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The Architecture of Love: How Affirmations Shape a Child’s Brain

affirmations positive child development

It is a common saying in parenting circles: “The way we talk to our children becomes their inner voice.” But this isn’t just a sentimental sentiment—it is a neurobiological fact. MRI scans have shown that practicing self-affirmation activates the ventromedial prefrontal cortex, the specific part of the brain involved in self-related processing and positive valuation.

This means that consistent love and affirmations aren’t just “wishful thinking” or “spoiling” a child; they are active forms of brain-building. By choosing our words and actions carefully, we are literally training a child’s brain to view the “self” as valuable, resilient, and capable. This internal foundation is one of the single most massive predictors of long-term mental health and success.

Here is how consistent love and positive words change the trajectory of a child’s life across five key areas:

1. Building a “Safe Base”

Consistent love creates Secure Attachment. When a child feels unconditionally safe, their nervous system stays regulated. This “safety net” allows them to step out of survival mode and into “learning mode,” giving them the courage to explore the world and take healthy risks.

These affirmations reinforce that your love is a constant, regardless of their performance or behaviour.

  • “My love for you doesn’t change, even when you’re having a hard day.”
  • “You are safe here, and I am always on your team.”
  • “There is nothing you could do that would make me love you less.”
  • “I love watching you grow and learn.”

2. Rewiring for Resilience

Positive interactions lower cortisol and boost oxytocin. This chemical balance strengthens the brain’s ability to regulate emotions. Instead of being overwhelmed by stress, the child’s brain is wired to “bounce back” from setbacks more efficiently. Love literally makes them mentally tougher.

These affirmations help the brain to view challenges as opportunities rather than threats.

  • “You can do hard things.”
  • “Mistakes are just how our brains learn something new.”
  • “I love how you didn’t give up, even when that was tricky.”
  • “It’s okay to feel frustrated; let’s take a breath and try a different way.”

3. The Internal Script

Neural pathways for self-valuation are formed through repetition. Affirmations replace the “Inner Critic” with an “Inner Advocate.” When they face a challenge, their default thought becomes “I can figure this out,” rather than “I’m not good enough.” You are giving them the mental tools to navigate life’s challenges long after they leave your home.

These affirmations help form a positive internal script about their own capabilities.

  • “Your ideas matter.”
  • “You are a kind and thoughtful friend.”
  • “You are enough, exactly as you are right now.”
  • “I trust your judgment.”

4. Fostering Empathy and Boundaries

When we talk about “fostering empathy” and “modelling healthy boundaries,” we are looking at the social-emotional blueprint of a child.

Mirror neurons allow children to adopt the behaviours they observe. Research in developmental psychology shows that children don’t just learn how to act by being told – they learn by absorbing the relationship dynamics they experience every day. When you consistently offer love and validation, you are giving your child a first-hand experience of what it feels like to be understood.

It’s a common misconception that boundaries are mean or restrictive. In reality, boundaries are a form of love that provides the structure children need to feel safe.

By receiving empathy, they learn to give it. By experiencing healthy boundaries from you, they learn how to set their own and respect others’. You are providing them with the social blueprint for healthy adult relationships.

Children are the world’s greatest observers. If they see you using positive affirmations and staying calm during a conflict, they learn that disagreement doesn’t equal a lack of love.

“Empathy is the soil, and boundaries are the fence.”

Without empathy, the fence feels like a cage. Without boundaries, the soil washes away in the storm. By combining consistent love with clear limits, you aren’t just “managing behaviour” – you are raising a human who knows how to love themselves and respect the world around them.

These affirmations model how to respect themselves and others.

  • “It’s okay to say ‘no’ if you feel uncomfortable.”
  • “I’m proud of how you noticed your friend was sad and tried to help.”
  • “You have the right to your own space and your own feelings.”
  • “Being kind is a superpower, and you use it well.”

5. The Growth Factor

Think of Love as the Soil and Words as the Water. A child can survive without these, but they cannot thrive without them. Together, these two elements grow an adult who is not only successful on the outside but secure and whole on the inside.

The Lifelong Harvest

In the busy, often chaotic day-to-day of parenting, it can be easy to view our words and hugs as small gestures. However, as the science shows, these “small” moments are actually the foundational bricks of a child’s mental architecture. By providing consistent love and intentional affirmations, you are doing far more than making your child feel good in the moment; you are equipping them with a biological and psychological toolkit that will serve them for the rest of their lives.

You are giving them the resilience to handle hardship, the empathy to build deep connections, and the unshakeable belief that they are worthy of respect.

The Bottom Line: We may not be able to protect our children from every storm life sends their way, but by nurturing their “inner advocate” today, we ensure they have the internal strength to navigate those storms with confidence.

If you aren’t sure where to begin, start small. Choose one affirmation today—something as simple as, “You are a great problem solver” or “I love being your parent”—and watch how those words begin to take root.

Disclaimer: The information provided in this article is for educational and informational purposes only and is not intended as medical, psychological, or professional advice. While based on research in developmental psychology and neuroscience, every child is unique. If you have concerns about your child’s development or mental health, please consult a qualified healthcare professional or child psychologist.

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Black Friday vs. Giving Tuesday: Where Will Your Wallet Land?

What is Black Friday and Giving Tuesday?

Black Friday: The Ultimate Shopping Spree

Black Friday always falls on the day after Thanksgiving in the United States (the fourth Thursday of November). It has become a global phenomenon, kicking off the holiday shopping season with incredible deals and discounts.

While it can be tempting to join the crowds and hunt for bargains, online shopping offers a more convenient and safer way to participate in Black Friday. You can shop from the comfort of your home, avoiding the hustle and bustle of crowded stores.

Giving Tuesday: A Day of Giving Back

In the midst of the holiday shopping frenzy, Giving Tuesday encourages us to shift our focus from receiving to giving. This special day, held the Tuesday after Black Friday, is dedicated to charitable giving.

So, this holiday season, let’s make a conscious choice.

While Black Friday offers opportunities for personal gain, Giving Tuesday provides a chance to make a positive impact on the world. By supporting organizations like Arms of Mercy, you’re not just making a purchase; you’re making a difference. Let’s make this holiday season truly memorable by spreading kindness and compassion and experience the true joy of giving.

How You Can Make a Difference

Support Arms of Mercy NPC

Bracelets

At Arms of Mercy, we’re committed to our mission to extend a lifeline to those battling cancer, rare diseases, cerebral palsy, and other special needs. Instead of focusing solely on Black Friday deals, consider giving back to a worthy cause. Arms of Mercy is a non-profit charitable organisation, therefore we cannot afford to offer a Black Friday Sale, however, you can still support us. We have a selection of beautiful and unique handmade bracelets, t-shirts and more – all of which help to raise funds for our beneficiaries` medical care and expenses. Our items make for affordable gifts for your loved ones, for young and old!

Go to Online Store

Make a Donation online:
Your generous donation will help us continue our mission of providing essential support to those in need.

Donate online with Payfast

Make a Donation Direct/EFT: Please use the banking details below with your name and contact number as reference. If you are making a donation towards a specific child, please remember to include their name for reference. Any and all donations are very much appreciated.

Account Holder: Arms of Mercy NPC
Bank: Standard Bank
Account Type: Cheque Account
Account Number: 10114699702
Branch Code: 051001
Swift Code: SBZA ZA JJ
REF: Name & Cell Number / Child`s Name

Arms of Mercy is a registered NPC (2018/016801/08) and PBO 930076145.
Please contact us to request a tax deductible receipt when making a donation to our organisation.

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Mandela’s Legacy: Giving Hope, Healing Lives

Mandela's Legacy Giving Hope Healing Lives - Mandela Day 2025

Your Act of Service This Mandela Day, Transform a Child’s Future

Dear Compassionate Supporter,

On the 18th of July, the world unites to honor Nelson Mandela’s profound legacy of compassion and service. It’s a day to reflect on the power of collective action and to dedicate ourselves to making the world a better place. Even if you can’t join outdoor volunteer activities, you and your colleagues still have an easy, powerful opportunity to make a lasting difference in the work we do at Arms of Mercy.

