards his ongoing medical care and expenses. Together we CAN make a real difference in his life!
Alternatively, please consider a donation; any and all donations welcome. REF: Zack Prins.
Fundraising for Zack Prins
Hold on to Hope Bracelets
The “Hold on to Hope Bracelets” for Zack consist of white wooden beads with green crackling beads, silver and diamante fillers.
Zayden Fischer (4 yr.) has Cerebral Palsy. He attends Cape Recife in Port Elizabeth, which is a school for kids with special needs. He will be turning 5 years old in May 2021. He has had a PDA repair, hernia repair and had botox done regularly.
Zayden has therapy every week as his parents want him to reach his full potential, and they are currently waiting to hear about a wheelchair for him.
He is on bio baclofen and melatonin, and he also has physio twice a week, and speech therapy once a week.
Mom is not working at the moment in order to take care of him and his needs. You can help us to raise funds for Zayden by ordering his special “Believe in Yourself” bracelets – all proceeds are donated towards his ongoing medical care and expenses. Together we CAN make a difference!
Alternatively, please consider a donation; any and all donations welcome. REF: Zayden Fischer.
Fundraising for Zayden Fischer
Believe in Yourself Bracelets
The “Believe in Yourself” Bracelets for Zayden consist of beige, silver and mint coloured wooden beads with crystal, silver and diamante fillers.
“Mason and Madison Jacobs are twins who were born premature, weighing 1.6kg and 1.8 kg. Mason was in ICU for 3 weeks on a ventilator for oxygen. We realized when they were about 1 and 1/2years old that they were a bit slower with sitting and crawling than other kids. We also noticed that Mason`s left side is different and started with physio for the last 2 and 1/2 years.
Other problems started like chronic constipation that lead to a CT scan and lead to hemiplegia cerebral palsy, so we took them to a Specialist where we learned that both, Mason and Madison, has CP. They have gone for an MRI, hearing tests, EEG scan, botox injections, and still have to go to an Eye Specialist. They are going for physical therapy once a week. They just turned 4 on the 29th of March 2021 and are still not walking on their own. We are hoping that they will get stronger to walk with all the physio.”
Please support our fundraising efforts for Mason and Madison; all proceeds from the “Miracles and Magic” Bracelets are donated to their ongoing medical care and expenses. Together we CAN make a difference!
Alternatively, please consider a donation; any and all donations welcome. REF: Mason and Madison
Fundraising for Mason and Madison Jacobs
Miracles and Magic Bracelets
The “Miracles and Magic” Bracelets for Mason and Madison consist of pink and turquoise coloured wooden beads with crystal, silver and diamante fillers.
Leonardo Cassels was born on the 4th of November 2018. Mom and baby Leonardo were kept in hospital because he could not suck properly on her breast, which lead him to be admitted to high care for a full week.
After their release from hospital they came home but Leonardo didn`t cry or acted like any normal, healthy child would. His weight gain was slow so mom decided to take him off breast milk because she thought the milk was not good for him, not knowing that he has cerebral palsy. Leonardo loved to keep his legs near his stomach but she didn’t take note as she thought it’s colic.
She took him to hospital on the 11th of March 2019 looking for answers. The doctor then explained to her that Leonardo has brain damage and he may never be able to walk or talk; but she didn’t lose hope and took him for physio, O.T and he went for a CT scan. She also went to see a Specialist who explained to her how to treat him, and which foods to give to keep him strong and ensure that his brain keeps growing.
Mom gives him physio at home and cares for him herself as there simply is not enough financial resources for more therapy and treatments. He can’t swallow well so he is on soft food and he still drinks milk. His weight gain is very slow, and he also has asthma.
Please open you heart and support our fundraising initiative; all proceeds are donated to Leonardo`s ongoing medical care and expenses. Together we can change the world, one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. REF: Leonardo Cassels.
Fundraising for Leonardo Cassels
Dreams Come True Bracelets
The “Dreams Come True” Bracelets for Leonardo consist of purple wooden beads with silver and diamante fillers.
“Lieschè van Wyk was born on the 1st of February 2018, after her mother was in labour for 38 hours. She was given oxygen immediately and transferred to NICU. Shortly after birth she started having epileptic seizures and at the age of 6 months she was diagnosed with “Spastic quadriplegic cerebral palsy and microcephaly”.
