“Dihandré was born 4 November 2020, a very healthy boy weighing a full 3.2 kg and 52cm. At birth I noticed something strange about Dihandré; his head was weirdly shaped, not round-shaped like a normal baby’s head. His head also had some kind of riff like his skull bones grew over each other, so I asked the nurses at the Hospital and they said that it is normal and it will be the way it is supposed to be when he turns 6 weeks. So I left it there.
On 11 February 2021 we took Dihandré to the Pediatrician in Potchefstroom, who immediately said that it is not normal and we should go for an MRI scan. He was booked for an MRI scan on 18 February. Praying the whole time that the results will come back clean and that nothing is wrong with the little one. Nervousness ate me and my family for the results. We waited patiently. The results came back: Craniosynostosis-scaphocephaly.
Craniosynostosis-scaphocephaly is when a baby’s head fuse in the mother`s womb, meaning there is no fontanel. His brain can’t grow and this means that he can get fog on his brain which can cause brain damage, blindness and worst case scenario death.
Dihandré had surgery where they cut out a part of his skull to make space for his brain to grow and is doing well. He has to wear a helmet for 6 months – 1 year to protect him from bumping his head.”
Follow his Facebook page for live updates on his progress and journey.
By supporting our fundraiser for Dihandré you can make a positive difference in his life – all proceeds from the “Sweetest Love” bracelets are donated towards his ongoing medical care and expenses. Together we CAN change the world, and help a child in need!
Alternatively, please consider a donation; any and all donations welcome. REF: Dihandré van Staden.