Vanaand net hier waar ek sit in my binnekamer, ervaar ek die pyn en ontnugtering van ouers met outistiese kinders. Ek sien die verwese moegheid van nimmereindigende lang dae vol sukkel met kindertjies wat nie in woorde kan se as hulle iewers pyn, ongemak en hartseer voel nie. Die vernederinge wat ouers moet deurgaan. Die alleenheid en isolasie wat knaag omdat ouers nie soos gewone mense by vriende kan gaan braai en kuier nie. Geen van die ouers het ‘n sosiale lewe nie.
Ek het soveel begrip en empatie vir sulke gesinne. Ek salueer elke Mamma en Pappa met outistiese kinders en wil jule verseker dat Jesus altyd saam met julle die pad sal stap, al voel julle pad oneindig eensaam. Julle beloning sal julle verseker ontvang. 🙏
Die intensiewe terapie stel uitmergelende eise aan die ouers en finansiele bronne. Die terapie, regte dieete, medikasie is enorme bedrae en al hierdie Mammas moet na hulle kindertjies omsien terwyl die Pappa’s baie hard moet werk vir oorlewing.
Ek wil vanaand ‘n beroep doen op al Arms of Mercy ondersteuners om asseblief julle harte oop te maak vir ons outistiese kinders. Hulle kry bitter min ondersteuning en maak ek dit nou my werk om op enige moontlike manier hierdie “special needs” kindertjies te help sover dit moontlik is en ek vertrou my Jesus 200%. 🙏
Genade en nogmaals genade: God se genade kan ons definieer as “guns wat onverdiend is” wat geheel en al nie verwant is ten opsigte van elke en enige kwessie van menslike verdienstelikheid nie. Hoe fantasties is dit nie.
When we see Christopher Meyer, we are reminded of God’s perfect order; His unmistakable process, His perfect vision for how things should follow on one another in this event we call life.
Ten year old Christopher is on the Autism Spectrum and is finding himself in an awakening to the world, as though emerging from a familiar cocoon of comfort. He is non-verbal, although he is quite functional in a home environment.
He longs to spread his wings and see what the great big world out there has to offer him.
His greatest challenges, preventing him from doing so, are his severe sensory outfalls, resulting in disorganization of his proprioceptive, interoceptive and vestibular systems.
The therapy required for correction of these issues require patience, gradual and delicate exposure, as well as costly intervention and therapy sessions.
Breaking open the cocoon, Christopher finds himself in with force, is not the answer. Watching him become stronger, confident, independent and self sufficient, the more comfortable he becomes in his own skin, is truly comparable to that of watching life take flight from a cocoon, just as God intended it.
Fundraising for Christopher Meyer
Autism Speaks Bracelets for Christopher; consisting of dark grey, red, blue & green wooden beads – with a puzzle-piece, love, hope, faith or dream charm.
Autism is a lifelong, complex condition that occurs as a result of disordered brain growth, structure and development. It is believed to stem from a genetic predisposition triggered by environmental factors, and affects boys 4-5 times more than girls.
There are a vast number of ways that a person can manifest autism, and as a result, the condition is now more often referred to as Autism Spectrum Disorder, or “ASD”.
ASD is a developmental disability, and include all Autism disordersthat used to be diagnosed separately:
A lot of research is being done to try and find the cause of autism, but there is still no definite answer. There is consensus however that it`s NOT a psychological or emotional disorder, and it is not the parent’s fault that their child was born with autism.
It is also not the result of bad parenting – and children with ASD do NOT choose to misbehave. Misbehaviour are often reactions to the environment and are expressions of the difficulties people with ASD experience.
Fast Facts about ASD
Developmental disabilities such as ASD are brain-based, neurological conditions that have more to do with biology than with psychology
Not a single person with ASD is affected in the same way
ASD is usually diagnosed by the time a child is 3 years old
ASD is found in every country, every ethnic group, and every socio-economic class
Autism is diagnosed four times as often in boys than in girls
Children who are diagnosed with ASD need early intervention as soon as possible
Detecting Autism Early
The learning, thinking, and problem-solving abilities of people with ASD can range from gifted to severely impaired. While some may need a lot of help and intensive intervention, others may need less.
Parents should ask their child’s family doctor for a referral to a developmental Paediatrician for assessment if there are concerns with any of the following:
Little awareness of others.
Self-injurious behaviour, e.g. head banging, scratching or biting.
Imaginative play may be poor. E.g. cannot play with a wooden block as if it is a car.
Unusual habits such as rocking, hand flapping, spinning of objects etc.
The development of speech and language may be atypical, absent or delayed.
Indifference to, or dislike of being touched, held or cuddled.
