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Fundraising for Kihané Stapelberg – Intractable Epilepsy

Kihané Stapelberg

Kihané`s story:

Kihané Stapelberg is a beautiful, busy and sweet 5 year old girl from Hartebeespoort in the North West Province. She had her first seizure on the 27th of August 2019, and the following year was filled with many obstacles that she had to overcome.

She has intractable epilepsy, nocturnal frontal lobe epilepsy, and temporal lobe epilepsy. Intractable epilepsy is when seizures can’t be controlled by medicines, and is not easily managed or relieved. Kihané does not respond to medication as she needs to, and on top of that, all the current medications are causing issues with her stomach as well so she needs medication to sort out all of the problems and side-effects.

Her epilepsy has caused damage and she needs to go for intense speech therapy and occupational therapy in 2021. She also needs to get rescue IV medication almost once a week to control her seizures. It is a daily battle and a big ongoing financial expense. Please open your heart and support our fundraising initiative, all proceeds are donated towards Kihané`s ongoing medical care and expenses. Together we can change the world, one bracelet at a time!

Fundraising for Kihané Stapelberg

Shop Online

The “Dare to Dream” Bracelets for Kihané consist of purple wooden beads with crystals, silver and diamante fillers. Charm options: Diamante Cross / Dream / Awareness Ribbon.

To place an order, contact the agent in your area or shop online.

Alternatively, please consider a donation; any and all donations welcome. Please remember to use “Kihané Stapelberg” as reference.

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