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Fundraising for Lenè Grobler – Prader-Willi Syndrome, ADHD, Intellectual Developmental Delays

Lenè Grobler

Lenè`s story:

“Lenè was born a bit early at 36.5 weeks but she was a normal healthy baby as far as the eye could see. When she turned 1 years old I started to worry because she was far behind her cousin who was 2 months older than her. We stayed in a small town with no therapists and doctors, and my father said we must be patient with her as she might just be a bit slow.

When she turned 19 months old she started to lift herself and at 21 months she was walking, but not that well. We moved back to Klerksdorp when she was about 2.5 years old. I was still worried at this stage as she was still on nappies and did not talk. We took her to the Potch University – Care2Kids program to get her assessed and see if there is maybe something wrong. After this I finally got a school that had the time to care for her as the special needs school had her for 1 week and asked us to rather take her out as there is something seriously wrong with her.

In February 2022 she was assessed by Dr J.C.K Strauss who found her to have an intellectual disability as well as a serious communication delay. We started looking around for a Paediatric Neurologist to assess Lenè as we need assistance with treatment and advise on the way forward. In May 2022 she went to see Dr C Erasmus in Pretoria who diagnosed her with Prader Willi Syndrome and ADHD among a list of things. She has a wide range of symptoms and we are eager to find answers so that we can help her have a better quality life.

Lenè turns 5 years old in February 2023. She is currently on 2ml Risperdal a day. This alone is R1900.00 a month. The day to day from our medical covers it but this will soon be depleted. Thereafter, all medicine must be paid in cash. School costs R1850.00 a month and then nappies work out to R165.00 a week. I cannot look for better employment as I need to take off a lot, when she gets sick or is too difficult, so I only get commission on cases completed… no work, no pay.”

Please open your heart to Lenè and support our fundraiser for this family in need – all proceeds from the “Uplifted in Faith” bracelets are donated towards her ongoing medical care and expenses. Together we CAN make a difference!

Alternatively, please consider making a donation. Any and all donations welcome. REF: Lenè Grobler.

Fundraising for Lenè Grobler

Uplifted in Faith Bracelets

The “Uplifted in Faith Bracelets” consist of grey and white wooden beads with crystal, silver and diamante fillers.

Charm options:
Heart / Faith / Butterfly.

To place an order, contact the agent in your area or shop online.

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Fundraising for Novah de Wet – Spinal Muscular Atrophy (SMA Type 1)

Nova de Wet

Novah`s story:

“Novah de Wet is a baby girl from Aggeneys in the Northern Cape who was diagnosed with Spinal Muscular Atrophy (SMA Type 1) and this gives her a life expectancy of 1-2 years if she doesn’t get gene therapy which is only available in the USA.

SMA Type 1 is a rare genetic disease that destroys important motor neurons for movement and muscle development and is responsible for most infant fatalities.

There is a miracle drug in the US called Zolgensma, and it costs approximately R35 Million. We need to raise the funds as soon as possible before irreversible damage is done so we are in a race against time to save her life!

She is the cutest baby ever and she has an older sister who is 8 years old, Hayleigh, who just wants to play with her but Novah can`t due to her limited movements.

My medical aid and government has failed us so we are alone in this race against time to save my baby girl. I know we as a country can come together to save my baby’s life.”

Please open your heart and support our fundraiser for this precious little baby – all proceeds from the “Hope for Novah” bracelets are donated towards her ongoing medical care and expenses. Together we CAN make a difference and help a child in need!

Alternatively, please consider making a donation. Any and all donations welcome. REF: Novah de Wet.

Join the Baby Novah Facebook Group for live updates on her journey.

Fundraising for Novah de Wet

Hope for Novah Bracelets

The “Hope for Novah Bracelets” for consist of beige and maroon wooden beads with silver and diamante fillers.

Charm options:
Faith / Hope-Awareness Ribbon / Angel.

Colour options:
1. Maroon and Beige mix.
2. Maroon with 2 Beige beads.
3. Beige with 6 Maroon beads.

To place an order, contact the agent in your area or shop online.

