Leonieke Erasmus was born prematurely on 34 weeks but was healthy and at that stage they did not suspect anything to be wrong with her. When she was about 14 months old she started regressing and lost the ability to sit, lost all hand function, and the few words that she had at that age.
After numerous tests and weeks in hospital she was diagnosed with RETT Syndrome. RETT Syndrome traps her in her body as she has no way of communicating. She can still not sit by herself, walk or even use her hands purposefully. This is the reason she desperately needed a proper positioning wheelchair, which has since been donated to her from the UK.
She is currently on Gems but they only pay small portions for everything she needs. Her mom and dad are in administrative positions in the police service with 2 more children to take care of.
Leonieke has already been diagnosed with scoliosis and osteoporosis as well, but there is no way they can afford everything she needs, especially a proper chair. She also needs a bath chair as her mom struggles to bath her and to wash her hair.
Please open your heart and support our fundraising initiative so we can make a real positive difference in this little girl`s life. Together we can change her world, one bracelet at a time!
Alternatively, please consider a donation; any and all donations welcome. REF: Leonieke Erasmus.
Fundraising for Leonieke Erasmus
Never Hide Your Wings Bracelets
Never Hide Your Wings Bracelets for Leonieke; consisting of light purple wooden beads with crystal, silver and diamante fillers.
Charm options: Diamanté Butterfly / Double-Awareness Ribbon / Little Bird.
To place an order, contact the agent in your area or shop online.