She must go for botox injections every 4 months to relieve her muscles and help with the spasticity. She goes to weekly physio, occupational and speech therapy, unfortunately hydro & chiro had to be stopped due to lack of funding. Lieschè is non-verbal and had to get a feeding tube (mickey) shortly after birth, she is still in the process of learning how to eat and swallow soft puree foods.
Lieschè is the light of our lives, always friendly and the most beautiful smile. She is such an inspiration to everyone that knows her, she has touched so many lives through her determination and fighting spirit. She works very hard with each therapy session. “
Lieschè needs to get AFO’s and a buggy in 2021, the medical aid does not cover her therapy for the full year, and it is desperately needed. We as parents want to do everything possible to give her the best quality of life and to assist her in making life as comfortable as possible.”
By supporting our fundraising initiative you can help to raise funds for her ongoing medical care and expenses. Together we can change the world, one bracelet at a time!
“Update on our little warrior princess Liesche van Wyk, she is going for her next botox treatment in June’21, it helps her so much in terms of her muscles and spasticity. She is working very hard in her physiotherapy, occupational therapy and speech therapy weekly sessions, although she is non verbal she is doing so well with speech therapy in terms of her swallow exercises. We recently found out that she is allergic to cow’s milk & soy, so we had to change her diet and introduce her coconut & rice milk, which is going well. She has gained a bit of weight.
She has recently received her AFO’s which is splints for her feet in order for her to stand for longer periods of time in her standing frame. Our little warrior princess cannot sit by herself, walk or talk, she also doesn’t have neck control, she is working very hard with therapy in terms of swallow soft puree foods, but cannot swallow any liquids, she has a feeding tube (mickey) in her stomach.
Our next big project is to take Liesche for stemcell treatment, we have heard wonderful successful stories where cerebral palsy children has benefited from this treatment. Unfortunately medical aid doesn’t not pay for stemcell treatment, so we would appreciate it if you could assist us in raising funds for this BIG project and help our little princess reach HER full potential. THANK YOU for everyone’s support and love. We appreciate you.”
Please consider a donation; any and all donations welcome. REF: Lieschè van Wyk.
Fundraising for Lieschè van Wyk
Heart of Hope Bracelets
The “Heart of Hope” Bracelets for Lieschè consist of white, mint, and pink wooden beads with silver and diamante fillers. Charm options: Diamante Heart / Diamante Cross / Diamante Dragonfly.
Marius Ferreira was born on 28 weeks, weighing 1.1kg. He became really sick 2 weeks after his birth, so bad that the doctors said he won’t make it. But God had a purpose and he pulled through .
Throughout the years, he’s been diagnosed with Cerebral Palsy, Microcephaly, Epilepsy, and he is tube-fed. He had broken both his legs and an arm due to poor bone density and epileptic fits. He is quite often admitted to hospital, due to aspirations or infections.
Marius has special needs, he uses a special formulated feed, and can’t eat per mouth. He has a list of Specialists (Neurologist, Orthopedic surgeon, Pediatrician, ENT specialist, Paediatric Surgeon and a Gastroenterologist) who he needs to see twice a year, sometimes more. He also needs to see a Speech Therapist and an Occupational Therapist every month.
His monthly expenses are quite high and they constantly need to raise funds for him, due to his medical expenses and bills. He has chronic medicine and also a handful of vitamins and supplements that he needs to take.
Marius is a tough little fighter, has been through so much, but he always has a smile on his sweet little face. He is now a 7 year old happy boy, even with his daily challenges.
Please open your heart and support our fundraiser for Marius, we CAN make a significant difference in his precious life. All proceeds from his “Believe in Angels” Bracelets are donated towards his medical care and expenses. Together we can change his world… one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. REF: Marius Ferreira.
In 2018 Blake`s mom got ill with the Coxsackievirus during her pregnancy of him and his sister. During this time they found out there was an excess amount of amniotic fluid in Blake’s side of the sack. At 25 weeks pregnant Blake’s mom saw a foetal Specialist that did drainage of 2 litres of amniotic fluid to try prevent preterm labor. Blake and his sister were born at 27 weeks due to placenta rupturing and they drained an additional 10 litres of amniotic fluid from his side. During the delivery both Blake and his sister were immediately taken to NNICU where they were both stabilized.