Hope for Novah Bracelets

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Fundraising for Amoré De Wet – 18Q Deletion Syndrome

Amoré de Wet

Amoré`s story:

“Amoré is a tenacious 7-year-old with 18Q Deletion Syndrome. She was diagnosed at six weeks old. 18Q Deletion Syndrome is a rare chromosomal disorder affecting the 18th chromosome. One in 40,000 newborns is affected by this chromosome disorder. There is no cure for her condition.

Symptoms range largely from case to case. Some features include low muscle tone, hearing loss, sight problems, heart defects, kidney problems and features of autism.

Amoré had open heart surgery at 6 months old and sees her cardiologist every 2nd year. She has been diagnosed with Nystagmus and Strabismus and wears glasses to help with these conditions.

There is currently no PMB for her condition and therefore all of her specialist consultations and therapy i.e. Occupational therapy, Speech therapy sessions are paid from their medical aid savings account which is generally exhausted within the first three months of the year. Most of her specialists are also not contracted in with the medical aid and therefore they need to pay cash for their visits. She is non-verbal but they pray for an augmentative and alternative communication device, which the medical aid does not pay for.”

By supporting our fundraiser for Amoré you can make a positive difference in her life – all proceeds from the “Never Give Up” bracelets are donated towards her ongoing medical care and expenses. Together we CAN change the world and help a child in need!

Alternatively, please consider making a donation. Any and all donations welcome. REF: Amoré De Wet.

Fundraising for Amoré De Wet

Never Give Up Bracelets

The Never Give Up Bracelets” for Amoré consist of white, blue and silver wooden beads with silver and diamante fillers.

Charm options:
Angel / Cross / Hope-Awareness Ribbon.

To place an order, contact the agent in your area or shop online.

Never Give Up Bracelets © Arms of Mercy NPC
Never Give Up Bracelets

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Fundraising for Ronan Benson – Cerebral Palsy

Ronan Benson

Ronan`s story:

“Ronan Benson was diagnosed with cerebral palsy a while back. At birth he had a cord prolapse and swallowed amniotic fluid, it’s a miracle that our little boy is here. From there he was in and out of the hospital but more in than out. He is now 9 months old and was roughly a month and a half at home between all the hospital admissions. He can’t swallow or suck and because he can not drink normally, he has a PEG in his stomach and we feed him like that.

Because of cerebral palsy, Ronan`s muscles are very stiff and his joints are bent all the time. To improve, Ronan needs Speech therapy to help him swallow and suck, Physiotherapy to get his muscles relaxed and in shape, and Occupational therapy to improve his reflex and senses. We also do not have medical aid and to send Ronan for all the things he needs is going to cost a lot of money and it’s just out of our reach financially.”

By supporting our fundraiser for Ronan you can make a positive difference in his life – all proceeds from the “Greatest Love” bracelets are donated towards his ongoing medical care and expenses. Together we CAN change the world and help a child in need!

Alternatively, please consider a donation; any and all donations welcome. REF: Ronan Benson.

Follow the Arms of Mercy NPC Facebook Page for live updates on his journey and progress.

Fundraising for Ronan Benson

Greatest Love Bracelets

The “Greatest Love” bracelets for Ronan consist of light blue and turquoise wooden beads with crystal, silver and diamante fillers.

Charm Options: Hope-Awareness Ribbon / Cross.

To place an order, contact the agent in your area or shop online.

Greatest Love Bracelets © Arms of Mercy NPC
Greatest Love Bracelets

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Fundraising for Samantha Hayes – Diabetes, Heart Problems, Bilateral Amputee

Samantha Hayes

Samantha`s story:

Samantha Hayes was an independent mother who was working at Spar when her diabetes turned for the worse. A minor scar on her foot that did not want to heal made her visit her GP; since then she has been facing tremendous challenges.

They found that she had heart problems and underwent a heart bypass. From there on, she lost both her legs. She was recently in hospital as her second leg had to be amputated even further due to a severe infection. Samantha had three amputations in less than a year. She could not receive anesthesia with the first two amputations due to her heart condition and underwent two amputations with only an epidural. She heard each bit of noise while they amputated her first leg and even saw something that would give the toughest man sleepless nights.

