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Fundraising for Mihleeya de Vaal – Periventricular Leukomalacia and Epilepsy

Mihleeya de Vaal

Mihleeya`s story:

“Our precious girl was born at 29 weeks with a weight of 1.24kg. She had bleeding on her brain, a hole in her heart and had blood transfusions quite a few times like most prem babies. Mihleeya also had Laryngomalacia, for which she underwent surgery on the 15th of April 2021.

Mihleeya was admitted several times due to her allergy to Cow’s milk protein – her tummy started to bleed because of it. She was in hospital for bronchitis, where she then also got Rota. On August the 7th, she was already in the hospital for it – when she had her first seizure. We weren`t happy with response from the Pediatrician at the time, and took her to a new pediatrician the following week. Mihleeya had a sonar of her brain done, and they said that she had “hydrocephalus” – water on the brain.

After a week of waiting for just a referral, we made the decision to have her treated in JHB – by this time the seizures were so severe, she had around 30 a day. In JHB, they did a CT scan that showed the fluid is around the brain, and not inside the ventricles as it was initially shown by the sonar. The service in JHB was fantastic, but unfortunately Mihleeya contracted Covid, and she had to be discharged with medication to stop her seizures – unfortunately she still got seizures, but less.

In the meantime, we moved to Amanzimtoti, KZN, and started with our hopeful referrals and wild history, with a new Pediatrician. She is fantastic. God sent her to us. She immediately started treating Mihleeya and ordered an MRI, repeat video EEG as well as X-Rays and CT scans of her lungs, lots of blood tests as well as urine to test for genetic disorders. And this is where we are now.

Mihleeya’s MRI shows that she has Periventricular Leukomalacia (PVL).
PVL is when the inner part of the brain gets hurt or dies. Mihleeya has “severe white matter damage to the brain.”

The white matter in the brain is the part that sends information between the spinal cord and the nerve endings and from one part of the brain to the other parts in the brain. In short: The brain is like a tree:
The stem (the spinal cord); The branches (white matter); The leaves (gray matter).

Information should be sent from the stem, through the branches, to the leaves to do basic things like sitting, crawling, walking, talking etc. Unfortunately, Mihleeya’s branches were so badly damaged that the Drs are not sure if she will ever be able to speak – she will be able to understand, because her thinking part (gray matter / leaves) is untouched, but she will not be able to articulate it.

Her brain’s white matter is dead in so many parts, that her brain is smaller in her skull. Where it has to press against the skull, there is currently liquid all around due to the white matter that has died. This is why the sonar showed large ventricles (water on the brain), and the CT then showed the fluid around the brain.

PVL is caused by too little oxygen or blood in the brain. With Mihleeya’s birth she was on the Oscillator as well as ventilated, and long on oxygen. It all played a role. So too did the PVL cause seizures – she has around 40 focal seizures per day – it’s the branches that send wrong signals, and then cause the seizures.

There is no treatment for PVL. She is currently on two types of medication, five times a day, which keep the seizures under control.

Our baby needs intensive treatment and therapy. She needs physio, occupational as well as speech therapy. She will also have to learn sign-language. She will have to go for X-Rays again, follow up EEG as well as another MRI to see if her condition is worsening. Blood tests should also be done regularly to test her Epilem levels – too low, and her seizures will continue, too high, and these are toxic to her body. She is currently receiving Epilim, Keppra, Multivitamines, Zinc, Aspelone and Reuteri drops daily.”

Please open your heart to Mihleeya and support our fundraising efforts – all proceeds from the “Angels and Miracles” bracelets are donated towards her ongoing medical care and expenses. Together we CAN make a difference and help a child in need!

Alternatively, please consider a donation; any and all donations welcome. REF: Mihleeya de Vaal.

Fundraising for Mihleeya de Vaal

Angels and Miracles Bracelets © Arms of Mercy NPC

Angels & Miracles Bracelets

The Angels and Miracles Bracelets” for Mihleeya consist of white, peach and silver wooden beads with silver and diamante fillers.

Charm options: Angel / Cross / Hope Awareness Ribbon.

To place an order, contact the agent in your area or shop online.

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Fundraising for Jakkie Pretorius – Lupus, Rheumatoid Arthritis

Jakkie Pretorius

Jakkie`s story:

“Jakkie’s fighting spirit is an inspiration to everyone who’s diagnosed with Lupus.

The celebration of a 50th birthday is usually a festive affair, but Jakkie Pretorius, from Heidelberg in South Africa, had to spend his 50th birthday on 14 February 2021 in hospital. Instead of cheerful celebrations, he had to brave intensive care, one doctor visit after another, until he was finally diagnosed with Lupus.

Jakkie was only discharged from the hospital again in May 2021; the last step he took by himself was on the 3rd of March 2021. He is on oxygen during the day and sleeps with a sleep apnea machine during the night. His upper body muscles are weak, but he has been fighting hard to regain his strength and his bravery is an inspiration to everyone who knows him!

He was also diagnosed with Rheumatoid Arthritis (RA) and Severe lumbar stenosis, a narrowing of the spaces within his spine, which puts pressure on his nerves. Unfortunately, in Jakkie’s case, his Spinal stenosis is serious with a Neurological deficit syndrome called Cauda Equina where the spinal stenosis becomes severe. If a spinal nerve or the spinal cord is compressed for long enough, permanent numbness or paralysis can occur.

Jakkie was scheduled for an emergency operation when he was in hospital, but unfortunately his heart-rate and blood pressure was unstable and was moved to ICU. After this his lungs were very weak and the doctors decided that the operation would be life-threatening because he can not lay on his stomach for 6 hours. It is for this reason that Jakkie needs to get back his strength with intense rehabilitation to go for his operation if he wants to walk gain. (He needs to sit and at least be able to stand up – to be declared fit). His biggest immediate challenges then will be to go for his knee replacement surgery, lower back surgery and learn to walk again. His medical and rehabilitation expenses are astronomical which are not covered by his medical aid.