This year, we invite you to embody Madiba’s spirit by extending your hand to the most vulnerable among us: children battling life-threatening illnesses and profound challenges.

At Arms of Mercy, we are a lifeline for courageous children facing conditions like cancer, rare diseases, cerebral palsy, and other special needs. We raise and donate funds to help pay for their ongoing medical expenses, including essential care, life-saving medical treatments and equipment, crucial support therapies, and emergency surgeries. In today’s economy, we find that so many families have nowhere else to turn.

MAKE A TANGIBLE IMPACT THIS MANDELA DAY

This year, our urgent focus is to help all beneficiaries under our wings by injecting each one’s Arms of Mercy savings fund with something extra for when the need arises, which can be at any moment. Illness doesn’t pause for circumstances, and neither can our support for these brave children. A donation of just R100 will go a long way. With your support, we can ensure these children have the chance at a healthier, more comfortable life, without the worry of where funds for medical bills will come from. Every contribution directly impacts a child’s future.

BE A PART OF MANDELA’S ENDURING LEGACY

Nelson Mandela taught us that “what counts in life is not the mere fact that we have lived. It is what difference we have made to the lives of others.”

To help out, simply donate by clicking on the Donate button below, or visit our campaign page on GivenGain by clicking here.

Donate via GivenGain

Want to do more as a team? Get a free branded, corporate fundraising page where you can all donate together! Visit the Mandela Day 2025 event page to register your team.

Thank you for embodying Mandela’s spirit and supporting Arms of Mercy in helping our precious children.

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March is Cerebral Palsy Awareness Month

Cerebral Palsy Awareness Month

Cerebral palsy is a movement disorder that can affect posture and many aspects of daily life. Cerebral palsy (CP) is caused by damage or abnormal development in parts of the brain that control movement. These events can happen before, during, or shortly after birth or in the first few years of life, when the brain is still developing. In many cases the exact cause is unknown.

Individuals with CP require long-term care with a team of therapists for ongoing physical therapy, occupational- and speech therapy, and developmental therapy among a list of others. Mobility aids and assistive devices can also be used to help increase independence for those living with cerebral palsy. There is currently no cure for CP, but the condition is manageable with proper treatment and continuous loving care.

Your donation makes the world of difference for a child in need. Click here to make a donation. REF: Cerebral Palsy.

National Cerebral Palsy Awareness Month is celebrated every year in March as an awareness campaign to express support for the ones suffering from Cerebral Palsy. Click here to learn more about Cerebral Palsy Types & Common Symptoms.

Support our CP Warriors!

>>> All Cerebral Palsy Items in Store

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28 February – Rare Disease Day

www.rarediseaseday.org

Rare Disease Day is observed every year on the 28th of February (or 29th in leap years, the rarest day of the year). The Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organisation partners, to provide an energy and focal point that enables rare diseases advocacy work to progress on local, national and international levels. Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity (just and fair inclusion) in social opportunity, healthcare, and access to diagnosis and therapies for those who are living with a rare disease.

A disease is considered “rare” when it affects fewer than 1 in 2000 people.

There are more than 7,000 rare diseases, of which approximately 95% have no treatment.

Rare diseases are present across the medical spectrum. Some are widely recognized by name, such as cystic fibrosis, while others are less known, such as cat eye syndrome. Most cancers (all but a few types) are rare. There are rare neurological and neuromuscular diseases, metabolic diseases, chromosomal disorders, skin diseases, bone and skeletal disorders, and rare diseases affecting the heart, blood, lungs, kidneys, and other body organs and systems.

Some of the problems people with rare diseases experience:
• Difficulty in obtaining an accurate diagnosis (this can take years, which can be critical for stopping or halting the progression of a disease),
• Limited treatment options,
• Little or no research being done on the disease,
• Difficulty finding physicians or treatment centers with experience for a particular disease,
• Paying for treatments that are generally more expensive than those for common diseases,
• Reimbursement issues related to private insurance, Medicare, and Medicaid,
• Difficulty accessing medical, social, or financial services or assistance because those making the decisions are not familiar with the disease,
• Feelings of isolation and of having been abandoned or “orphaned” by the health care system.

Rare Disease Day raises awareness for the 300 million people currently living with rare disease around the world who require immediate and urgent attention, and their families and carers.

Visit the official Rare Disease Day website to learn more and to see events happening near you.

Sources: www.rarediseaseday.org. ; Rare Disease Day FAQ 2019.

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Breast Cancer Signs & Symptoms

Breast cancer is the most common cancer in women of all races. According to the 2019 National Cancer Registry (NCR), the lifetime risk in South Africa is 1 in 27. Men do get breast cancer however, it is rare and accounts for only 1% of all breast cancers. It is a hundred times more common in women than in men.

The risk for breast cancer increases as women grow older, but many women under 40 are diagnosed with breast cancer. All women are at risk, and in particular women with a family history of breast cancer. Other factors that increase risk are: being overweight, being inactive, consuming alcohol, poor dietary habits, smoking and exposure to chemicals.

◾ Early detection can lead to effective treatment and a positive prognosis.
◾ Regular self-breast examination and regular mammograms are key to early detection.
◾ Presenting yourself early for treatment may result in more effective treatment, leading to a reduction in pain and suffering and a significant decrease in the loss of life.

Breast pain (mastalgia) is common and accounts for 45-70% of breast-related healthcare visits. To experience occasional breast pain is common, however, breasts don`t typically hurt. There are various causes of breast pain, also known as mastalgia – which is categorised as cyclical or non-cyclical. The 2 most common factors of breast pain are hormone fluctuation (puberty, pregnancy and menopause) and fibrocystic (lumpy) breasts. Other causes of breast pain also include breastfeeding, unhealthy diet, large breast size, a poorly fitted bra, pain from scar tissue after breast surgery, medications for heart disease antibiotics, antidepressants, hormone therapy, and an increase of epinephrine levels in the breast tissue due to smoking. Sometimes breast pain is caused by irritation of the chest, arms, or back muscles; which is common if you’ve participated in physical activities like raking, rowing, shoveling, and waterskiing. 

Breast Self-Examinations (BSE)

The Cancer Association of South Africa (CANSA) advocates that every woman should do monthly breast self-examinations (BSE) – at the same time every month 7-10 days following her menstrual cycle from age 20 – and to report any changes or concerns to a doctor or professional nurse practitioner without delay.

Regular monthly BSE should be seen as a method to raise awareness of breast cancer and taking responsibility for one’s own breast health rather than as a screening method for breast cancer.

Symptoms and Signs of Breast Cancer in Women

The following are changes that could occur due to breast cancer:

◾ A lump or thickening in an area of the breast.
◾ A change in the shape of the nipple, particularly if it turns in, sinks into the breast, or has an irregular shape.
◾ A blood-stained discharge from the nipple.
◾ A rash on a nipple or surrounding area.
◾ A swelling or lump in the armpit.
◾ Nipple tenderness or a lump or thickening in or near the breast or underarm area.
◾ A change in the skin texture or an enlargement of pores in the skin of the breast (some describe this as similar to an orange peel’s texture).
◾ Any unexplained change in the size or shape of the breast.
◾ Dimpling anywhere on the breast.
◾ Unexplained swelling of the breast (especially if on one side only).
◾ Unexplained shrinkage of the breast (especially if on one side only).
◾ Recent asymmetry of the breasts (Although it is common for women to have one breast that is slightly larger than the other, if the onset of asymmetry is recent, it should be checked).
◾ Nipple that is turned slightly inward or inverted.
◾ Skin of the breast, areola, or nipple that becomes scaly, red, or swollen or may have ridges or pitting resembling the skin of an orange.