Minimal reaction to verbal input and sometimes acts as though he/she is deaf.
Sense of touch, taste, sight, hearing and/or smell may be heightened or lowered.
Changes in routine or the environment may cause distress.
Sudden laughing or crying for no apparent reason
Pursues activities repetitively and cannot be influenced by suggestions of change.
Uneven gross/fine motor skills.
Inappropriate attachment to objects.
Abnormal sleeping patterns.
Displays extreme distress and/or tantrums for no apparent reason
Prefers to play alone.
Difficulty in interacting with others and little or no eye contact.
No real fear of dangers.
Possible Signs (taken from Autism Ontario – Durham Region)
No babbling by 11 months of age
No simple gestures by 12 months (e.g., waving bye-bye)
No single words by 16 months
No 2-word phrases by 24 months (noun + verb – e.g., “baby sleeping”)
No response when name is called, causing concern about hearing
Loss of any language or social skills at any age
Rarely makes eye contact when interacting with people
Does not play peek-a-boo
Doesn’t point to show things he/she is interested in
Rarely smiles socially
More interested in looking at objects than at people’s faces
Prefers to play alone
Doesn’t make attempts to get parent’s attention; doesn’t follow/look when someone is pointing at something
Seems to be “in his/her own world”
Odd or repetitive ways of moving fingers or hands
Oversensitive to certain textures, sounds or lights
Lack of interest in toys, or plays with them in an unusual way (e.g. lining up, spinning, opening/closing parts rather than using the toy as a whole)
Compulsions or rituals (has to perform activities in a special way or certain sequence; is prone to tantrums if rituals are interrupted)
Preoccupations with unusual interests, such as light switches, doors, fans, wheels
It’s that time of the year where the brave gets geared up and ready for the Annual 94.7 Cycle Challenge in Gauteng. This year, Arms of Mercy is a proud sponsor for the Brainchild Foundation to bring awareness to Autism and “special needs” children, and we invite YOU to participate in the challenge on our level. It`s really easy:
For EVERY 50 Joyful Autism Awareness Bracelets ordered by one person or company, we will donate R1000 to the Brainchild Foundation.
Please ask your friends, family, even companies to get involved. Together we can make a difference!
NB: Orders must be submitted before the race which will be on 18 November 2018.
The Awesome Autism Awareness Bracelets for Nickholis Kleinhans consists of gold, bright blue and red wooden beads with a bell, joy and dove charm, each combined with a puzzle charm. Three different bracelets at R30 each.
“No matter how puzzled life seems to be; always keep your joy, be a free spirit, and seize the magical moments.”
Autism is a lifelong, complex condition that occurs as a result of disordered brain growth, structure and development. It is believed to stem from a genetic predisposition triggered by environmental factors, and affects boys 4-5 times more than girls. Learn more about Autism Spectrum Disorder.
A quick visit to the GP for an ear infection turned into an eight year long nightmare when the doctor noticed that his head circumference is very big. Nickholis Kleinhans was seen by 18 different doctors and specialists, underwent 2 CT scans and 1 MRI scan, and blood tests for any possible syndrome or disease; but no one could exactly tell what is wrong with him. Doctor number 18 made the Autism diagnosis.
An Autisctic Child in a Non-Autistic World
Nickholis` parents couldn’t accept that their son will be disabled for the rest of his life so they kept on searching for answers.
They learned about the Family Hope Center in Philadelphia, who helped to give 15 000 children, over a time of 35 years, a future. After lots of research, they found that the Center can help give their son the normal life he deserves. The Family Hope Center comes to South-Africa only once a year. With God’s grace Nickholis has been on the Family Hope Center program for a few months and his life quality has changed dramatically as a result of this program over a short time.
▶ Nickholis needs to be seen by the Family Hope Center specialists once a year. These appointments costs $5600.
▶ His parents are in need of accommodation and transport as well for the time being of the appointments, since the Family Hope Center sees their patients in Gauteng, and they live Oudtshoorn, Western Cape.
▶ Nickholis has to be on a very strict, expensive diet for this program to work at its full potential.
▶ He needs Cranio Sacral Fascia therapy which is in another town, away from where they live.
▶ They are also in need of a Mild Hyperbaric Oxygen chamber – this therapy is essential to Nickholis’ healing. The closest Mild Hyperbaric facility is about 400km away and a session is very expensive.
▶ Furthermore, Nickholis needs to take daily supplements as he uses high dosages of medication to suppress the symptoms.
Fundraising for Nickholis Kleinhans
“Awesome” Autism Awareness Bracelets for Nickholis; consisting of gold, bright blue, and red wooden beads – with a Bell, Joy or Dove charm – each combined with a Puzzle piece.