Jakkie`s career is on the line – he is working from his bed by assisting with tenders, organizing his sites etc. but we do not know for how long his Company will keep assisting him. They requested that he apply for Temporary Disability, to try and recover the grant they are paying him up until now.

He starts each day with a smile and tackles his daily exercises to regain his strength. He is determined to walk again and although the road to full recovery is still long with his two operations ahead, Jakkie believes that he will be able to lead a fulfilling life again and enjoy things he so dearly love.

“A journey of a thousand miles begins with a single step”.

Jakkie needs assistance with funds for Lupus and RA medicine, rehabilitation expenses (physiotherapy which he receives at home). His medical aid does not cover all the medication and the physiotherapy he receives. Being bedridden, he struggles a lot with bedsores.”

Please open your heart to Jakkie and support our fundraising efforts – all proceeds from the “Lupus Awareness” bracelets are donated towards his ongoing medical care and expenses. Together we CAN make a difference and help change his world!

Alternatively, please consider a donation; any and all donations welcome. REF: Jakkie Pretorius.

Follow Jakkie`s Fight on Facebook for live updates on his progress and journey.

Fundraising for Jakkie Pretorius

Lupus Awareness Bracelets © Arms of Mercy NPC

Lupus Awareness Bracelets

Lupus Awareness Bracelets consist of wooden beads with silver and diamante fillers.

Bracelet Options:
1.
Purple and White with Diamante Awareness Ribbon & Believe charm.
2. Purple and Grey with Tree of Life charm.

To place an order, contact the agent in your area or shop online.

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Fundraising for Kyla De Kock – Stage III Breast Cancer & HER2+ Cancer

Kyla De Kock

Kyla`s story:

“Kyla is a bubbly, spontaneous 27 year old mom of a 4 year old boy. With a zest for life, every person who comes her way can testify.

Kyla’s journey began in August 2021 where she noticed a slight discharge in her bra. It was strange to her, but because she did not feel physically ill or hurt it did not worry her much. She then decided to make an appointment with her family doctor for an examination. On 24 August 2021 she was diagnosed with Fibrositis (which made sense to her because her mother, and sister were diagnosed with it). The doctor informed her that it is not dangerous and there is not really anything they can do to to treat it, but did give a reference for a sonar just for better peace of mind.

On the 26th of August she went for a sonar, where the family doctor contacted her and diagnosed her with breast cancer, she was referred from there to a surgeon to discuss it further. On the 30th of August, she went to see the surgeon where she was diagnosed with Stage 2 breast cancer.

Kyla requested a 2nd opinion from another Surgeon on the 3rd of September, where he suggested to do a double mastectomy because she is still so young and prevent the cancer from spreading, and also that they can determine what type of chemo she should receive.

On 13 September 2021, the medical aid fund informed her that they were terminating her fund because she did not disclose her diagnosis. Note: a diagnosis she was not aware of at all! Her Double Mastectomy was scheduled for the 24th of September, which had to be paid for in cash. She also had to get 2 blood transfusions. They removed all her breast tissue as well as 3 of the glands in her breast.

On 9 October 2021, Kyla received her results back from the Oncologist and she was diagnosed with Stage 3 cancer as well as HER2 + a fast growing cancer. The Oncologist also suggested that she should go back to the theater to remove the rest of the glands.

We as Family and Friends’ feet have been knocked out from under us. Kyla should go for further scans and tests to determine if the cancer has spread. She must also start within the next week (around 18 October 2021) with aggressive chemo, chemo not offered by the state. She will then receive her chemo every 3 weeks, and also has to go for radiation afterwards.

The Oncologist explains that Kyla only has this one chance to do the treatment right to prevent the cancer from spreading or coming back.

In today’s economy, it is humanly impossible to pay for those types of funds yourself. We, as Family and Friends, thought well of taking hands and trying to lighten the Battle for her. Therefore, we are launching this fundraiser and reaching out to the community in an effort to be able to pay her medical expenses in full. All funds will be used strictly for medical expenses only. Any funds, small or large, will be warmly appreciated.”

Update 12 January 2022 via Kyla`s Journey: “Yesterday was one of the harder days. The sonar results are unfortunately not what we prayed for. The “spot” on Kyla’s liver got bigger, she also has 3 extra on her liver. The doctors themselves are amazed at the results of the sonar because it does not happen in someone who gets the “Red devil” as most people know it. She starts with Herceptin on Thursday, it will be much stronger than the “red devil” she received now. It’s expected to make her a lot sicker. For now, we are asking for prayers for Kyla in these difficult times. We trust God’s plan for her life and know that He alone will carry her through here.”

Please open your heart to Kyla and support our fundraising efforts – all proceeds from the “Kyla`s Journey” bracelets are donated towards her ongoing medical care and expenses. Together we CAN make a difference.

Alternatively, please consider a donation; any and all donations welcome. REF: Kyla De Kock.

Follow Kyla`s Journey on Facebook for live updates.

Fundraising for Kyla De Kock

Kyla`s Journey Bracelets © Arms of Mercy NPC

Kyla`s Journey Bracelets

Kyla`s Journey Bracelets consist of pink wooden beads with silver and diamante fillers.

Charm options: Diamante Awareness Ribbon / Believe, Sword and Shield.

To place an order, contact the agent in your area or shop online.

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Fundraising for Amikhe van Rooyen – Acute Disseminated Encephalomyelitis (ADEM)

Amikhe van Rooyen

Amikhe`s story:

“Amikhe van Rooyen was born on 8 November 2016 as healthy as can be, no illness or disability. At 11 months Amikhe went for her measles vaccination, a few days later she fell ill. Her school called me and told me that she has a fever of 42 degrees Celsius. Her father and myself rushed to the school to take her to hospital. We arrived at a hospital (we would prefer not to share the name), they assisted us and took Ami to the PICU Ward.