These signs do not necessarily mean cancer. As many as 90% of breast masses are not cancerous. Inverted nipples, blood stained nipple discharge or a rash can all be due to other medical conditions. In the event of any changes to what is normal, one should consult a health professional. It is most likely to be a benign condition that can easily be treated. The health professional will refer you to a breast health clinic or medical specialist where the staff can provide reassurance or provide any necessary treatment.

Image Source: CANSA

CANSA, advocates a mammogram every year for all women from age 40 for purposes of non-symptomatic breast screening. CANSA further advocates that:

1. Women who are at risk and those that have had breast health problems in the past should consult their respective health professional to determine a schedule applicable to them.
2. Every woman with a close female relative diagnosed with breast cancer, should go for a mammogram 10 years earlier than the age at which the close relative was diagnosed with breast cancer.
3. Women aged 40 to 54 should have an annual mammogram.
4. Women 55 years and older should change to having a mammogram every 2 years – or have the choice to continue with an annual mammogram.
5. Screening should continue as long as a woman is in good health and is expected to live 10 years or longer.
6. Every woman should be informed of the known benefits, limitations, and potential harms linked to breast cancer screening by means of a mammogram.

Sources: https://cansa.org.za/breast-cancer/, https://cansa.org.za/men-and-breast-cancer/, https://cansa.org.za/files/2022/02/CANSA-Fact-Sheet-on-Breast-Cancer-in-Women-NCR-2019-web-January-2022.pdf, https://www.who.int/news-room/fact-sheets/detail/breast-cancer, https://www.gov.za/BreastCancerAwarenessMonth2022.

*All information in this post is published for general information and educational purposes only. Arms of Mercy NPC and the armsofmercy.org.za website do not offer any diagnosis or treatment, and will not be held liable for any adverse health effects, losses and/or damages whatsoever. Any action you take as a result of the information is at your own risk, and does not replace the advice of a qualified medical practitioner. Always consult with your medical healthcare practitioner.

October is Breast Cancer Awareness Month

October is Breast Cancer Awareness Month, an annual campaign to raise awareness about the impact of breast cancer. The Pink Month is when extra efforts are made to educate those concerned about the disease, including the early signs and symptoms associated with breast cancer.

Celebrate all the Survivors, encourage the Fighters and honour the Taken

We all know that one amazing woman. It might be your mother, sister, dear friend or even a colleague – a woman that you admire for her strength and courage, her faith and fighting spirit, or it might be someone who left her footprints in your heart after she lost her fight against breast cancer. Let`s show our Love and Support to ALL the brave ladies by wearing pink in October for Breast Cancer Awareness Month!

For October we have added some new merchandise to our catalog. Every item sold means there are more proceeds that can be donated towards the medical care, treatment, therapies and emergency surgeries of all our AOM children who desperately need funds on an ongoing basis. Your support truly goes a long way!

Related Post

Breast Pain Causes and When to Seek Help
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A World of Hope: Understanding and Supporting Childhood Cancer

In South Africa, an average of 800 to 1000 children are newly diagnosed with cancer each year. Childhood cancers share general symptoms with other illnesses; knowing the warning signs can be vital in early detection and treatment.

According to a 2014 report by the American Cancer Society, it is now estimated that one in 408 children worldwide will be diagnosed with cancer before the age of 15. It is estimated that currently less than half of children with cancer in South Africa are diagnosed, and many of those who are diagnosed are in advanced stage of illness. One of the reasons for this is a lack of awareness and knowledge in parts of the health system regarding the early warning signs of childhood cancer. – www.gov.za

It is important to know that cancer in children tend to be different from cancers in adults. The majority of them occur in the developing cells like blood, bone marrow, the kidneys and tissues of the nervous system.  The CANSA Childhood Cancer Awareness Programme aims to educate the public on the early warning signs.

Understanding and Supporting Childhood Cancer

Childhood cancer is a devastating reality that affects millions of families worldwide. Despite advancements in treatment, many children still face significant challenges in their fight against this disease. Childhood Cancer Awareness Month is an opportunity to raise awareness, promote research, and provide support to those affected.

Types of Childhood Cancer

The most common type of childhood cancer is leukemia, a cancer of the blood and bone marrow, affecting the production of white blood cells. The two main types of leukemia in children are: acute lymphoblastic leukemia (ALL) and acute myeloid leukemia (AML). Other common types of childhood cancer include:

  • Brain and spinal cord tumors
  • Neuroblastoma – cancer of the nerve cells (see signs, symptoms and treatment)
  • Wilms tumor – a type of kidney cancer
  • Lymphoma – cancer of the lymphatic system
  • Rhabdomyosarcoma – cancer of the muscles
  • Retinoblastoma – cancer of the eye

It’s important to note that while these are the most common types, childhood cancer can affect any part of the body. If you have concerns about your child’s health, it’s always best to consult with a healthcare professional.

childhood cancer awareness month-armsofmercy.org.za

Childhood cancer can have a profound and lasting impact on both the child and their family. Here some of the key areas affected:

Emotional Impact

The diagnosis of cancer can be overwhelming and cause fear and anxiety for both the child and their parents. Children may experience feelings of grief and loss as they cope with the changes brought about by their illness. Furthermore, the physical and emotional challenges of cancer can lead to feelings of depression and isolation.Treatments like chemotherapy and radiation can affect a child’s appearance, leading to body image issues.

Physical Impact

Many treatments for childhood cancer can cause physical pain and discomfort. The treatments can also lead to extreme fatigue, making it difficult for children to participate in normal activities. Cancer treatments can weaken a child’s immune system, making them more susceptible to infections. Some childhood cancer survivors may experience long-term health problems, such as heart disease, infertility, or secondary cancers.

Social Impact

Cancer treatments can disrupt education, making it difficult for the child to keep up with their peers. Children with cancer may experience social isolation due to their illness and the limitations it places on their activities. The cost of cancer treatment can be a significant financial burden for families.

Family Impact

Parents and siblings may experience high levels of stress and anxiety as they cope with the child’s illness. The illness can disrupt family roles and responsibilities, as parents may need to take time off work to care for their child. The stress of dealing with cancer can put tremendous strain on family relationships.

How You Can Help

September is Childhood Cancer Awareness Month! By raising awareness about the impact of childhood cancer, you can help to increase understanding, empathy, and support for children and their families. You can also encourage others to donate to Arms of Mercy NPC, and other organisations that support childhood cancer research and treatment.

Go Gold with our Childhood Cancer Awareness Bracelets
Created for our children who are fighting cancer – you can help contribute to their daily medical care, treatments, and the challenges they face even after their battles with cancer. We need your support to uplift them and make a positive difference!

Support our Backabuddy Fundraiser for Childhood Cancer Awareness Month

Create a Fundraiser at GivenGain in aid of Arms of Mercy NPC
You can raise funds as an individual and also as a team!

Spread Awareness on Social Media!
Create, comment, like and share posts on Facebook, Instagram etc. Raise more awareness and help us reach more people who haven`t heard about AOM yet!
Like & Follow us on Facebook
Follow us on Instagram.

Let’s work together to create a world where every child has the opportunity to thrive!

*All information in this post is published for general information and educational purposes only. Arms of Mercy NPC and the armsofmercy.org.za website do not offer any diagnosis or treatment, and will not be held liable for any adverse health effects, losses and/or damages whatsoever. Any action you take as a result of the information is at your own risk, and does not replace the advice of a qualified medical practitioner. Always consult with your medical healthcare practitioner.

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July is Mental Health Awareness Month

mental health awareness month

Mental health refers to a person’s condition with regard to their psychological, emotional, and social well-being. According to World Health Organization (WHO), it is a “state of well-being in which the individual realizes his or her abilities, can cope with the normal stresses of life, can work productively and fruitfully, and can contribute to his or her community”.

