“Hi there; my name is Louis Taylor; and this is my story:
I came into this world on 21 November 2014 by Caesarean section at St Georges Hospital in Port Elizabeth. Mom and Dad was elated to meet me. I gave them a huge fright when mere hour after my delivery, I was transferred to the NICU for observation and tests because my doctor was concerned that the tremors, I exhibited, could be seizures. A lot of testing and scanning did not produce any satisfactory answers.
The testing and prodding went on for years amid speculation on Angelman Syndrome, Coffin Siris syndrome, and signs of Autism. The eventual conclusion was that I have a rare, yet unnamed break in my DNA; 6q25.3q26(162291555) x1; to be exact. My folks decided not to pursue further testing that would merely satisfy academic curiosity; but instead focus on helping me reach my full potential.
Together we faced several difficulties starting with the 2 hernias I was born with of which one reoccurred. As a baby I suffered from, and is still prone to severe constipation, I also acquired a very unpleasant reflux reaction to food and drink; to the extent that I was hospitalized for Colonoscopy, Gastroscopy and Barium Swallow; challenging my parents to find foods and drinks suitable for me. I require chronic medication because I am easily excited, prone to Epileptic seizures, and struggle to sleep properly at night.
I am now 7 years old. I have severe developmental delays, I am nonverbal, I still wear diapers, use a sippy cup. need lots of special things like a Special needs School environment, Speech therapy, Occupational therapy, Physiotherapy and Pool therapy; which is why our very dear friend Monique Kitching recommended us to Arms of Mercy NPC for financial assistance.
Thank you for reading my story.”
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