Fundraising for Conor van Baalen – Focal Segmental Glomerular Sclerosis

Conor van Baalen

Conor`s story – 05/06/2019:

Conor van Baalen is 5 years old. He started getting sick when he was 22 months old, and at 24 months a kidney biopsy was done which showed that he had Focal Segmental Glomerular Sclerosis (FSGS).

FSGS is a rare kidney disease, which is not easy to treat, and each patient reacts differently to the treatments. FSGS is not a single disease, but a pattern of kidney damage and one of the most common causes of nephrotic syndrome, especially in children and adolescents.

His Nephrologist tried several different treatments and by the end of 2017, they confirmed Conor has an FSGS type that is Steroid Resistant. The only way forward is a kidney transplant. The kidney transplant is expensive, but the donor account also needs to be taken care of, together with the medicine and post operation care. Follow Hope for Conor on Facebook for live updates on his journey.

Please help us to raise funds for Conor and his ongoing medical expenses. Together we can change his world, one bracelet at a time.

Update 26/02/2020 – Kidney Transplant: “Today`s news are great! Danie still in High Care but already got up out of bed this morning and catheter removed. Still challenged with a lot of pain, as can be expected, but body functions normal. Conor still in Transplant ICU and the ventilator removed. Although under strong pain medication he can communicate (a bit). On his mom’s answer that he cannot get food, he said: “I’m starving”. Conor’s creatine has come down to 70 in 24hrs!! This has been a constant 600 to 655 for the last years (normal range is 60). He passed urine which show normal function. Blood pressure still a bit high but under control. Such wonderful news! Thank you everyone for your support. We feel so blessed!”

Fundraising for Conor van Baalen

Hope for Conor Bracelets; consisting of grey & mint green wooden beads with crystals – and a Hope-Awareness ribbon, Moon with Star, or Love charm. To place an ordercontact the agent in your area or shop online. Alternatively, please consider a donation towards the cause. Any and all donations welcome.

“You are my moon and my stars and I will love you forever and a day.”

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