Mental Health: Challenges and Solutions

Many factors influence mental well-being. These can be personal, family-related, community-based, or even larger societal issues. While most people can bounce back from difficulties, those facing poverty, violence, disability, or inequality are more likely to experience mental health challenges.

The good news? Many mental health conditions are treatable and affordable. The bad news? Healthcare systems often lack the resources to provide proper treatment, and there’s a significant gap between need and access. Additionally, the quality of care can be inconsistent, and people with mental health conditions may face stigma and discrimination.

Mental health conditions are widespread. Roughly 1 in 5 adults experience a mental illness each year. These conditions can develop at any point in life, but often begin earlier on.

Prevention isn’t perfect, but help is available. There’s no guaranteed way to prevent mental illness. However, if you experience signs or symptoms, seeking professional help from your doctor or a mental health professional is crucial. Remember, most mental illnesses won’t improve by themselves and can worsen over time, leading to serious problems.

Types of Mental Illness

Mental health conditions come in many forms, each with unique symptoms. Here’s a breakdown of some major categories:

  • Mood disorders: These affect emotional well-being, like depression and bipolar disorder.
  • Eating disorders: These involve unhealthy eating habits and distorted body image, such as anorexia nervosa.
  • Anxiety disorders: These cause excessive worry and fear, including generalized anxiety disorder and phobias.
  • Personality disorders: These involve inflexible and long-lasting personality traits that can cause problems in relationships, like borderline personality disorder.
  • Substance use disorders: These involve problematic use of drugs or alcohol, leading to addiction.
  • Psychotic disorders: These can cause hallucinations or a detachment from reality, like schizophrenia.
  • Obsessive-compulsive disorder (OCD): This involves unwanted thoughts and urges that lead to repetitive behaviors.
  • Trauma-related disorders: These develop after experiencing a traumatic event, like post-traumatic stress disorder (PTSD).

Beyond these common categories, there are less frequent conditions like dissociative disorders (disruptions in memory or identity), stress response syndrome, and tic disorders (involuntary movements or sounds).

Signs of Mental Illness

Many people experience mental health concerns from time to time, however, a mental health concern becomes a mental illness when the ongoing signs and symptoms cause frequent stress and affect the person’s ability to function.

  • withdrawing from people, friends and activities
  • feeling sad or down
  • lack of motivation
  • unreasonable anger or irritability, hostility or violence
  • extreme mood swings and changes in highs and lows
  • sex drive changes
  • obsession with a topic like religion or death
  • poor concentration and memory, not being able to follow a conversation
  • unusual or illogical thoughts
  • hearing voices that no one else can hear
  • decreased or increased sleep
  • increased or low appetite, preoccupied with control over food, calories, and excessive exercise
  • alcohol and drug use/abuse
  • letting go of personal hygiene and other responsibilities
  • not doing well at school or at work
  • suicidal thoughts or feeling that life is not worth living

MENTAL HEALTH MATTERS
Contact The South African Depression and Anxiety Group.
Phone 0800 567 567
www.sadag.org

Suicide Awareness

Looking out for our friends and loved ones is an important part of preventing suicides. Easy access to mental health treatment can be key to saving the life of someone who struggles with suicidal thoughts. Seeing them go through the pain and struggle to cope with their thoughts and feelings can be hard, and approaching and encouraging them to seek therapy can be a tricky situation. Learn more about suicide risk factors, warning signs, and prevention.

Visit the links below for more information on mental illness.

Sources: https://www.who.int, https://en.wikipedia.org/wiki/Mental_health, https://www.healthdirect.gov.au/mental-illness,
https://www.mayoclinic.org/diseases-conditions/mental-illness/symptoms-causes/syc-20374968,
https://www.webmd.com/mental-health/mental-health-types-illness.

*All information in this post is published for general information and educational purposes only. Arms of Mercy NPC and the armsofmercy.org.za website do not offer any diagnosis or treatment, and will not be held liable for any adverse health effects, losses and/or damages whatsoever. Any action you take as a result of the information is at your own risk, and does not replace the advice of a qualified medical practitioner. Always consult with your medical healthcare practitioner.

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May is Brain Cancer Awareness Month

brain cancer awareness month

What is Brain Cancer?

Our bodies have billions of cells which grow and multiply to help support the body’s natural functions and processes, like repairing damage.

If the cells in the brain start growing in an abnormal way, instead of repairing the damage, they can inadvertently cause it.

A primary brain tumour can occur when these abnormal brain cells grow and multiply, contained within the brain. If the cells then grow rapidly and spread within the brain, cancerous tumours are formed and will result in a brain cancer diagnosis.

If the cells go wrong elsewhere in the body first, say, the lungs, and those cells spread to the brain, this is known as secondary brain cancer or, metastases. Learn more

Brain tumors in children

Tumors can occur at any age, but in general, brain tumors in children are very rare.

Astrocytomas are usually noncancerous, slow-growing tumors. They commonly develop in children ages 5 to 8. Also called low-grade gliomas, these are the most common brain tumors in children.

Medulloblastomas are the most common type of childhood brain cancer. Most medulloblastomas occur before age 10.

Ependymomas are a type of childhood brain tumor that can be benign (noncancerous) or malignant (cancerous). The location and type of ependymoma determine the type of therapy needed to control the tumor.

Brainstem gliomas are very rare tumors that occur almost only in children. The average age at which they develop is about 6. The tumor may grow very large before causing symptoms. Learn more

Sources: thebraintumourcharity.org, medlineplus.gov

~ May is Brain Cancer Awareness Month ~

Wear grey to show your support for all the brave warriors and their loved ones!

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SunSmart Skin Cancer Awareness Month: 1 December – 31 January

sunsmart skin cancer awareness month

Skin cancer awareness month in South Africa runs from 1 December to 31 January.

It`s not “just skin cancer” when it`s the largest organ of your body.
Use protection against the sun!

The 3 major types of skin cancer are: basal cell carcinoma, squamous cell carcinoma and melanoma.

Even though this common form of cancer develops on skin exposed to the sun (scalp, face, lips, ears, neck, chest, arms and hands, and legs), it can also occur on areas of the skin that are not normally exposed to sunlight (palms, beneath fingernails and toenails, and the genital area).

The two main categories of skin cancer are melanoma, and non-melanoma. These cancerous growths develop when unrepaired DNA damage to skin cells (most often caused by ultraviolet radiation from the sun or tanning beds) triggers mutations (genetic defects) that lead the skin cells to multiply rapidly and form malignant tumours. These tumours originate in the pigment-producing melanocytes in the basal layer of the epidermis.

Visit The Cancer Association of South Africa`s website and learn how to
Be SunSmart Everywhere!

Skin cancer is the most common cancer worldwide and SA has one of the highest monitored ultra violet (UV) levels in the world, resulting in one of the highest skin cancer rates globally.

“South Africa has the 2nd highest incidence of skin cancer in the world after Australia, and in particular one of the highest incidences of melanoma worldwide, as far as Caucasians are concerned. At least 20 000 South Africans are diagnosed annually with non-melanoma skin cancers, and a approximately 1 500 are diagnosed with melanoma.” – cansa.org.za

Know the signs and symptoms of melanoma skin cancer.

You can reduce your risk by limiting or avoiding exposure to ultraviolet (UV) radiation. Monitor your skin for any irregularities or suspicious changes to help detect skin cancer at its earliest stages to increase your chance for successful treatment.

Protect Yourself

Avoid activities and sun exposure
Wear protective clothing and sunscreen
Avoid sunlamps and tanning beds
Be aware of sun-sensitizing medications
Check your skin regularly

Sources: armsofmercy.org.za/blog/melanoma-skin-cancer-signs-symptoms, cansa.org.za/be-sunsmart, mayoclinic.org/diseases-conditions/skin-cancer/symptoms-causes/syc-20377605,

*All information in this post is published for general information and educational purposes only. Arms of Mercy NPC and the armsofmercy.org.za website do not offer any diagnosis or treatment, and will not be held liable for any adverse health effects, losses and/or damages whatsoever. Any action you take as a result of the information is at your own risk, and does not replace the advice of a qualified medical practitioner. Always consult with your medical healthcare practitioner.

