Fundraising for Miané du Plooy – Dandy Walker Variant Syndrome

Miané du Plooy

Miané`s story:

After struggling for 5 years to fall pregnant, a lot of crying, praying (and hormonal treatment), Miané du Plooy was born on the 7th of January 2016.

All was well until the 24th week of pregnancy when the Gynaecologist discovered that the left ventrical of her brain was slightly enlarged. At the Fetal Assessment Centre, the professor recommended that she be aborted. He said Miané would live for 18 months and that she would be in a wheelchair if she would survive, and that she would most likely be a “vegetable”.

An MRI of her brain was done during pregnancy where they found her Apgar count at 9!!

Her parents desperately opted for more opinions. Another Dr. said Miané has mild Dandy Walker Variant Syndrome and another said she would just reach her milestones later, as her cerebellum was 2mm smaller than expected.

She was in NNICU for 11 days as the Paedeatrician said she was a lazy breather. There too a MRI was done as well as an EEG, and the Neurologist was surprised by the positive outcome. Miané was unable to suck, and after many interventions and therapists, she had to be fed with a syringe.

Miané is unable to blink and struggled with dry eyes. She had her first eye operation at 4 months due to ulcers which formed on both her eyes; and had to have eye-drops placed into both eyes every 2 hours – 24/7. She`s now nearly 2 and a half years old and is still unable to sit, keep her head up or place weight on her feet, though she is improving very well with the assistance of various therapists.

She was taken for embryonic stem cell therapy and her muscle tone as well as her overall health has improved since June 2017. Sadly, little Miané was declared blind.

She had her first corneal transplant on 9 February 2018 and the squint of her eyes were repaired in a 3 and a half hour operation. We are all hoping for her to have the other corneal transplant later this year.

Miané still requires a lot of prayers, therapy and treatment. For live updates visit the Help Baby Miane Facebook Page.

Fundraising for Miané du Plooy

Armoured by Love Bracelets inspired by Miané; consisting of lilac wooden beads – with a Love, Shield with Cross, or Sword charm. To place an ordercontact the agent in your area or shop online. Alternatively, please consider a donation. Any and all donations welcome.

“When you go through life protected by the Armour of God, you are Loved beyond measure, because God Is Love.”

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