They told us Ami is getting fever seizures which lead to a shortage of oxygen into her brain. She went to sleep that night, the next morning by 11 she has still not woken up. I called a doctor and told him that Ami never sleeps that long, something is wrong and that they should start investigating. They did a few tests including an EEG and MRI. On the tests the doctor picked up that Ami has brain damage. The doctors explained to me that they will have to sedate her and transfer her to another hospital, because there is nothing else that they can do to help Ami.

She was transferred to Busamed hospital where Doctor Ponde treated her. After numerous tests he diagnosed Ami with ADEM. Google explains it like this: Acute disseminated encephalomyelitis (ADEM) is characterized by a brief but widespread attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers. ADEM often follows viral or bacterial infections, or less often, vaccination for measles, mumps, or rubella.

Ami was in PICU for about a month, constantly monitored by doctors and nurses. We went through so many ups and downs, good days and bad days, positive feedback and sometimes hearing somethings we never hoped to hear, but Ami pulled through. She was transferred to Netcare Auckland Park rehabilitation hospital on her first birthday. The brain damage caused her to lose use of her tongue muscle completely, she couldn’t crawl, she couldn’t sit up by herself, etc. The staff at Netcare had to teach a one year old baby that was back on being like a two month old baby. She had wonderful staff helping and taking care of her.

After a month at the rehabilitation hospital they had to give Ami a PEG (temporary) to be able to still take in nutrition, fluids e.g. water and milk and medicine. The first operation went great. We were hopeful that Ami will recover and that they can remove the PEG, but unfortunately they had to replace it with a Mickey button (permanent) that will last longer. Unfortunately the doctor that did the operation placed the Mickey button incorrectly into Ami’s stomach and she was busy drowning from the inside. They only realized this a day later and she had to go in for another operation. Ami was rushed to the OR for an emergency operation. They cut her stomach open, removed all her organs, cleaned them and put them back into her body. Unfortunately this was not great for Ami’s progress. Again, a lot of ups and downs, good days and bad, BUT Ami pulled through. After 4 months in the rehabilitation hospital Ami went home.

Luckily Ami has always been on good medical aid, but unfortunately the savings still gets depleted quickly. There are also additional weekly, monthly and if and when needed, costs for medicine, special equipment e.g. car seat etc.

Ami’s grandmother has taken care of her since she has been allowed to go home, but I would love to send Ami to a school to help her with stimulation, etc.”

Please open your heart to Ami and support our fundraising efforts for her medication, Speech Therapy, Occupational Therapy, Physiotherapy, and Chiro Therapy . All proceeds from her “Strength to Strength” bracelets are donated towards her ongoing medical care and expenses.

Together we CAN make a difference and help a child in need, one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Amikhe van Rooyen.

Fundraising for Amikhe van Rooyen

Strength to Strength Bracelets

The Strength to Strength Bracelets” for Amikhe consist of white wooden beads with crystal, silver and diamante fillers, or silver electroplated beads.

Bracelet options:
1. White with diamante tree of life charm
2. Silver electroplated beads with diamante balls
3. White with silver fillers no charm

To place an order, contact the agent in your area or shop online.

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Fundraising for Miah van der Vlies – Spina Bifida

Miah van der Vlies

Miah`s story:

Miah van der Vlies (18 months) was born with Spina Bifida (split spine) and had a de-tethering spinal operation on the 24th of August 2021. She is on medical aid but there are a lot of co-payments for her MRI’s, sonars etc. She also needs intensive occupational therapy and physiotherapy.

Please open your heart to this baby girl and her family. All proceeds from Miah`s “Glory to God” bracelets are donated towards her ongoing medical care and expenses.

Together we CAN make a difference and help a child in need, one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Miah van der Vlies.

Follow Miah`s Facebook Page for live updates on her progress and journey.

Fundraising for Miah van der Vlies

Glory to God Bracelets

The Glory to God Bracelets” for Miah consist of pink wooden beads with aquamarine crystals, silver and diamante fillers.

Colour options: Pink / Pink and Aquamarine.
Charm options: Diamante Flower / Diamante Cross / Hope-Awareness Ribbon.

To place an order, contact the agent in your area or shop online.

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Fundraising for Esmae Peters – Acute Lymphoblastic Leukemia (ALL)

Esmae Peters

Esmae`s story:

On the 13th of July, Esmae Peters (3 yr.) was diagnosed with cancer. It was quite a progressive stage by then as she battled for about 2 months prior to receiving the diagnosis. She has had a few lumbar punctures and completed about 9 chemotherapy treatments .

Unfortunately she recently contracted a blood infection together with Neutropenic colitis and Pancytopenia, which are 2 life-threatening conditions on their own … she was transferred from the Cancer ward to ICU high care. She has had enlarged liver and spleen about 4cm each, distended bowel, numerous bruises and blood clots on her skin and gums, oral sores and also blood and platelet transfusions.

Her medical needs include Physiotherapy, Psychology, Speech therapy, Occupational therapy, optometry as well as dental as required.

We ask you to please open your heart and help us to carry the heavy financial burden by ordering Esmae`s special “Grow in Grace” Bracelets – all proceeds are donated towards her ongoing medical care and expenses.

Together we CAN make a difference and help a child in need, one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Esmae Peters.

Fundraising for Esmae Peters

Grow in Grace Bracelets

The Grow in Grace Bracelets” for Esmae consist of wooden beads/crystal beads with silver and diamante fillers.

Bracelet Options:
1)
Silver, clear & gold crystal beads with Unicorn charm.
2)
Silver, white & gold wooden beads with Cross charm.
3)
White & gold wooden beads with Flower & diamante Butterfly, and diamante Awareness Ribbon.

To place an order, contact the agent in your area or shop online.

Bath Bombs

These Bath bombs are made from 100% natural ingredients and promise to smell amazing. Bath bombs are perfect as a gift or just for yourself, to enjoy some down time..