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September is Childhood Cancer Awareness Month – Warning Signs and Types of Childhood Cancer

In South Africa, an average of 800 to 1000 children are newly diagnosed with cancer each year. Childhood cancers share general symptoms with other illnesses; knowing the warning signs can be vital in early detection and treatment.

It is important to know that cancer in children tend to be different from cancers in adults. The majority of them occur in the developing cells like blood, bone marrow, the kidneys and tissues of the nervous system.  The CANSA Childhood Cancer Awareness Programme aims to educate the public on the early warning signs. In South Africa, the St Siluan Warning Signs for Childhood Cancer are used.

St Siluan Warning Signs Childhood Cancer:

  • S – Seek medical help early for ongoing symptoms
  • I – White spot in the eye, new squint, sudden blindness or bulging eyeball
  • L – Lump on the stomach, pelvis, head, arms, legs, testicle or glands
  • U – Unexplained fever present for over two weeks, weight loss, fatigue, pale appearance, easy bruising & bleeding
  • A – Aching bones, joints, back and easy fractures
  • N – Neurological signs, a change in walk, balance or speech, regression, continuous headaches with / without vomiting & enlarged head

Types of Childhood Cancer

According to the recent South African Children’s Cancer Study Group (SACCSG) registry statistics, for 2009 to 2013, the five foremost types of childhood cancers in South Africa are:

Leukaemia
Lymphoma (tumours that begin in the lymph glands)
Brain tumours
Nephroblastomas or Wilms tumours – cancer of the kidneys
Soft tissue sarcomas (tumours that begin in the connective tissue)

Should you have any concerns about your child showing symptoms, you are advised by CANSA to seek medical help immediately. Click for fact sheets on all types of childhood cancer.

Info-graphic © CANSA.

Source: The Cancer Association of South Africa – www.cansa.org.za

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National Child Protection Week 2023

National Child Protection Week 2023

Child Protection Week is from 28 May to 4 June 2023 in South Africa.

We all play a vital role in creating a safe and secure environment for ALL our children – and it is EVERY citizen’s duty to protect them from violence, exploitation and abuse. It is not just a basic value, but also an obligation clearly set out in Article 28 of the South African Constitution.

What is Child Maltreatment

Sexual Abuse. Physical Abuse. Emotional Abuse. Neglect. Exploitation.

Child maltreatment refers to various types of violence that are perpetrated against children. The World Health Organisation (WHO) defines child maltreatment as: “All forms of physical and/or emotional ill-treatment, sexual abuse, neglect or negligent treatment or commercial or other exploitation, resulting in actual or potential harm to the child’s health, survival, development or dignity in the context of a relationship of responsibility, trust or power.”

Visit saferspaces.org.za for a comprehensive article on child maltreatment in South Africa.

Signs of Child Abuse or Maltreatment

Child abuse can take many different forms, here are some things to look out for to help identify the signs of child abuse or maltreatment:

  • Signs of physical abuse
    • Unexplained burns, cuts, bruises, or welts in the shape of an object.
    • Bite marks.
    • Anti-social behaviour.
    • Problems in school.
    • Fear of adults.
    • Suicide attempts.
       
  • Signs of emotional abuse
    • Apathy.
    • Depression.
    • Hostility or stress.
    • Lack of concentration.
    • Eating disorders.
    • Headaches, nausea, abdominal pains.
    • Suicide attempts.
       
  • Signs of sexual abuse
    • Inappropriate interest or knowledge of sexual acts or knowledge of sexual terminology for child’s age.
    • Nightmares and bed wetting.
    • Drastic changes in appetite.
    • Overcompliance or excessive aggression.
    • Fear of a particular person or family member.
    • Depression and suicide attempts.
    • Self-mutilating behaviour (self-inflicted cuts, sores and/or burns).
       
  • Signs of neglect
    • Unsuitable clothing for weather.
    • Dirty or unbathed.
    • Extreme hunger.
    • Apparent lack of supervision.
    • Abandonment.
    • Insufficient safety precautions in the home.
    • Unattended medical, dental or educational needs.
       
  • Signs of exploitation
    • All forms of slavery or practices similar to slavery, including debt bondage or forced marriage.
    • Sexual exploitation.
    • Servitude.
    • Forced labour or services.
    • Removal of organs.

Source: westerncape.gov.za

Childline South Africa: 0800 055 555
Child Welfare South Africa: 0861 4 CHILD (24453) / 011 452-4110 / info@childwelfaresa.org.za

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August is SMA Awareness Month

Spinal muscular atrophy (SMA) is a rare genetic disease that makes the muscles weaker and causes problems with movement. Individuals with SMA have difficulty performing basic functions of life, like breathing and swallowing. They also have difficulty sitting up straight, crawling and walking. Other symptoms include weak arms and legs, muscle tremors, and joint and bone problems. This condition gets worse over time, but there are treatments available to help manage the symptoms. It is important to note that SMA does not affect a person’s ability to think, to learn, or to build relationships.

“SMA is caused by a mutation in the survival motor neuron gene 1 (SMN1). In a healthy person, this gene produces a protein that is critical to the function of the nerves that control our muscles. Individuals with SMA don’t produce survival motor neuron (SMN) protein at high enough levels. Without this protein, those nerve cells cannot properly function and eventually die, leading to debilitating and sometimes fatal muscle weakness.” – curesma.org

Source: signsofsma.com

Four primary types of SMA, based on the age of onset:

SMA Type 1 (Infantile-onset SMA or Werdnig-Hoffman Disease):
This is the most severe kind of SMA and strikes infants within the first 6 months of life. Some children with SMA type 1 will die before their second birthday, but aggressive therapy is improving the outlook for these children.

SMA Type 2 (Intermediate SMA):
When a child develops spinal muscular atrophy between six and 18 months, the condition is classified as type 2. The child may be able to sit up, but respiratory challenges can shorten their lives as the disease progresses.

SMA Type 3 (Juvenile SMA, Kugelberg Welander Syndrome):
Type 3 SMA emerges in children 18 months old or older and can become evident as late as in the teenage years. Muscle weakness is present, but most patients can walk and stand for limited periods, particularly early in the course of the illness.

SMA Type 4 (Adult SMA):
In some people, SMA develops in adulthood. Type 4 SMA is rarely severe enough to have impact on the patient’s lifespan.

SMA not linked to chromosome 5:
Some forms of SMA are not due to SMN1 gene mutations and SMN protein deficiency. These forms, including Kennedy’s disease, vary in severity, and some may involve muscles farther away from the center of the body than those associated with SMA types 1 through 4.

– hopkinsmedicine.org

There is currently no cure for SMA and no medications for treatment. Symptoms are managed to improve quality of life which may include the use of a wheelchair, braces, and other support devices; assistance with ventilation; physical- and occupational therapy as well as rehabilitation.

For a more information about SMA, diagnosis, treatments please visit the following article sources:
www.nhs.uk, hopkinsmedicine.org, curesma.org, signsofsma.com.

August is SMA Awareness Month!

Wearing an Awareness Bracelet creates an opportunity to start a conversation and share information about a particular cause or disease. One conversation can have ripple effects and may ultimately improve early diagnosis, access to services, increase funding for research, and help reduce feelings of isolation as well as discrimination that so many individuals with rare diseases and special needs face on a daily basis.