Blake Griesel was born weighing 1.3kg. During his NNICU stay he was being treated for Jaundice as well as grade 2 bleeding on the brain. He had also received numerous blood transfusions during this time. He was on a CPAP breathing machine for most of his 60 day stay as his one lung was struggling to get oxygen (there was a chance that he wasn’t going to make it home). Due to the tightness and pressure from the CPAP machine the sternum of his nose were pushed high up so that it was not visible, causing the one side of his nose to collapse a bit.
At his 1 year checkup the Sister doing his vaccinations suggested he get seen by a Paediatrician as she suspected Cerebral Palsy (CP). An appointment was made with the Paediatrician who confirmed the family’s biggest fears. He referred Blake’s parents to get an MRI scan done, and confirmed the severity of the diagnosis.
Blake’s parents set out with physio and occupational therapy and the Neurologist to try get early intervention. He will need splint boots to aid his feet and legs. Blake is on various chronic medications to help him and he will need more MRI’s along with Neurologist appointments every 6 months along with botox injections as well as speech therapy to help him with communication. The medical aid does not want to cover his medication or neurologist bills, and only covers a third of his therapy bills.
He was also diagnosed at 32 weeks with R.O.P. having him go for corrective surgery a week after being discharged from NNICU. He will need glasses as he has Strabismus, unfortunately also partially paid by medical aid.
With everything that has happened, Blake’s parents have been unable to keep up with all the costs involved, with everything that has happened with Covid-19 these bills have become even more difficult to pay, resulting in a few missed sessions of OT and Physio because they cannot afford the sessions anymore.
Funds are needed for his medication as well as Neurologist appointments, MRI scans, boot splints, mobility devices, botox injections, physiotherapy, occupational therapy, speech therapy, surgery on his nose to help him breathe properly, glasses and eye appointments.
Please open your heart and support our fundraising initiative, all proceeds are donated towards Blake`s medical bills. Together we can change the world, one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. REF: Blake Griesel.
Update 8 March 2021: “Blake has received his splint boots as well as his glasses and is adjusting well to all the changes. We are now in the process of trying to get him a mobility device that will work with him for a few years. This is going to be tricky as he does not like his current stroller and he screams when being placed in it. We are continuing with physio, OT, and have begun speech therapy. We are hoping that the OT will help in regards to being in his stroller as he is getting to heavy to carry. Since Blake has gotten his glasses, he has become more vocal and is even trying to say a few words. In May we are seeing the neurologist again and will have to go for MRI, hip x-rays and a possibility of botox. From there we will find out more about his medication and any other information going forward.”
“Ruhandre Opperman was born at 24 weeks on 4 November 2020 as a micro prem baby who weighed 684g and was 31.5cm tall. He stayed in hospital for a period of 201 days in total which he was most of the time on oxygen. During this time he was diagnosed with Chronic Lung disease and Laryngomalacia. He spent the first 2 and a half months only on intravenous feeding due to being misdiagnosed for Esophageal Atresia in the first month. Due to this his stomach was not used to any milk and aspirated the feedings. This led to not gaining any weight in the first two months.
During the last few months of his stay in hospital they diagnosed him with severe reflux and aspiration to the lungs which led to him receiving a Nissan’s operation and a Mickey button for feeding through the stomach. Due to aspiration his lungs were not healing properly. He gained weight very slowly and had to fight severe infections like septicaemia. With a lot of medication, blood transfusions and blood platelets, he eventually healed and got to come home.
He has been home since the end of May 2021, with a couple of hospital stays after that but He has since grown into this little precious person with the biggest smile and personality. Truly one of God’s greatest miracles.
During December 2022 he was hospitalized again for Adenoviral Pneumonia and Haemophilus Influenza and was transferred to the Nelson Mandela Children Hospital in Johannesburg. There he was placed on oxygen again due to his oxygen levels falling to below 85 when sleeping. He received a couple of tests for the severe reflux and for his oxygen they diagnosed him with Obstructive Sleep Apnoea. During this time they have also diagnosed him with Cerebral Palsy. The extent of this will only be properly looked at in February 2023 when he will go back to hospital for the Laryngomalacia to have his tonsils removed. He will also then be transferred to a Rehabilitation centre close to the hospital for an unknown period of time to assist him with becoming mobile like sitting, crawling, walking and eating.
