“Lyza Kennedy was 4 weeks old when she received her first operation as she could not feed on me. They gave her a Foley catheter in her tummy for me to feed her but she cried it out the next day and went back to NICU and theatre where she received a Mickey button. She has had 12 operations up to date. She was 1yr 7 months when they had the genetic assessment and then said it’s Moebius Syndrome.”
Moebius Syndrome is a rare neurological condition that is caused by the absence or underdevelopment of the 6th and 7th cranial nerves, which control eye movement and facial expression. Other cranial nerves may also be affected. There is no cure for Moebius syndrome, but proper care and treatment give many individuals a normal life expectancy. Learn more about Moebius Syndrome
“Lyza is currently on a ResMed machine as she some days forget to breath and loses consciousness. The ResMed machine is a loan product from Red Cross hospital where she received the machine and a back up battery.
She is often seeing a doctor as she is prone to infections.”
By supporting the AOM bracelet initiative you are helping to raise funds to contribute to Lyza`s ongoing medical expenses. Together we can change her world, one bracelet at a time!