Samantha was always strong, but life broke her. She needs medical assistance, and her entire home must be modified to help her get along without legs. Her job is also in severe jeopardy, and the future does not look good for her. She has medical aid, but a tremendous amount of co-payments. She needs physiotherapy, pain management, wound care, and in the future, a pair of prosthetic legs in order for her to carry on with her life.

By supporting our fundraiser for Samantha you can be directly involved in making a positive difference in her life. All proceeds from the “Faith over Fear” bracelets are donated towards her ongoing medical care and expenses. Together we CAN change the world!

Alternatively, please consider a donation; any and all donations welcome. REF: Samantha Hayes.

Fundraising for Samantha Hayes

Faith over Fear Bracelets

The “Faith over Fear” bracelets for Samantha consist of wooden beads with silver and diamante fillers.

Bracelet Options:
1. Navy & Pink with Dagger charm.
2. Black & Pink with Lion charm.
3. Navy, Black & Pink mix with Bird charm.

To place an order, contact the agent in your area or shop online.

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Fundraising for Kian Ludick – Nephroblastoma, Wilms Tumor

Kian Ludick

Kian`s story:

“Kian had been having a lot of ear infections in the beginning of 2021. Our GP referred us to the nose, ear, and throat Specialist as well as a speech therapist, because he has not begun to speak and was nearing the age of 2 and they suspected that he has autism. On the date of his appointment he did not give his co-operation with the speech therapist and they decided to make arrangements with a Pediatrician to put him under local anesthetics while they conduct the ear test, and because he was not well, the pediatrician decided to do a full exam also while he was under. He discovered something hard on the left side of his tummy. We were sent for a sonar where they discovered the enlarged kidney. They did a CT scan where they saw the abnormal tissue on both kidneys.

Kian was diagnosed with Nephroblastoma on both kidneys, 26 March 2021, as well as an enlarged left kidney. He has been having monthly MRI scans and blood work in Johannesburg where he is treated by Prof Janet Poole. On the 12th of December 2021, he had his 3rd scan and they discovered the Wilms tumor that developed on the left kidney. He started with his weekly pre-operative chemo on 31 January 2021 in Kimberley, which he gets once a week for 6 weeks. On week 5 and 6 they will do a scan and reassess, he will also be having maintenance chemo after surgery.

The chemo has affected him worse than what we expected. He was admitted 4 days after his 1st session, and has been put on a double dose of blood pressure medication. He had moisture on his lungs when his oxygen levels dropped to 65 and had to be put on oxygen. He had an allergic reaction to morphine, and had a seizure because of nausea medication. He also has a feeding tube. On the 17th of February 2022 he developed a fever and was admitted where they did blood work and discovered he had 2 viruses and his blood counts were extremely low.

He finished his last round of chemo on 21 March 2022. He was admitted and had a blood transfusion and platelets because it was too low. He also had an MRI but we have not received his report or any update when and if they will be operating. Kian is seeing a dietician as well as a speech- and occupational therapist because of signs of autism.”

By supporting our fundraiser for Kian you can be directly involved in making a positive difference in his life. All proceeds from the “Love and Faith” bracelets are donated towards his ongoing medical care and expenses. Together we CAN change the world, and help a child in need!

Alternatively, please consider a donation; any and all donations welcome. REF: Kian Ludick.

Fundraising for Kian Ludick

Love and Faith Bracelets

The Love and Faith” bracelets for Kian consist of wooden beads with crystal, silver and diamante fillers.

Colour Options:
1. white & blue
2. grey and blue
3. white, grey, blue mix

Charm Options:
1. faith & cross
2. love you heart
3. believe and hope

To place an order, contact the agent in your area or shop online.

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Fundraising for Lirie van der Merwe – Paraplegia, Respiratory inability, Osteopenia, Epilepsy

Lirie van der Merwe

Lirie`s story:

Lirie van der Merwe is 10 months old and has paraplegia from the chest-line down, respiratory inability, multi-lobar lung collapse, osteopenia, and epilepsy.

Lirie was born at 32 weeks. After 4 weeks in the NICU she suffered a neck injury that led to paraplegia from the chest-line down. Due to this, her diaphragm is paralyzed and she is unable to breathe on her own and is on a home ventilator to breathe for her. She also suffered from a femur break due to her bones being so brittle.