Currently his parents are not completely sure if he would require any possible equipment for mobility, ongoing physio and speech therapy and medical costs that is not covered by the medical aid. Any and all donations will be highly appreciated to assist them financially.”
Please open your heart and support our fundraiser for Ruhandre – all proceeds from the “Forever in Faith” bracelets are donated towards his ongoing medical care and expenses. Together we CAN make a difference!
Alternatively, please consider a donation; any and all donations welcome. REF: Ruhandre Opperman.
Fundraising for Ruhandre Opperman
Forever in Faith in Bracelets
The “Forever in Faith” Bracelets for Ruhandre consist of turquoise wooden beads with crystals, silver and diamante fillers.
Charm options: Diamante Infinity / Faith / Hope.
To place an order, contact the agent in your area or shop online.
Zelmarie Venter was born at 35 weeks with an oxygen problem. The umbilical cord was wrapped once around her neck, and she had to stay in NICU for 3 weeks before she could go home.
“The doctors never gave the impression that she will have problems or that there are any problems. She was kept in NICU because she was struggling to suck and swallow her milk. As the months went by we came to realize that she was behind on her milestones. She was always stiff on her right side. She only sat by herself at 1 year and 1 month and never crawled. She only started to walk when she was 2 years and 8 months old.
Zelmarie is turning 5 years old in April 2022. We don’t have a Medical Aid, and through people we knew and met, ended up taking her for Therapy at New Hope School without a formal diagnosis, and she is progressing well there. They recommended a Paediatrician who saw her once and diagnosed her as Right Hemiplegic and Speech Appraxia.
Her case is not as severe as other children with the same diagnosis and the therapists think that with time she will get better. She has been to a Paedatric Neurologist, which was paid for by a good Samaritan, but that was just an ordinary 1st examination. No scans have been done yet.
At this stage, there are no urgent doctor visits that need to happen, however, we do need to take x-rays of her hips to see if it is okay. We also had her eyes tested and they said that she is nearsighted at the moment but that should return to normal by itself. I hope to be able to get the transport and opportunity in the future to send her for a CT Scan to get more clarity about her diagnosis. We as her parents want to make her life better and easier but we both are only temporarily employed and we do not have a Medical aid.”
Please open your heart and support our bracelet initiative – all proceeds from her “Walking with Butterflies” bracelets are donated towards Zelmarie`s ongoing medical care and expenses. Together we CAN make a positive difference in her life!
Alternatively, please consider a donation. Any and all donations are welcome. REF: Zelmarie Venter.
Fundraising for Zelmarie Venter
Walking with Butterflies Bracelets
The “Walking with Butterflies” Bracelets for Zelmarie consist of pink and purple wooden beads with silver and diamante fillers.
Charm options: Diamante Butterfly / Tree of Life / Bible.
To place an order, contact the agent in your area or shop online.
Brodie Snyman sustained severe brain damage at birth due to placenta abrubtion. Doctors said he is a very sick little boy and he had to spend 6 weeks in NICU. He started having convulsion fits and was struggling to drink normally. Brodie was admitted to hospital 3 weeks after he was discharged from neonatal with pneumonia, and was transferred to Sandton Medi Clinic to see Specialists there.
Little Brodie can’t swallow properly and then aspirates. From the severe repeated aspirations, Brodie’s lungs were severely damaged. He was diagnosed with Bronchiectasis lung disease and had to be put on oxygen. They also had to insert a mickey feeding tube in his tummy, so that he can be fed that way.
The first two years of Brodie’s life he spent mostly in hospital due to all kinds of infections as his immune system is very low, so he is very susceptible to viruses and illness.
His muscles are very spastic and requires botox every 6 months, he receives botox in the saliva glands to prevent aspiration as well.
Brodie requires weekly neuro/occupational/speech/swallow therapy, which the medical aid do not cover, He also needs a standing frame, special bath seat, and a specialised buggy for the scoliosis in his back.He also has displaced hips.