Choose from the following fragrances: Rose, Rooibos, Spearmint, Mango, Vanilla, Lavender, Geranium, Lemon Grass. Shop Online

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Fundraising for Aldrich Kruger – Stage II Metastatic Papillary Thyroid Carcinoma Cancer

Aldrich Kruger

Aldrich`s story:

Aldrich Kruger is a young boy from Mossel Bay who was diagnosed with Stage IV Papillary Thyroid Cancer in March 2020, which already spread to his lungs. His thyroid and lymph nodes had to be removed.

He receives Radio active Iodine treatment at the Red Cross Hospital; not chemo nor radiation works for this type of cancer. Aldrich receives treatment every 6 months, and goes into isolation whilst the treatment is given.

He has always been a very active boy, and loves sport and dancing. This has been difficult for him and his family, as he has to fight, and also go through a world pandemic.

Aldrich was recently re-diagnosed with Stage II Metastatic Papillary Thyroid Carcinoma Cancer.

He will be chronic on eltroxin for the rest of his life.
He also struggles with eczema and requires medication for that too.

You can help us to lessen the financial burden by ordering his special “Hope and Faith” Bracelets – all proceeds are donated towards his ongoing medical care and expenses. Together we CAN make a difference and help a child in need.

Alternatively, please consider a donation; any and all donations welcome. REF: Aldrich Kruger .

Follow his Facebook Page for live updates on his progress and journey.

Fundraising for Aldrich Kruger

Hope and Faith Bracelets © Arms of Mercy NPC

Hope and Faith Bracelets

The Hope and Faith Bracelets” for Aldrich consist of Turquoise, Pink and Lilac wooden beads with silver and diamante fillers.

Charm options: Diamante Awareness Ribbon / Cross / Mossie.

To place an order, contact the agent in your area or shop online.

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Fundraising for Mia Potgieter – Complete Corpus Callosum Agenesis

Mia Potgieter

Mia`s story:

Complete corpus callosum agenesis and pontocerebellar hypoplasia with microcephaly and macroglossia.

“Mia was born only 4 days after the lockdown began. On 30 March 2020, Mia came to surprise us all in just 26 weeks. She weighed 1.29 kg and she was 36cm tall. Mia was immediately connected to a ventilator, as her lungs were not strong enough at all.

For the first 4 months of Mia’s life, I (Ria), could only see her for 1 hour a day and Marnes was not allowed to see her. Within the first week of her life, she was given a central line so that she could take medication. Mia was 2 weeks old when her doctor informed us that she was very ill. She contracted an infection and they put her on all possible antibiotics in the hope that she would recover soon. However, she fared even worse that night. The doctor was honest and said there is nothing more he can do for her, her life is now in God’s hands. Marnes was allowed to see his daughter the next morning to say goodbye.

Mia fought the infection and eventually won and got well again. For the first 4 months, Mia had been in Springs and a Maxillofacial Specialist had her tongue attached to her lower lip to prevent it from falling back into her airway. Unfortunately, this was not a success. They tried to “extubate” 4 times and each time Mia could not sustain it and she was ventilated again. The ENT Specialist from Springs then reached out to another ENT Specialist in Sandton. She came to examine Mia and we were then transferred to Sandton. Within the first week we went to the theater so that the Specialist could look at Mia’s airway and clean her lungs as well. The Specialist then also cut Mia’s tongue smaller to prevent her tongue from falling back and closing her airway. It was a success and Mia was on high flow oxygen for about a month and a half and not ventilated. During that time Mia went to the theater several times for new central lines for medication, she also got a “peg-tube” through which she got her food.

Unfortunately, her tongue was still slightly large and her body worked very hard. Our only way out was a tracheostomy. Mia got the trachea tube in October 2020 and we are not looking back one day. The same day that Mia had the tracheostomy, they changed the “peg” to the “mic-key” which is more permanent. She recovered quickly and easily adjusted. Marnes and I received training from the Specialist on how to look after Mia and do the care.

Finally after 5 months in Sandton and 9 months in total, Mia was ready to go home. She went home on 28 December 2020 for the first time. She has 2 full-time caregivers who help with Mia’s care when Marnes and I work. Shortly after we went home, Mia had light seizures. By March it was pretty big attacks and we had to do some tests. We go to the hospital every month for a monthly immune boost (Polygam).

During March’s survey, they performed an EEG to monitor what was happening in Mia’s brain without seizures as well as while she was having an attack. An MRI was also done and it was determined that Mia’s brain had suffered a lot of damage. There is damage from birth and then there is also damage from all the seizures she gets. Mia also has complete agenesis of the corpus callosum and her cerebellum is very underdeveloped.

There are still genetic tests we need to do in the Netherlands to determine if Mia has a syndrome that is the cause of all her challenges. All the previous tests for all the syndromes came back negative. The tests in the Netherlands are a broad spectrum of tests and will pick up something, if anything.

Mia saw her Cardiologist again at the end of June and he is satisfied with her heart’s progress and says so far he now wants to see Mia every 4 months. Mia’s right side of her heart is slightly larger than left. Mia’s liver is also larger than normal. The ENT Specialist also looked at Mia and only wants to see her again in 3 months. We are thankful that Mia is healthy and that she is doing well. We are eternally grateful to all the medical staff. It is thanks to them that we can be at home today to be a daughter and to live life to the fullest every day.”

You can help us to raise funds for Mia by ordering her special “Pure Love” bracelets – all proceeds are donated towards paying for her ongoing medical care, treatments, therapies, and medical expenses. Together we CAN make a difference!

Alternatively, please consider a donation; any and all donations welcome. REF: Mia Potgieter.

Fundraising for Mia Potgieter

Pure Love Bracelets

The Pure Love Bracelets” for Mia consist of pink, white and maroon wooden beads with silver and diamante fillers.

Charm options: Heart / Tree of Life / Diamante Awareness Ribbon.

To place an order, contact the agent in your area or shop online.