Shop SMA Awareness Bracelets Online

SMA Awareness Bracelets © Arms of Mercy NPC
SMA Awareness Bracelets

Kerry Walsh
Kerry Walsh

Raising SMA Awareness with Kerry Walsh

My name is Kerry Walsh, I was born on the 22nd of October 1997 in a set of fraternal twins. Around the age of one, my parents had realized that I wasn’t developing like my sister was. I was taken to the doctor where I was diagnosed with low muscle tone. We tried months of physical therapy but unfortunately, there was no improvement. I was then sent for a muscle biopsy in my neck. They discovered that I had SMA (Spinal Muscular Atrophy). I was given the life expectancy of 5 years old. My parents were told to take me home and enjoy the time we had… Continue reading.

*All information in this post is published for general information and educational purposes only. Arms of Mercy NPC and the armsofmercy.org.za website do not offer any diagnosis or treatment, and will not be held liable for any adverse health effects, losses and/or damages whatsoever. Any action you take as a result of the information is at your own risk, and does not replace the advice of a qualified medical practitioner. Always consult with your medical healthcare practitioner.

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May is Prader-Willi Syndrome Awareness Month

May is Prader-Willi Syndrome Awareness Month

Prader-Willi Syndrome (PWS) is a rare genetic multisystem neurodevelopmental disorder that affects a part of the brain called the hypothalamus. The hypothalamus is a gland in your brain which is responsible for regulation of all the systems in the body and control of hunger and thirst, temperature regulation, pain and stimulation hormone production amongst others. The disorder results in a number of physical, mental and behavioral problems.

PWS is caused by a lack of active genetic material in a specific region of chromosome 15 (15q11-q13). Individuals normally inherit one copy of chromosome 15 from their mother and another one from their father. The genes in the PWS region are normally only active on the chromosome that came from the father. There are 3 main molecular mechanisms that result in PWS: paternal deletion, maternal UPD 15, and imprinting defects.

A clear explanation of PWS symptoms, causes, diagnosis, genetics, treatments & research can be found on the Foundation for Prader-Willi Syndrome Research website. Watch the video below for a brief overview.

PWS was first described by Swiss doctors Andrea Prader, Alexis Labhart, and Heinrich Willi in 1956, based on the clinical characteristics of 9 children they examined. The common characteristics defined in the initial report included small hands and feet, small stature, very low lean body mass, early-onset childhood obesity, weak muscles at birth, insatiable hunger, extreme obesity, and intellectual disability.

PWS occurs in approximately 1 in 15,000 births. It affects both females and males of all races and ethnicities with equal frequency. Symptoms and severity may vary from one person to another. The symptoms also change over time in individuals with PWS, and a detailed understanding of the nutritional stages of PWS has been published. 

PWS is recognized as the most common genetic cause of life-threatening childhood obesity. There is no cure for Prader-Willi syndrome but many patients will benefit from a supervised diet, and some symptoms can be treated with hormone therapy. Other treatments include feeding therapy, physical therapy, occupational therapy, strict food supervision, exercise program, and counseling. Scientists are actively studying the normal role of the genetic sequences in the PWS region and how their loss affects the hypothalamus and other systems in the body.

Milan Dale

May is Prader-Willi Syndrome Awareness Month

Individuals, families, communities, schools and workplaces, various organisations, Associations and Foundations around the globe come together in May to raise awareness of Prader-Willi Syndrome, and also to raise funds to provide support and fund important research into this complex and life-threatening condition. The official awareness colour for Prader-Willi Syndrome is ORANGE as it had been previously used as the awareness colour for hunger.

Display your support by wearing orange in May and help raise awareness for PWS!

Prader-Willi Syndrome Awareness Bracelet
Prader-Willi Syndrome Awareness Bracelet – Shop Online

Sources: rarediseases.org, fpwr.org, pwsavic.org.au, webmd.com, wikipedia.org.

*All information in this post is published for general information and educational purposes only. Arms of Mercy NPC and the armsofmercy.org.za website do not offer any diagnosis or treatment, and will not be held liable for any adverse health effects, losses and/or damages whatsoever. Any action you take as a result of the information is at your own risk, and does not replace the advice of a qualified medical practitioner. Always consult with your medical healthcare practitioner.

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What is Cystic Fibrosis?

Cystic Fibrosis

Cystic Fibrosis (CF) is an inherited life-threatening disorder that damages the lungs. It is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. It also causes severe damage to the digestive system and other organs in the body. CF hinders the release of digestive enzymes from the pancreas, which triggers malnutrition and causes lung disease that is eventually fatal and produces high levels of salt in sweat that can be life-threatening.

CF is characterized by abnormalities affecting certain glands (exocrine) of the body, especially those that produce mucus. Saliva and sweat glands may also be affected. Exocrine glands secrete substances through ducts, either internally (e.g., glands in the lungs) or externally (e.g., sweat glands). In CF, these secretions become abnormally thick and can clog up vital areas of the body causing inflammation, obstruction and infection.

Cystic Fibrosis
Figure A shows the organs that cystic fibrosis can affect. Figure B shows a cross-section of a normal airway. Figure C shows an airway with cystic fibrosis. The widened airway is blocked by thick, sticky mucus that contains blood and bacteria. Source: National Heart Lung and Blood Institute (NIH).

Cystic fibrosis affects the cells that produce mucus, sweat and digestive juices. It causes these fluids to become thick and sticky. They then plug up tubes, ducts and passageways. See how the lungs work normally and how cystic fibrosis can affect the lungs over time in this video by the Cystic Fibrosis Foundation.

CF is a complex disease. The types of symptoms and the severity can differ widely from one person to the other. Many different factors can affect a person’s health and the course the disease runs, including the person`s age at the time of diagnosis. While the majority of people are diagnosed with CF by the age of 2, some are diagnosed as adults.

Symptoms of Cystic fibrosis can include the following:

  • Persistent coughing, at times with phlegm
  • Frequent lung infections including pneumonia or bronchitis
  • Shortness of breath / Wheezing 
  • Chronic sinus infections
  • Nasal polyps
  • Very salty-tasting skin
  • Poor growth or weight gain in spite of a good appetite
  • Frequent greasy, bulky stools or difficulty with bowel movements
  • Clubbing or enlargement of the fingertips and toes
  • Rectal prolapse
  • Male infertility

The disorder was first recognized in as a specific disease by Dorothy Andersen in 1938, with descriptions that fit the condition occurring at least as far back as 1595. The name “cystic fibrosis” refers to the characteristic fibrosis and cysts that form within the pancreas.

Although technically a rare disease, CF is ranked as one of the most widespread life-shortening genetic diseases. It is most common among nations in the Western world, and occurs predominantly among Caucasians – about one in 40 carry the so-called F508del mutation. Two copies of the mutation, one inherited from the mother and the other from the father, cause the disease, while inheriting just a single copy cause no symptoms, and makes the person a “carrier.”

While significant progress has been made in treating the disease, there is still no cure. Treatment depends upon the stage of the disease and the specific organs that are involved. Treatment is geared toward reducing the thickness and amount of mucus in the airways, preventing infections, preventing blockage of the intestines and ensuring the proper intake of vitamins and nutrients.

May is Cystic Fibrosis Awareness Month – CF Genes Day 2022

The South Africa Cystic Fibrosis Association (SACFA) is a Non-Profit Organisation, and as such is the primary cystic fibrosis support group and driver of advocacy for the treatment of cystic fibrosis in South Africa. Their objectives include communicating with the CF community, raising public awareness and promoting medical advancements. Fundraising is essential to sustain these objectives.

Join CF Genes Day on 25 May 2022! This event aims to create public awareness of cystic fibrosis in South Africa and helps raise funds for necessary medical equipment. In order to take part, each person needs to have a sticker and wear jeans. Individuals, groups, schools, and companies are encouraged to get involved, the proceeds raised will be used to purchase medical equipment and help spread awareness of Cystic Fibrosis in South Africa. See details here.

Sources: www.cff.org, rarediseases.org, wikipedia.org, theconversation.com, sacfa.org.za.