Brodie needs to see the doctors every 3 months to check on his lung disease. His chronic medication is very expensive, which the medical aid also don’t cover in full. He needs to be nebulised 4 times a day for his Asthma and Bronchiectasis, and he needs daily chest physio. Brodie also needs 24 hour care as he can’t sit, roll, stand or walk, and he can’t talk either.
Brodie is our Little Miracle boy, as we almost lost him twice due to severe infections. The doctors told us we would be lucky if Brodie gets to 2 year old, but he is a real fighter! He turned 3 years old in March and we are so grateful for every single day with him .
Co-payments for medication is roughly R2000 a month. All Therapy together adds up to R2400 a week if we can afford all 3 sessions.
Brodie’s medical equipment (standing frame, bath seat and specialised buggy) – the last quote received was about R120 000, but that was quite a few months back so the prices may differ.
Co-payments for Brodie’s Botox varies between R5000 and R7000 at the hospital.
Outstanding doctors, pharmacy and hospital bills to be settled which is roughly R11 000.
By supporting the Arms of Mercy bracelet initiative you can help make a contribution to Brodie`s ongoing medical care and expenses. Together we can change his world, one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. Please remember to use “Brodie Snyman” as reference.
“Mienkie and Karlie du Plessis are twins who were born on 1 February 2017, at 28 weeks. They weighed 980 grams and 1.1 kg’s at birth, and spent 101 days in the Neo-natal ICU ward in the Bay Hospital. They had countless infections and blood transfusions during this time.
After noticing that Mienkie was not reaching her milestones in terms of mobility, we found out that she has Cerebral Palsy (CP) – Spastic Diplegia. Not too long thereafter, we noticed that Karlie was not responding to sounds. After an appointment with an Audiologist, we were informed that Karlie is moderately deaf. We have since found out that Karlie too is suffering from CP.
We have to get the right treatment for Mienkie and Karlie, but the costs are astronomical and out of our reach. We have started a fundraiser (mienkieandkarlie.com) but have only managed to raise R16 000. Mienkie’s operation alone will cost just under R1 million.
Mienkie is currently being treated by Dr Inet Pretorius, a Paediatric Neurologist based in Johannesburg. She has been receiving botox injections to her back and legs in efforts to release the spasticity in her muscles. Mienkie requires Selective Dorsal Rhizotomy (SDR) surgery and possibly tendon lengthening to ever be able to walk unaided. This surgery is performed successfully by Dr TS Park at the St Louis Children’s Hospital in Missouri, USA. After the surgery, she will need to undergo intensive physiotherapy at the St Louis Children’s Hospital for a period of a month. Mienkie went for her last botox session in October in Johannesburg, and Dr Pretorius informed us that we need to get the surgery done as soon as possible.
Karlie is being treated by Dr Kara Hoffman, an audiologist based in Durban. She also receives speech therapy on a weekly basis. However, even with hearing aids, Karlie is unable to speak at all and this frustrates her terribly. We will be seeing Dr Keshave and Dr Schlemmer who will do MRI and CT scans and assess Karlie to determine if she is a candidate for cochlear implants. If she is a candidate, the plan is to operate in the first quarter of 2021. We pray and believe that she will be a candidate.”
Update 11 January 2021: We have just received the wonderful news that Karlie’s cochlear implant surgery in both ears went very well. After a 7 hour operation, the Surgeons are very happy with the response from the nerves. All praise and glory to Jesus Christ. Let`s pray for a speedy recovery and complete healing.
By supporting the Arms of Mercy bracelet initiative you can help raise funds to make a contribution to the twins` ongoing medical care and expenses. Together we can change their world, one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. Please remember to use “Mienkie & Karlie” as reference.
Fundraising for Mienkie and Karlie du Plessis
Wishes Come True Bracelets
The “Wishes Come True” Bracelets for Mienkie and Karlie consist of white and light turquoise (dugg egg) wooden beads with crystals and diamante fillers.
Charm options: Cross / I love Jesus / Hope.
To place an order, contact the agent in your area or shop online.
Charlene Els was born on the 30th of October 2011. Due to negligence of the hospital, she was born with the umbilical cord around her neck and barely alive…
She was resuscitated after about 15 to 20 minutes and taken straight to NICU where she was sedated and kept cold to reduce brain damage due to swelling of the brain. Charlene was in ICU for 27 days where she had to learn how to suck a bottle and a dummy.