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Fundraising for Lyza Kennedy – Moebius Syndrome

Lyza Kennedy

Lyza`s story:

“Lyza Kennedy was 4 weeks old when she received her first operation as she could not feed on me. They gave her a Foley catheter in her tummy for me to feed her but she cried it out the next day and went back to NICU and theatre where she received a Mickey button. She has had 12 operations up to date. She was 1yr 7 months when they had the genetic assessment and then said it’s Moebius Syndrome.”

Moebius Syndrome is a rare neurological condition that is caused by the absence or underdevelopment of the 6th and 7th cranial nerves, which control eye movement and facial expression. Other cranial nerves may also be affected. There is no cure for Moebius syndrome, but proper care and treatment give many individuals a normal life expectancy. Learn more about Moebius Syndrome

“Lyza is currently on a ResMed machine as she some days forget to breath and loses consciousness. The ResMed machine is a loan product from Red Cross hospital where she received the machine and a back up battery.
She is often seeing a doctor as she is prone to infections.”

By supporting the AOM bracelet initiative you are helping to raise funds to contribute to Lyza`s ongoing medical expenses. Together we can change her world, one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Lyza Kennedy.

Follow Help Lyza Smile on Facebook for live updates on her progress and journey.

Fundraising for Lyza Kennedy

Victorious in Faith Bracelets © Arms of Mercy NPC

Victorious in Faith Bracelets

The “Victorious in Faith” Bracelets for Lyza consist of purple and white wooden beads with crystal, silver and diamante fillers.

Charm options: Faith / Hope / Flower.

To place an order, contact the agent in your area or shop online.

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Fundraising for Liané Rossouw – Neuroblastoma Cancer

Liané Rossouw

Liané`s story:

Liané Rossouw (1 yr.) was diagnosed with Neuroblastoma in December 2020 when she was only 8 months old. She was due to start her chemotherapy on the 19th of December, but she stopped breathing that morning. She was resuscitated and rushed to the pediatric ICU, and was on a ventilator for a little over a week.

The resuscitation caused extensive brain damage and has resulted in her losing her vision. The place where the tumour was, was also pressing against her spine causing the nerves in that area of the spine to die, which will never regrow, meaning Liané would never walk.

After the resuscitation, she completed 4 rounds of intensive chemotherapy. The chemo she had completed shrunk the tumour A LOT, but it was still active and still there.

We had a discussion with the doctors and we were given 3 choices:
1. Intensive chemotherapy which might help, but will make her extremely sick.
2. Less invasive chemotherapy which will just keep the tumour under control and slow down the spread.
3. No treatment.

We went with option 2, knowing that this chemotherapy is not designed to “cure” but to give us just a little bit more time.

Liané was scheduled to go for a MiBG scan in February 2021, but she was just too weak, so they canceled it. Since her last round of intensive chemotherapy, she completed 6 rounds of less invasive chemotherapy and she was strong enough to do the MiBG scan.

6 October 2021, we got to do the first part of the MiBG and then the second part the day after. I got to be with her while they did the scan. I asked the radiologist to explain to me what she is seeing on the scans if she can after the second day and she asked me quite a lot of questions regarding treatments, etc.

She could not find ANY tumour in Liané’s body. 12 October 2021, her doctors could confirm Liané was in remission and no active tumour can be seen or found in her body. LIANÉ HAS BEAT CANCER!!!

What do we do now?

Liané still needs to receive physio to improve her strength and movement. She still has the feeding tube. Her eyesight is improving and is reacting to lightness and darkness.

Liané has to go for blood tests to keep an eye on her for the next 6 months. She also has to do urine tests and she might do follow up scans to just keep an eye on it.

By supporting the AOM bracelet initiative you are helping to raise funds to contribute to Liané`s medical expenses. Together we can change the world, one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Liané Rossouw.

Follow Hope for Liané on Facebook for live updates on her progress and journey.

Fundraising for Liané Rossouw

Anchored in Hope Bracelets

The “Anchored in Hope” Bracelets for Liané consist of gold and pink wooden beads with crystal, silver and diamante fillers.

Charm options: Anchor / Hope / Hope-Awareness Ribbon.

To place an order, contact the agent in your area or shop online.

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Fundraising for Mia Nordeje – Craniofacial Deformity

Mia Nordeje

Mia`s story:

“Our little princess Mia was born with a craniofacial deformity. She was basically born without cheekbones and also has no structure to her bottom eyelids. She has the skin but no support.

She presents facial asymmetry and wide colobomas of the lower eyelids. She will require reconstruction at this stage of the paucity of soft tissue and in her face especially around the lateral eye area. This procedure is done with fat grafting which is harvested from her medial thighs or abdomen and processed in a specialised manner with centrifugation to obtain a pure fat graft. The fat will be grafted into her face correctly while the bed is prepared for the contour grafts.

This is not done for cosmetic purposes but it needs to be done for the lower eyelids do not have support and there will be a resultant ectropion that develops in future. The first step is the fat grafting to support the lower eyelids and then there will be the final lower eyelid reconstruction as necessary. This will be done in 2 separate procedures.”

Please open your heart and support our fundraising efforts for Mia. All proceeds from the “Beautifully You” bracelets are donated towards her medical expenses – together we can change her world, one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Mia Nordeje.

Fundraising for Mia Nordeje

Beautifully You Bracelets

The “Beautifully You” Bracelets for Mia consist of pink, maroon and silver wooden beads with crystal, silver and diamante fillers.

Charm options: Hope Awareness Ribbon / Diamante Butterfly / Cross.

To place an order, contact the agent in your area or shop online.

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Fundraising for Scott Harmse – Mowat-Wilson Syndrome

Scott Harmse

Scott`s story:

Scott Harmse was born with a heart condition. After many visits to the doctor he was diagnosed with Mowat-Wilson Syndrome, a genetic condition that affects various parts of the body. He is blind in the left eye and will be going to see the Ophthalmologist soon to assess if they will be doing his eye this year. One of his eyes is also smaller than the other.

Scott has Tetralogy of Fallot (TOF) with large VSD and has had 2 heart surgeries to date. He also has Hirschsprung’s disease and had 9 stomach operations.