*All information in this post is published for general information and educational purposes only. Arms of Mercy NPC and the armsofmercy.org.za website do not offer any diagnosis or treatment, and will not be held liable for any adverse health effects, losses and/or damages whatsoever. Any action you take as a result of the information is at your own risk, and does not replace the advice of a qualified medical practitioner. Always consult with your medical healthcare practitioner.

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What is Mowat-Wilson Syndrome?

mowat-wilson syndrome

Mowat-Wilson Syndrome (MWS) is a rare genetic disorder that may be apparent at birth or later in childhood. It is caused by an abnormality in the ZEB2 gene that is usually the result of a new genetic change (mutation) in the affected person. MWS almost always occurs as a new mutation. This means that in nearly all cases, the gene mutation has occurred at the time of formation of the egg or sperm for that child only, and no other member of the family will be affected. It is usually not inherited from, or “carried” by, a healthy parent. In a very small number of families, more than one child has been affected with MWS.

One rare finding is lack of a spleen, an organ that helps to fight certain types of infections. All individuals with MWS should be checked at the time of diagnosis to see if they have a spleen. This can be done through an ultrasound of the abdomen. Blood testing can sometimes also suggest that the spleen is absent.

MWS affects both males and females, and is estimated to occur in 1 in 50,000-100,000 births. MWS has been described in many different countries and ethnic groups worldwide.

MWS is characterized by distinctive facial features, intellectual disability, and seizures. Other congenital anomalies do occur in some individuals and can include a gastrointestinal disease known as Hirschsprung disease (40-50% of individuals) in which a narrowing of a portion of the colon is present, heart defects, eye defects, kidney abnormalities, male genital abnormalities, short stature, and absence of the area of the brain which connects the two cerebral hemispheres (agenesis of the corpus callosum).

Mowat-Wilson Syndrome, clinical features of Patient 1 at age: (A) 1 year and 6 months; (B-C) 5 years; (D-E) 13 years and 8 months; (F-G) 18 years. Source: Garavelli L et al, CC BY 2.0, via Wikimedia Commons

Children with MWS have a square-shaped face with widely spaced and deep-set eyes. They also have a broad nasal bridge with a rounded nasal tip; a prominent and pointed chin; large, flaring eyebrows; and uplifted earlobes with a dimple in the middle. These facial features become more distinctive with age. Adults with MWS have an elongated face with heavy eyebrows and a pronounced chin and jaw. Affected people tend to have a smiling, open-mouthed expression, and they typically have friendly and happy personalities.

Less commonly, this condition also affects the eyes, teeth, hands, and skin coloring (pigmentation). Although many different medical issues have been associated with MWS, not every individual has all of the features.

MWS is often associated with an unusually small head (microcephaly), structural brain abnormalities, and intellectual disability ranging from moderate to severe. Speech is absent or severely impaired, and affected people may learn to speak only a few words. Many people with this condition can understand others’ speech, however, and some use sign language to communicate. If speech develops, it is delayed until mid-childhood or later. Children with MWS also have delayed development of motor skills such as sitting, standing, and walking.

There is no cure for this syndrome. Treatment is supportive and symptomatic. All children with Mowat–Wilson syndrome required early intervention with speech therapy, occupational therapy and physical therapy

Mowat-Wilson Syndrome Awareness Bracelet © Arms of Mercy NPC
Mowat-Wilson Syndrome Awareness Bracelet

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Sources: rarediseases.org, mowat-wilson.org , medlineplus.gov, wikipedia.org.

*All information in this post is published for general information and educational purposes only. Arms of Mercy NPC and the armsofmercy.org.za website do not offer any diagnosis or treatment, and will not be held liable for any adverse health effects, losses and/or damages whatsoever. Any action you take as a result of the information is at your own risk, and does not replace the advice of a qualified medical practitioner. Always consult with your medical healthcare practitioner.

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23 February – Noonan Syndrome Awareness Day

noonan syndrome awareness day

February is Noonan Syndrome Awareness Month, and 23 February is Noonan Syndrome Awareness Day.

Wearing an Awareness Bracelet creates an opportunity to start a conversation and share information about a particular cause or disease. One conversation can have ripple effects and may ultimately improve early diagnosis, access to services, increase funding for research, and help reduce feelings of isolation as well as discrimination that so many individuals with rare diseases face on a daily basis. Shop Noonan Syndrome Awareness Bracelets.

Noonan Syndrome Awareness Bracelets © Arms of Mercy NPC
Noonan Syndrome Awareness Bracelets

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What is Noonan Syndrome?

Noonan syndrome (NS) is a variably expressed, multi-system genetic disorder that is present in about 1 in 1,000 – 2,500 births. People with NS may experience bleeding issues, congenital heart defects including hypertrophic cardiomyopathy and/or pulmonary valve stenosis, lymphatic abnormalities, small stature/growth issues, feeding and gastrointestinal issues, failure to thrive, hypertelorism, learning disorders, autism, unexplained chronic pain, chiari malformation, hypotonia, ptosis, skeletal malformations, laryngomalacia, tracheomalacia, opthamology issues, orthopaedic issues, oncology issues and much, much more. Because of the variability in presentation and the need for multidisciplinary care, it is essential that the condition be identified and managed comprehensively.

NS is caused by a genetic mutation and is acquired when a child inherits a copy of an affected gene from a parent (dominant inheritance). In many individuals who have NS, the altered gene happens for the first time in them, and neither of the parents has Noonan syndrome (this is called a de novo mutation). Because some cases of NS occur spontaneously, there is no known way to prevent it. NS can be detected with molecular genetic testing.

Management of Noonan syndrome focuses on controlling the disorder’s symptoms and complications.

The signs and symptoms of Noonan Syndrome vary greatly in range and severity from person to person. Characteristics may be related to the specific gene containing the mutation.

Symptoms of Noonan Syndrome

The symptoms of Noonan syndrome may include the following:

A characteristic facial appearance:
The Head may appear large with a prominent forehead and a low hairline at the back of the head.
Facial features may appear coarse, but appear sharper with age. The face may appear droopy and expressionless.
Eyes are wide-set and down-slanting with droopy lids. Irises are pale blue or green.
Ears are low-set and rotated backward.
The Nose is depressed at the top, with a wide base and bulbous tip.
The Mouth has a deep groove between the nose and mouth and wide peaks in the upper lip. The crease that runs from the edge of the nose to the corner of the mouth becomes deeply grooved with age. Teeth may be crooked, the inside roof of the mouth (palate) may be highly arched and the lower jaw may be small.
Skin may appear thin and transparent with age.

Approximately 50% – 70% of those with NS have short stature.
Feeding issues.
Musculoskeletal issues.
Breathing issues.
Heart defect present at birth (congenital heart defect).
A broad or webbed neck.
Minor eye problems such as strabismus in up to 95 percent of individuals.
Bleeding problems such as a history of abnormal bleeding or bruising.
Developmental delay of varying degrees, but usually mild.
Genital and kidney conditions.
Learning disabilities.
Hearing problems.
Lymphatic conditions.
Skin conditions.

Learn more about symptoms, causes, complications.

Treatment

Treatment is based on the individual`s particular symptoms.

  • Heart problems are followed on a regular basis, and are treated in the same way as they are for those in the general population.
  • Bleeding problems may have a variety of causes and are treated accordingly.
  • Growth problems may be treated with growth hormone treatment.
  • Early intervention programs are used to help with developmental disabilities, when present.
Description: A 12-year-old female with Noonan Syndrome. Typical webbed neck. Double structural curve with rib deformity.
By Konstantinos C Soultanis, Alexandros H Payatakes, Vasilios T Chouliaras, Georgios C Mandellos, Nikolaos E Pyrovolou, Fani M Pliarchopoulou and Panayotis N Soucacos – Rare causes of scoliosis and spine deformity: experience and particular features, CC BY 2.0, commons.wikimedia.org

Watch: A Conversation with Dr. Bruce Gelb, Director of the Mindich Child Health and Development Institute at Mt. Sinai Hospital. An expert in Noonan syndrome, Dr. Gelb has studied the genetic origins of this disease to understand its pathogenesis. Noonan and related syndromes result from mutations in several genes that encode proteins that cells use to signal from the outer membrane to the nucleus. Dr. Gelb and colleagues examine whether stem cells generated from cultured skin cells malfunction, leading to developmental disorders, and whether it is possible to coax cellular development to function normally.