The doctors told her mom that she will never be normal, and that she had severe brain damage to the front part of her brain. They started with physio, speech and occupational therapy at the age of 2 months.
Charlene is now 10 years old and she still wears nappies. She needs to eat soft food, use Pediasure milk and Lifegain to help her keep her weight and supply her with all the vitamins, and to help with her tummy. She is very constipated due to the fact that she doesn’t move like normal children. She still gets physiotherapy and occupational therapy.
Funds are needed for Nappies, Milk, Physiotherapy, Occupational therapy, MRI scans once a year, Ear and Eye tests once a year, and more stem cell treatment if possible.
By supporting our bracelet initiative you can help to raise funds to help pay for Charlene`s ongoing medical care and expenses. Together we can change the world, one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. REF: Charlene Els.
Fundraising for Charlene Els
Pieces of Me Bracelets
The ‘Pieces of Me’ Bracelets for Charlene consist of dark purple wooden beads with crystals – or dark purple with 4 speckled light purple wooden beads with crystals.
Charm options: Angel / Flower / Heart.
To place an order, contact the agent in your area or shop online.
“Azealin Joseph Smiles was born on 06 October 2017 and weighed 3.2kg. He was a normal happy child and just attempted walking and talking when he was hospitalised. On the 9th of August 2018, at 10 months old, Azealin started having seizures. We rushed with him to the emergency unit at Life Rosepark hospital.
The doctors struggled to stabilize him and we almost lost him. He was given a lumber punch after which he was diagnosed with Bacterial Meningitis. After battling to keep him alive, the pediatrician admitted him to the Pediatric ICU where he stayed for 46 days.
When the meningitis cleared, more tests were done and Azealin was diagnosed with Cerebral Palsy with Brain Atrophy and Epilepsy. He is also blind in his right eye, and we are still not sure whether he can see properly through his left eye. He is unable to walk, sit and talk, and needs full time attention and special equipment to assist him with daily living and development. He will also have to wear nappies for the rest of his life.
Through donations and saving we were able to procure a buggy and bath chair for him but we are currently still in need of a Standing frame, Specialized bed, a Ramp at our home for his buggy and later his wheelchair, and Nappies. Azealin also needs weekly physical therapy as well as occupational therapy which our medical aid refuses to pay at this stage. He needs to go see the pediatrician regularly and needs to have tests done every six months.
He has seizures or tremors more than once a day and needs medication daily to minimize the seizures and the effect it has on his brain. It must be said that after seeing his brain scans and evaluating his tests, Azealin’s doctors (pediatrician and neurologist) did not have much hope that Azealin would make any type of movement or effort to communicate or for that matter chew or swallow food.
It has been 3 years and apart from growing taller, Azealin chews and swallows his food, he communicates with us by means of sound. He has a different noise for a different feeling and he can distinguish between his family members because he has a unique way in which he communicates with each of us.
He has no trouble at all moving his arms and legs and even started mimicking crawling actions when he lies on his tummy. He even gets angry when his body fails to comply.
We are truly grateful for each day with him and thank God for bringing him back to us and giving us little miracles to look forward to with every action that Azealin attempts to do.”
Please open your heart and help us to carry the financial burden by ordering Azealin`s special “Just Smile” and “Love You to the Moon” Bracelets – all proceeds are donated towards his ongoing medical care and expenses. Together we CAN make a difference and help change his world!
Alternatively, please consider a donation; any and all donations welcome. REF: Azealin Smiles.
Fundraising for Azealin Smiles
Just Smile Bracelets
The “Just Smile” Bracelets for Azealin consist of turquoise wooden beads with crystal, silver and diamante fillers. Charm options: Faith / Love / Anchor. To place an order, contact the agent in your area or shop online.
“Love You to the Moon” Bracelets for Azealin consist of green & navy wooden beads and crystal, silver and diamante fillers. Charm options: Moon / Heart / Love-Hope-Faith. Contact the agent in your area or shop online.
Kevin van Eeden was born on the 10th of April 2006 at 30 weeks, weighing a mere 1.5kg at birth. After 28 days in Neonatal ICU at the hospital where he was born, he was discharged with a clean medical record and weighing 1.9kg. At almost 5 months, mom Marlene, began to suspect that there was something wrong with his eyes as he wasn`t focusing on anything. After many doctors` visits and tests, they confirmed that Kevin has Optic Nerve Atrophy (ONA) and are therefore completely blind. ONA means that the nerve of both eyes connecting them to the brain has not developed and so there is no communication between the eyes and the brain.