They have medical aid but it does not cover everything. Mom’s funds are almost depleted and she wishes for Scott to see someone for his feet as they bend inward when he walks. Scott will have eye checkups and operations soon, physiotherapy, operation on his feet and a visit to the stomach doctor.

By supporting the AOM bracelet initiative you are helping to raise funds to contribute to Scott`s medical expenses. Together we can change his world, one bracelet at a time!

Fundraising for Scott Harmse

Open Your Heart Bracelets

The “Open Your Heart” Bracelets for Scott consist of turquoise and white wooden beads with crystal, silver and diamante fillers.

Charm options: Believe / Tree / 4-leaf Clover.

To place an order, contact the agent in your area or shop online.

Alternatively, please consider a donation; any and all donations welcome. REF: Scott Harmse.

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Fundraising for Zack Prins – Cerebral Palsy

Zack Prins

Zack`s story:

Zack Prins is a 3 year old little boy from Hopefield in the Western Cape. He had severe jaundice which caused brain damage when he was only 5 days old, and was diagnosed with cerebral palsy disorder on the 10th day after having a blood transfusion. Zack has been receiving physiotherapy since he was 3 weeks old.

Zack currently needs a custom-made tricycle to assist in brain development. The tricycle will help the left brain to talk to the right brain which will speed up the process for him to start walking. He still needs physiotherapy, occupational therapy and speech therapy. He also attends a local daycare to help him with development.

You can help us to raise funds for Zack by ordering his special “Hold on to Hope” bracelets – all proceeds are donated towards his ongoing medical care and expenses. Together we CAN make a real difference in his life!

Alternatively, please consider a donation; any and all donations welcome. REF: Zack Prins.

Fundraising for Zack Prins

Hold on to Hope Bracelets © Arms of Mercy NPC

Hold on to Hope Bracelets

The Hold on to Hope Bracelets” for Zack consist of white wooden beads with green crackling beads, silver and diamante fillers.

Charm options: Hope Awareness Ribbon / Butterfly / Cross.

To place an order, contact the agent in your area or shop online.

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Fundraising for Zayden Fischer – Cerebral Palsy

Zayden Fischer – Cerebral Palsy

Zayden`s story:

Zayden Fischer (4 yr.) has Cerebral Palsy. He attends Cape Recife in Port Elizabeth, which is a school for kids with special needs. He will be turning 5 years old in May 2021. He has had a PDA repair, hernia repair and had botox done regularly.

Zayden has therapy every week as his parents want him to reach his full potential, and they are currently waiting to hear about a wheelchair for him.

He is on bio baclofen and melatonin, and he also has physio twice a week, and speech therapy once a week.

Mom is not working at the moment in order to take care of him and his needs. You can help us to raise funds for Zayden by ordering his special “Believe in Yourself” bracelets – all proceeds are donated towards his ongoing medical care and expenses. Together we CAN make a difference!

Alternatively, please consider a donation; any and all donations welcome. REF: Zayden Fischer.

Fundraising for Zayden Fischer

Believe in Yourself Bracelets

The “Believe in Yourself” Bracelets for Zayden consist of beige, silver and mint coloured wooden beads with crystal, silver and diamante fillers.

Charm options: Believe / Diamante Butterfly / Anchor.

To place an order, contact the agent in your area or shop online.

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Fundraising for Mason and Madison Jacobs – Cerebral Palsy

Mason and Madison Jacobs - Cerebral Palsy

Mason and Madison`s story:

“Mason and Madison Jacobs are twins who were born premature, weighing 1.6kg and 1.8 kg. Mason was in ICU for 3 weeks on a ventilator for oxygen. We realized when they were about 1 and 1/2years old that they were a bit slower with sitting and crawling than other kids. We also noticed that Mason`s left side is different and started with physio for the last 2 and 1/2 years.

Other problems started like chronic constipation that lead to a CT scan and lead to hemiplegia cerebral palsy, so we took them to a Specialist where we learned that both, Mason and Madison, has CP. They have gone for an MRI, hearing tests, EEG scan, botox injections, and still have to go to an Eye Specialist. They are going for physical therapy once a week. They just turned 4 on the 29th of March 2021 and are still not walking on their own. We are hoping that they will get stronger to walk with all the physio.”

Please support our fundraising efforts for Mason and Madison; all proceeds from the “Miracles and Magic” Bracelets are donated to their ongoing medical care and expenses. Together we CAN make a difference!

Alternatively, please consider a donation; any and all donations welcome. REF: Mason and Madison

Fundraising for Mason and Madison Jacobs

Miracles and Magic Bracelets © Arms of Mercy NPC

Miracles and Magic Bracelets

The “Miracles and Magic” Bracelets for Mason and Madison consist of pink and turquoise coloured wooden beads with crystal, silver and diamante fillers.

Charm options: Cross / Letter M / Hope.

To place an order, contact the agent in your area or shop online.

Miracles and Magic Bracelets © Arms of Mercy NPC
Miracles and Magic Bracelets

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Fundraising for Emané van Eeden – Choanal Atresia

Emane van Eeden - Choanal Atresia

Emané`s story:

“Emané Van Eeden is 4 months old and has been in ICU in Witbank Hospital from birth. They told me she had CHARGE Abnormality [Choanal Atresia] and they should operate. Emané was barely a week old when she went for the 1st operation, thereafter, they told me that the operation worked but 3 days later they came back and told me that the nose was closed again.

She went for another 2 operations that didn`t work and was then transferred over to Steve Biko in Pretoria. She was there for 2 weeks and had surgery again and I was not allowed to see her at all. They discharged her and called me and told me I could go and pick her up on the 29th of December. When I arrives, they told me that they couldn’t give me my child, and that it was a case of miscommunication between them. Witbank’s ambulance should fetch her there.

I had to come home without her. I called every day and were told that they were still waiting for the Ambulance, so on Monday the 4th of January I went to Witbank Hospital and asked them if they could not help me get my child back to Witbank. The Dr then called and said I could fetch her.