Lirie is currently at home but her home-care is R28 000.00 per month. She gets her feeds through a feeding tube and she is suctioned regularly. She also has a cough assist to get her secretions loose and keep her lungs from collapsing. She has a vigorous daily medical and mediation routine that needs to be followed. The Medical aid is depleted, and Lirie needs her physio and speech therapy sessions.

By supporting our fundraising efforts you can be directly involved in making a positive difference in Lirie`s life. All proceeds from the “Shine Your Light” bracelets are donated towards her ongoing medical care and expenses. Together we CAN change the world, and help a child in need!

Alternatively, please consider a donation; any and all donations welcome. REF: Lirie van der Merwe.

Fundraising for Lirie van der Merwe

Shine Your Light Bracelets © Arms of Mercy NPC

Shine Your Light Bracelets

The Shine Your Light” bracelets for Lirie consist of pink wooden beads with crystal, silver and diamante fillers.

Charm Options: Diamante Cross / Diamante Crown / Diamante Bird.

To place an order, contact the agent in your area or shop online.

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Fundraising for Amanda Povall – Spinal Atrophy & Spinal Paraplegia

Amanda Povall

Amanda`s story:

Amanda Povall (42yr) has Spinal Atrophy and Spinal Paraplegia. She has no function in her lower limbs and is experiencing a gradual loss of function in her upper limbs and hands. She has been wheelchair bound for 10 years, and about 3 years ago, her upper limbs started to show signs of degradation. Her bladder control has stopped and she is required to use adult diapers, she also has neuropathic pain in her feet.

There is only one salary income in the household with 3 children. Amanda is not on a medical aid and all medical expenses are carried by her husband. She does receive a SASSA grant of R1890.00 per month.

Her Physiotherapy and Occupational Therapy is done by the local state hospital. The hospital is not able to supply all the medical supplies meaning the cost is covered by her husband. There is not always enough funds left after other expenses are paid, which results in either no medicine, or a reduced amount of medicine is purchased. This then aggravates her symptoms.

Any form of assistance will be greatly received and any financial assistance is paid directly into the Pharmacy’s account. She requires the following medical Supplies:
1. At least 5 to 6 packets adult diapers (14 to a packet) per month costing between R950.00 – R1140.00 per month.
2. Baclofen x 5mg twice a day, 60 a month costing between R2000.00 – R2500.00 per month.
3. Lyrica x 25mg twice a day, 60 a month costing between R800.00 – R900.00 per month.
4. Rivotril x 0.25mg once a day, 30 a month costing between R850.00 – R950.00 per month.
5. Tegretol syrup x 150ml per month costing R350.00 – R400.00 per month.
6. Tripoline 25mg once a day, 30 per month costing R50.00 – R60.00 per month.

By supporting our fundraising efforts you can be directly involved in making a positive difference in Amanda`s life. All proceeds from the “Power of Love” bracelets are donated towards her ongoing medical care and expenses. Together we CAN change the world!

Alternatively, please consider a donation; any and all donations welcome. REF: Amanda Povall.

Fundraising for Amanda Povall

Power of Love Bracelets © Arms of Mercy NPC

Power of Love Bracelets

The Power of Love” bracelets for Amanda consist of beige, coffee, and mint wooden beads with silver and diamante fillers.

Charm Options: Bird / Anchor / Awareness Ribbon.

To place an order, contact the agent in your area or shop online.

Power of Love Bracelets © Arms of Mercy NPC

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Fundraising for Melissa Daniels – Liver Cancer and Lung Cancer

Melissa Daniels

Melissa`s story:

Melissa Daniels was first diagnosed in 2016, at the age of 24, with Stage III colorectal cancer whereafter her colon and rectum was removed. The Doctor made a pouch with her small intestine as a substitute. After her first chemo session, Melissa’s immune system gave in and she contracted; the Dr’s words were; “medically there is nothing we can do for her”.  However, 6 months later, through faith and prayer, Melissa had recovered.

In 2019 the symptoms returned and she went to a different hospital to get a second opinion. The results… even though the previous Dr did all the preparations to remove Melissa’s rectum, he forgot to remove it. She was diagnosed with rectal cancer. Subsequently, the whole pouch and “forgotten” rectum was removed and she was given an external stoma bag.