Mom and Dad sold everything and moved to Cape Town to try to give Kevin a better chance of a normal life. They managed to get him in at the Red Cross Children’s Hospital and after further tests they were shocked to learn that Kevin also has severe brain damage (presumably due to complications at birth). Kevin’s condition is called Spastic Quadriplegic Cerebral Palsy.
The costs in Cape Town were just too expensive to get a suitable school daycare for Kevin, and because his parents didn’t have medical there either, they were forced to return to Lichtenburg. They both got jobs again but mom’s medical aid still does not cover everything that Kevin needs, such as therapy, special equipment and nappies etc. He is on 2 types of chronic medication for seizures and also on medication for chronic constipation (Pegicol), but it is not chronically covered and is deducted from medical day to day benefits each month. His nappies, wipes and other needs such as extra nutritional supplements like Pediasure and other supplements are also not covered by medical. Because they are on a Saver Medical Aid they simply can’t afford to take Kevin for therapy on a regular basis.
They had to hire a nanny to take care of Kevin during the day when both parents are at work. The nanny’s salary also costs a fair amount each month.
Kevin is a very loving and cheerful boy despite all the setbacks and trials he has to go through every day. He must wear nappies and has to be fed soft food. Chances of choking are very high as he cannot control his breath or chew like others do. He needs to sleep between mom and dad on their bed because he can choke, or have a seizure in his sleep. He also has to be turned regularly to prevent bed sores.
Update March 2022: Kevin is turning 16 years old in April and not much has changed with regards to his needs. He still needs to eat soft foods and can only eat whilst lying down. He cannot swallow when he sits, and this makes his chances of choking and aspiring so much more. He also requires lots of extra nutrition as he can only eat certain foods. He doesn`t get a lot of meat and protein in his diet because he cannot chew and does not like the taste of blended meat. Kevin can`t eat any foods that cause gas as this triggers his seizures. He is on meds for constipation as well. He still gets seizures and he is on 2 types of chronic medication for it. He also takes Risperdal at night to help him calm down and helps with sleep as his brain sometimes just doesn’t shut down. He has severe scoliosis in his back, and his hips are both dislocated which makes his pain very intense at times, together with the spasms in his muscles. He has contractures in his arms and legs which makes it even more difficult to move them. He is on adult size medium nappies now.
They had to downgrade their medical aid also as the medical aid premium was more than mom`s salary now as she had to change to a new job because of the 12hr shifts (day and night) she was working at her previous job. She took a huge cut in salary but at least the working hours are better and she has more time with Kevin. Dad is working extra overtime hours to try and compensate for the extra costs needed.
Besides all the challenges he faces, Kevin is still such a happy joyful child who wants nothing more than love and attention.
Because Kevin is now becoming a big boy, and won’t be able to sleep between his parents forever, they are thinking of purchasing something like an electronic hospital bed to make it easier to deal with his needs. Mom can hardly pick him up and carry him around anymore. He also needs a special needs bath chair to facilitate bath time, especially if one of his parents are not there. An electric hoist will also make life a lot easier for him and his parents because he gets taller and heavier by the day, and it`s becoming increasingly difficult to get him in and out of the bath, and from the bed to his special needs buggy.
Supporting our fundraising initiative is a great way to get involved and make a significant difference in Kevin`s life. All proceeds from his “Anchored in Faith” Bracelets are donated towards his ongoing medical care and expenses. Together we can change his world, one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. REF: Kevin van Eeden.
Follow Help for Kevin on Facebook for live updates on his progress and journey.
Fundraising for Kevin Jacques van Eeden
Anchored in Faith Bracelets
Anchored in Faith Bracelets for Kevin; consisting of white and teal wooden beads with crystal, silver and diamante fillers.
Deliveries: Please note that items are made by hand and on-order. Delivery may take between 7 and 14 working days after payment has cleared in our bank account. Direct Bank Transfers: Should we not receive payment or POP within 3 days the order will unfortunately be cancelled on our system. Shipping Policy
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