She was home until the 7th of January and then I had to go back to the hospital again with her because she struggled to breathe. On the 9th of January at 02:30 in the morning, Emané`s heart had already stopped 2 times and she had blood in her lungs but they could not tell me what was the reason or what caused it. She stayed at the hospital for another 2 weeks.

We went home and everything was fine until a month later when one morning she struggled to breathe again. I took her to a Pediatrician in Cosmos with the money we raised for her, and he told me that her heart and lungs were fine. I then took her to an ENT Dr also in Cosmos. Dr Nico Ligthel send her for a ST Scan and saw that the nose was closing again, so he referred me to Dr Gerrie Moolman, who confirmed that the nose was closing. The right side was already closed and the left side was 0.2 mm open. He told us that he will help us.

She has to go for a 5th operation to help open up her nose. We found a good-hearted Doctor who is prepared to do the operation for free from his side – but we need to pay for the hospital and the theater that they will be using. It is a lot of money and I wish I did have it but I don’t, and Emané really needs this operation. She is struggling each day with little things like drinking her bottle or even just breathing. The Hospital sent us a quote for the theater and the equipment they will be using and the amount is R 67 695.98. If it is possible that anyone can help, we would be so grateful PLEASE?”

Please open you heart and support our fundraising efforts for Emané; all proceeds from the “Loving Angel” Bracelets are donated to her medical care and expenses. Together we can make a difference, one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Emané van Eeden.

Fundraising for Emané van Eeden

Loving Angel Bracelets © Arms of Mercy NPC

Loving Angel Bracelets

The “Loving Angel” Bracelets for Emané consist of red coloured wooden beads with silver and diamante fillers.

Charm options: Angel / Heart / Awareness Ribbon

To place an order, contact the agent in your area or shop online.

Loving Angel Bracelets © Arms of Mercy NPC
Loving Angel Bracelets

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Fundraising for Miné van der Merwe – Acute Myeloid Leukemia

Miné van der Merwe Arms of Mercy

Miné`s story:

“Miné van der Merwe was diagnosed with Acute Myeloid Leukemia in 2019 and had a bone marrow transplant in 2020. She fought cancer twice in 1 year. In January 2021 she went through the unimaginable when she almost lost her life due to chicken pox that went internally and affected her heart, lungs and liver.

She was in ICU fighting for her life for 3 months. She had to learn how to walk again. After almost 4 months in hospital she is still fighting the battle against healing completely. She suffers from Pneumatosis (air in the walls of her intestines) and needs to be careful of what she is eating.

She is currently in remission after the cancer and needs to visit the doctor every 6 months for extensive blood tests. We humbly ask anyone who can help to assist us with Miné’s medical expenses in order to keep on providing health care to her as needed.”

Please open your heart and support our fundraising efforts for this young cancer warrior; proceeds from the “Brave Heart Bracelets” and “Brave Warrior Bracelet Set” are donated to Miné`s ongoing medical care and expenses. Together we CAN make a positive difference!

Alternatively, please consider a donation; any and all donations welcome. REF: Miné van der Merwe.

Follow Miné van der Merwe vs Leukemia on Facebook for live updates on her progress and journey.

Fundraising for Miné van der Merwe

Brave Heart Bracelets

The Brave Heart” Bracelets for Miné consist of white, coffee and light blue wooden beads with silver, crystal and diamante fillers.

Charm options: Heart / Cross / Diamante Awareness Ribbon.

To place an order, contact the agent in your area or shop online.

Brave Heart Bracelets © Arms of Mercy NPC
Brave Heart Bracelets

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Brave Warrior Bracelet Set

The “Brave Warrior” Bracelet set consist of three different bracelets. Price is per set of three bracelets.

Bracelet 1: Beige polymer clay beads with silver fillers.
Bracelet 2: Plain silver electroplated beads.
Bracelet 3: Beige wooden beads with silver fillers and beige tassel.

Brave Warrior Bracelet Set © Arms of Mercy NPC
Brave Warrior Bracelet Set

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Fundraising for Mikyla Pretorius – Juxtapapillary Retinal Capillary Hemangioma & Hydrocephalus

Mikyla Pretorius

Mikyla`s story:

Mikyla Pretorius – She epitomizes grit and determination.

Mikyla was unknowingly born with a condition called Acute Hydrocephalus 16 years ago, but has never let this stop her from attending mainstream schooling and achieving good marks in her grades. She is currently a 10th grade student at Goudveld High School in Welkom.

Late last year during the final exams of grade 9, Mikyla told her parents she is experiencing difficulty studying because something was disturbing her vision. After consulting a local optometrist and ophthalmologist, her parents Johan and Claudene decided to consult with Dr. Lynette Venter in Bloemfontein for further testing of the eyes and possible treatment options. Mikyla was diagnosed with Juxtapapillary retinal capillary hemangioma — a rare eye condition. On Dr. Venter’s recommendation, Mikyla also had an MRI scan of her brain where it was discovered by Dr. Dan Hugo that she had Acute Hydrocephalus.

With both these conditions comes a great deal of difficulty in her life, and several operations will be required to get things back to a sense of normalcy. In order for her to have these though, a substantial amount of money will need to be raised, which is where your help is desperately needed.

After the eye condition was first discovered, Dr. Venter recommended that Mikyla receive a series of Avastin injections into both her eyes due to bleeding behind her left eye and the risk in her right eye. Mikyla returned to Dr Venter in March for her check-up and further tests were conducted. However, there was only a slight change in both eyes. Dr Venter recommended further treatment, namely laser treatment followed by eye surgery. She also discovered that there was a certain amount of new bleeding behind the left eye.

Mikyla has to put an enormous amount of effort into completing her school work, often working late into the night and early morning. She is prone to headaches, migraines and nausea and lately is feeling immense pressure in her brain. Both Dr. Venter and Dr. Hugo have been extremely accommodating and they have arranged that if sufficient money can be raised, the laser eye treatment will take place on the 18th of March and the brain operation will take place in late May this year.