Melissa is facing her 3rd diagnosis as the cancer had spread to her lungs and liver in 2021. Doctors are saying that her treatment options are limited, and should her treatment fail, her life expectancy is 5 years max.

Melissa is also mother to an 8 year old son, and they need all our support to get through this; all our prayers, encouragement and urgent funding. She is on Bonitas medical aid (highest plan) and pays almost R11K a month, but they are refusing to pay some of her treatment items due to scheme exclusions. She needs Avastin which is almost R36 000 per treatment, and she needs 8 treatments.

By supporting our fundraising efforts you can be directly involved in making a positive difference in her life! All proceeds from the “Joyful Heart” bracelets are donated towards Melissa`s ongoing medical care and expenses. Together we CAN change the world… one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Melissa Daniels.

Join Raise the Bar for Melissa on Facebook for live updates on her journey.

Fundraising for Melissa Daniels

Joyful Heart Bracelets

The Joyful Heart” bracelets for Melissa consist of white and purple wooden beads with silver and diamante fillers.

Options:
1. White with Heart charm.
2. White & Purple mix with Joy & Feather charms.
3. White & Purple mix with Daisy charm.

To place an order, contact the agent in your area or shop online.

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Fundraising for Lisa Le Roux – Spastic Diplegic Cerebral Palsy

Lisa le Roux

Lisa`s story:

“Lisa Le Roux is 6 years old and has Spastic Diplegic Cerebral Palsy. She has a great spirit with a will to do everything, but she can’t walk. She started school in January at Elizabeth Conradie School Kimberley (Elcon) and she needs a new wheelchair.

At this stage she has a Shonaquip 8″ Sully wheelchair but needs a new one as she has outgrown it. This wheelchair works best for her and she really needs it for school as it’s nice and small with a detachable table, but the cost of a new Shonaquip 10″ or 12″ wheelchair is ±R15 000. Lisa is fun-loving and one big sweetheart that draws in anyone that just looks at her.”

By supporting our fundraising efforts you can be directly involved in making a positive difference in her life! All proceeds from the “Butterfly Wishes” bracelets are donated towards her ongoing medical care and expenses. Together we can change the world… one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Lisa le Roux.

Fundraising for Lisa Le Roux

Butterfly Wishes Bracelets © Arms of Mercy NPC

Butterfly Wishes Bracelets

The Butterfly Wishes” bracelets for Lisa consist of green and cream wooden beads with silver and diamante fillers.

Charm options: Diamante Butterfly / Diamante Crown / Angel.

To place an order, contact the agent in your area or shop online.

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Fundraising for Sheryhar Saleem – Spastic Quadriplegic Cerebral Palsy

Sheryhar Saleem

Sheryhar`s story:

Sheryhar is a 6 year old boy from Queenstown in the Eastern Cape who has Spastic Quadriplegic Cerebral Palsy with mild scoliosis and global development delays.

He needs a lot of care and as such his mom is 24/7 with him. She is an unemployed mother, and Sheryhar’s father owns a small cell phone counter where he rents the space. They unfortunately are not well-off and sometimes need assistance with Sheryhar’s expenses, especially in terms of buying nappies, medication, food and other living expenses. He also has to be taken to East London for check-ups on his ears on a regular basis. Sheryhar used to attend private therapy, but since the pandemic, and due to his high risk status, that has been put on hold. A little help will really do this family so much good.

Sheryhar has to regularly see a physiotherapist, occupational therapist, speech therapist and audiologist. He has recently received hearing aids as he was unable to hear from both ears. He receives medication every month and visits his doctor once a year.

Please open your heart and support our fundraising efforts for Sheryhar – all proceeds from the “Gift from Above” bracelets are donated towards his ongoing medical care and expenses. Together we CAN make a positive difference and help a child in need. Together we can change the world… one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Sheryhar Saleem.

Fundraising for Sheryhar Saleem

Gift from Above Bracelets © Arms of Mercy NPC

Gift from Above Bracelets

The “Gift from Above ” bracelets for Sheryhar consist of blue and silver wooden beads with silver and diamante fillers.

Charm options: Snowflake / Tree of Life / Hope-Awareness Ribbon.

To place an order, contact the agent in your area or shop online.

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Fundraising for Miliah Prinsloo – Rare Genetic Disorder

Miliah Prinsloo

Miliah`s story:

Miliah is just over 3 years old and has an incredibly rare genetic disorder, 16q11.2q21 duplication – which was discovered only recently after years of tests and doctors’ visits. She struggles through global developmental delay, speech impairment, seizures, a heart defect, self-harming issues, obesity and other ailments.

Miliah has already gone through:

3 MRI’s; ECG Tests; Ph7 Test; Tube feedings; Biopsy; 2 Berium Swallows; 2 Metabolic Tests; 2 Geneticist consultation;
Physio since 8 months and needs to continue; Speech therapist, she had every two weeks; Grommets put in; CT Scan;
Xrays; Sonars; Scopes done; Occupational therapy; Correctional shoes (for a year – which hasn’t helped, hence why she will now need to undergo surgery).

Miliah was also diagnosed with chronic sinusitis, which means she’s sick most of the time, with chronic reflux and dysmotility.

There is not much information on her chromosome genetic disorder as it is so rare, which causes a lot of uncertainty, even for some Drs.

Miliah needs ongoing therapy (speech, OT, PT), frequent neurological check-ups, testing and medications, Specialists for her stomach and immune system, as well as many others.

She had surgery on the 18th of January 2022 in order to correct her metatarsus adductus to help her jump, run and walk normally. The bones had to be broken and placed correctly, and Miliah is due back in theatre in 3 weeks. Recovery will take longer than expected (around 6 months to a year) and she won’t be able to go to school for the next 5 to 6 months. During these first 3 weeks Miliah will not be able to walk at all and her legs need to stay elevated, either at home in bed, or on the couch, or in a wheelchair when walking around the complex or anything.

Her mommy works part-time to be there for all her go-to therapies, hospital check-ups and specialist visits, but she had to stop all forms of therapy due to financial constraints.

Please open your heart and support our fundraising efforts for Miliah – all proceeds from the “Incredibly Precious” bracelets are donated towards her ongoing medical care and expenses. Together we CAN make a positive difference and help a child in need. Together we can change the world… one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Miliah Prinsloo.

Follow her Facebook Page – Helping Miliah – for live updates on her journey.

Fundraising for Miliah Prinsloo

Incredibly Precious Bracelets

The Incredibly Precious Bracelets” for Miliah consist of turquoise wooden beads with silver and diamante fillers.

Charm options: Dragonfly / Feather / Cross.

To place an order, contact the agent in your area or shop online.

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Fundraising for Amoré van der Westhuizen – Type 1 Diabetes

Amoré van der Westhuizen

Amoré`s story:

Amoré was diagnosed with Type 1 Diabetes – a condition in which your immune system destroys insulin-making cells in your pancreas, when she was one year old. She has had ‘seizures’ 3 times in the past 2 years where mom had to rush her to the hospital.

Her insulin levels are still very unstable, and she is currently using Actrapid and Protaphane Insulin which she has to inject 5 times a day. The units depend on how high her sugar level is. Amoré has a diet plan that she must strictly follow, but due to financial circumstances it is impossible for her mom who is a single-parent. Her father passed away when she was 3 years old and there is only mom’s salary to cover all their monthly expenses. Her insulin levels will not get under control if she does not follow a strict diabetic diet developed by a dietitian.

Following a healthy lifestyle to prevent heart disease and control blood sugar are the best things people with type 1 diabetes can do to live a long and healthy life. Please open your heart and support our fundraising efforts for Amoré – all proceeds from the “Rooted in Love” bracelets are donated towards her dietary needs and her ongoing medical care and expenses. Together we CAN make a positive difference and help a child in need!

Alternatively, please consider a donation; any and all donations welcome. REF: Amoré van der Westhuizen.

Follow our Facebook Page for live updates on her journey.

Fundraising for Amoré van der Westhuizen

Rooted in Love Bracelets © Arms of Mercy NPC

Rooted in Love Bracelets

The Rooted in Love Bracelets” for Amoré consist of silver and blue wooden beads with silver and diamante fillers.

Charm options: Heart / Tree of Life / Cross.

To place an order, contact the agent in your area or shop online.