In between, Mikyla hopes to continue her education as classes are very important to her. To add to all their woes, Johan lost his job in June 2020 and is working alongside his wife in Web Development from home. In the hope of raising some of the funds, he is arranging a Charity Golf Day with the support of Brand Mashie Golf Course. The date will be advised. All previous costs, in excess of R50,000, have been covered with the help of family, friends, a local church in Odendaalsrus, and by the Grace of God.

For the next two operations, they need to raise a minimum of R220,000 for the operations to take place. If YOU can help with any donation they will be eternally grateful. They have already arranged with an Advocate in Pretoria that if they manage to raise any additional funds, these funds will be used for other young people with the same type of conditions.

Please open you heart and support our fundraising initiative; all proceeds are donated to Mikyla`s ongoing medical care and expenses. Together we can change the world, one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Mikyla Pretorius.

Follow Mikyla Hulpfonds on Facebook for live updates on her progress and journey.

Fundraising for Mikyla Pretorius

See God`s Beauty Bracelets © Arms of Mercy NPC

See God`s Beauty Bracelets

The “See God`s Beauty” Bracelets for Mikyla consist of coloured wooden beads with silver and diamante fillers. Bracelet options:
1) White with Hope charm
2) Dark purple with love charm
3) White, purple & black mix with diamante flower

To place an order, contact the agent in your area or shop online.

See God`s Beauty Bracelets © Arms of Mercy NPC
See God`s Beauty Bracelets

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Fundraising for Dihandré van Staden – Craniosynostosis-scaphocephaly

Dihandré van Staden

Dihandré`s story:

“Dihandré was born 4 November 2020, a very healthy boy weighing a full 3.2 kg and 52cm. At birth I noticed something strange about Dihandré; his head was weirdly shaped, not round-shaped like a normal baby’s head. His head also had some kind of riff like his skull bones grew over each other, so I asked the nurses at the Hospital and they said that it is normal and it will be the way it is supposed to be when he turns 6 weeks. So I left it there.

On 11 February 2021 we took Dihandré to the Pediatrician in Potchefstroom, who immediately said that it is not normal and we should go for an MRI scan. He was booked for an MRI scan on 18 February. Praying the whole time that the results will come back clean and that nothing is wrong with the little one. Nervousness ate me and my family for the results. We waited patiently. The results came back: Craniosynostosis-scaphocephaly.

Craniosynostosis-scaphocephaly is when a baby’s head fuse in the mother`s womb, meaning there is no fontanel. His brain can’t grow and this means that he can get fog on his brain which can cause brain damage, blindness and worst case scenario death.

Dihandré had surgery where they cut out a part of his skull to make space for his brain to grow and is doing well. He has to wear a helmet for 6 months – 1 year to protect him from bumping his head.”

Follow his Facebook page for live updates on his progress and journey.

By supporting our fundraiser for Dihandré you can make a positive difference in his life – all proceeds from the “Sweetest Love” bracelets are donated towards his ongoing medical care and expenses. Together we CAN change the world, and help a child in need!

Alternatively, please consider a donation; any and all donations welcome. REF: Dihandré van Staden.

Fundraising for Dihandré van Staden

Sweetest Love Bracelets © Arms of Mercy NPC

Sweetest Love Bracelets

The “Sweetest Love” bracelets for Dihandré consist of wooden beads with crystal, silver and diamante fillers.

Colour Options: black / grey / black & grey mix.

Charm Options: cross / ribbon / heart.

To place an order, contact the agent in your area or shop online.

Sweetest Love Bracelets © Arms of Mercy NPC
Sweetest Love Bracelets

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Fundraising for Louis Taylor – Rare Genetic Disorder

Louis Taylor

“Hi there; my name is Louis Taylor; and this is my story:

I came into this world on 21 November 2014 by Caesarean section at St Georges Hospital in Port Elizabeth. Mom and Dad was elated to meet me. I gave them a huge fright when mere hour after my delivery, I was transferred to the NICU for observation and tests because my doctor was concerned that the tremors, I exhibited, could be seizures. A lot of testing and scanning did not produce any satisfactory answers.

The testing and prodding went on for years amid speculation on Angelman Syndrome, Coffin Siris syndrome, and signs of Autism. The eventual conclusion was that I have a rare, yet unnamed break in my DNA; 6q25.3q26(162291555) x1; to be exact. My folks decided not to pursue further testing that would merely satisfy academic curiosity; but instead focus on helping me reach my full potential.

Together we faced several difficulties starting with the 2 hernias I was born with of which one reoccurred. As a baby I suffered from, and is still prone to severe constipation, I also acquired a very unpleasant reflux reaction to food and drink; to the extent that I was hospitalized for Colonoscopy, Gastroscopy and Barium Swallow; challenging my parents to find foods and drinks suitable for me. I require chronic medication because I am easily excited, prone to Epileptic seizures, and struggle to sleep properly at night.

I am now 7 years old. I have severe developmental delays, I am nonverbal, I still wear diapers, use a sippy cup. need lots of special things like a Special needs School environment, Speech therapy, Occupational therapy, Physiotherapy and Pool therapy; which is why our very dear friend Monique Kitching recommended us to Arms of Mercy NPC for financial assistance.

Thank you for reading my story.”

By supporting our fundraising initiative you can help raise funds for Louis` ongoing medical care and expenses. Together we can change the world, one bracelet at a time!

Alternatively, please consider a donation; any and all donations welcome. REF: Louis Taylor.

Fundraising for Louis Taylor


Eternal Love Bracelets © Arms of Mercy NPC

Eternal Love Bracelets

The “Eternal Love” Bracelets for Louis consist of denim blue wooden beads with silver and diamante fillers.

Charm options: Love & Faith / Infinity / Joy.

To place an order, contact the agent in your area or shop online.

Eternal Love Bracelets © Arms of Mercy NPC
Eternal Love Bracelets

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