Sources: teamnoonan.org , rarediseases.org , mayoclinic.org , genome.gov.

*All information in this post is published for general information and educational purposes only. Arms of Mercy NPC and the armsofmercy.org.za website do not offer any diagnosis or treatment, and will not be held liable for any adverse health effects, losses and/or damages whatsoever. Any action you take as a result of the information is at your own risk, and does not replace the advice of a qualified medical practitioner. Always consult with your medical healthcare practitioner.

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7–11 February 2022 – Feeding Tube Awareness Week

The mission of Feeding Tube Awareness Week is to promote the positive benefits of feeding tubes as life-saving medical interventions. The week also serves to educate the broader public about the medical reasons that children and adults are tube fed, the challenges that families face, and day-to-day life with tube feeding. Feeding Tube Awareness Week® connects families, by showing how many other families are going through similar things, and making people feel less alone.  

The beginning of February was selected because of it’s proximity to Valentine’s Day since we love our tubes. It can be challenging to have a lot of negativity surrounding the medical device that is keeping you, your child, or your loved one alive. This week, in particular, is an opportunity to embrace the positives and be thankful that it helps people to live, grow and thrive.

– feedingtubeawarenessweek.org

A feeding tube is a medical device that is used to provide nutrition to people who cannot obtain nutrition by mouth, are unable to swallow safely, or need nutritional supplementation. Placement may be temporary for the treatment of acute conditions or lifelong in the case of chronic disabilities.

There are dozens of conditions that may require tube feeding. The more common conditions that necessitate feeding tubes include prematurity, malnutrition, neurologic and neuromuscular disorders, inability to swallow, anatomical and post-surgical malformations of the mouth and esophagus, cancer, Sanfilippo syndrome, and digestive disorders.

A feeding tube can help you maintain adequate nutrition when an advanced gastrointestinal condition makes it difficult to take food by mouth. This can happen when you have:

Crohn’s disease (in severe cases)
Gastrointestinal cancer
Gastrointestinal complications due to trauma
Intestinal failure
Bowel obstruction
Microscopic colitis
Narrowing in your esophagus or digestive tract (stricture)
Short bowel syndrome
Ulcerative colitis

Feeding tubes are used widely in children with excellent success for a wide variety of conditions. Some children use them temporarily until they are able to eat on their own, while other children require them longterm. Some children only use feeding tubes to supplement their oral diet, while others rely on them exclusively.

The most common types of tubes include those placed through the nose, including nasogastric, nasoduodenal, and nasojejunal tubes, and those placed directly into the abdomen, such as a gastrostomy, gastrojejunostomy, or jejunostomy feeding tube.

Enteral nutrition is liquid nutrition that is delivered directly into the stomach or small intestine via a feeding tube. Enteral nutrition is recommended when a person cannot take in enough nutrition by mouth or if there is a medical problem involving the upper gastrointestinal tract.

Visit the Oley Foundation for more tools and resources on tube feeding and nutrition.

Sources: feedingtubeawarenessweek.org , wikipedia.org , nutritionnews.abbott , oley.org , stanfordhealthcare.org.

*All information in this post is published for general information and educational purposes only. Arms of Mercy NPC and the armsofmercy.org.za website do not offer any diagnosis or treatment, and will not be held liable for any adverse health effects, losses and/or damages whatsoever. Any action you take as a result of the information is at your own risk, and does not replace the advice of a qualified medical practitioner. Always consult with your medical healthcare practitioner.

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4 February – World Cancer Day

world cancer day

World Cancer Day (WCD) is held annually on the 4th of February. While we live in a time of amazing advancements in cancer prevention, diagnosis and treatment, many of those who seek cancer care face obstacles around every corner. 

WCD aims to raise awareness and to re-imagine a world where millions of preventable cancer deaths are saved, and access to life-saving treatment and care that does not differ in quality according to the patient`s age, gender, geographical location, cultural background, ethnicity, religion, income, sexual orientation, disability, lifestyle or socioeconomic status. 

This year’s World Cancer Day’s theme, “Close the Care Gap”, is all about raising awareness of this equity gap that affects almost everyone, in high as well as low- and middle-income countries, and is costing lives.

Did you know?
10 million people die from cancer every year, that is more than HIV/AIDS, malaria and tuberculosis combined!
Experts project cancer deaths to rise to 13 million by 2030 – if we don’t act now.

Why take action?
More than a third of cancer cases CAN be prevented, and another third can be cured if detected early, and treated properly. It is the year 2022, and we know more about cancer today than ever before! Through investing in research and innovation; extraordinary breakthroughs in medicine, diagnostics, and scientific knowledge have happened, and the more we know, the more progress can be made to reduce risk factors, increase prevention and to improve cancer diagnosis, treatment, and care.

By implementing resource-appropriate strategies on prevention, early detection and treatment – millions of lives can be saved every year!

Since its creation in 2000, World Cancer Day has grown into a positive movement.
Every year, hundreds of activities and events take place all around the globe, gathering communities, organisations and individuals in schools, businesses, hospitals, marketplaces, parks, community halls, places of worship – in the streets and online. Check out the Map of Activities!

What is Cancer?

Cancer is a disease which occurs when changes in a group of normal cells within the body lead to uncontrolled, abnormal growth forming a lump called a tumour; this is true of all cancers except leukaemia (cancer of the blood). If left untreated, tumours can grow and spread into the surrounding normal tissue, or to other parts of the body via the bloodstream and lymphatic systems, and can affect the digestive, nervous and circulatory systems or release hormones that may affect body function.

Cancer tumours can be divided into three groups:
1. benign (slow-growing, not cancerous and rarely threaten life),
2. malignant (faster growing than benign tumours and have the ability to spread and destroy neighbouring tissue),
3. precancerous (the condition involving abnormal cells which may (or is likely to) develop into cancer).

Cancer is classified according to the type of cell it starts from. There are five main types:

1. Carcinoma – A cancer that arises from the epithelial cells (the lining of cells that helps protect or enclose organs). Carcinomas may invade the surrounding tissues and organs and metastasise to the lymph nodes and other areas of the body. The most common forms of cancer in this group are breast, prostate, lung and colon cancer

2. Sarcoma – A type of malignant tumour of the bone or soft tissue (fat, muscle, blood vessels, nerves and other connective tissues that support and surround organs). The most common forms of sarcoma are leiomyosarcoma, liposarcoma and osteosarcoma

3. Lymphoma and Myeloma – Lymphoma and Myeloma are cancers that begin in the cells of the immune system. Lymphoma is a cancer of the lymphatic system, which runs all through the body, and can therefore occur anywhere. Myeloma (or multiple myeloma) starts in the plasma cells, a type of white blood cell that produces antibodies to help fight infection. This cancer can affect the cell’s ability to produce antibodies effectively

4. Leukaemia – Leukaemia is a cancer of the white blood cells and bone marrow, the tissue that forms blood cells. There are several subtypes; common are lymphocytic leukaemia and chronic lymphocytic leukaemia

5. Brain and spinal cord cancers – these are known as central nervous system cancers. Some are benign while others can grow and spread.

Causes of Cancer

Cancers can be caused by a number of different factors and, as with many other illnesses, most cancers are the result of exposure to a number of different causal factors. It is important to remember that, while some factors cannot be modified, around one third of cancer cases can be prevented by reducing behavioural and dietary risks.

Modifiable risk factors: Alcohol, Being overweight or obese, Diet and nutrition, Physical activity, Tobacco, Ionising radiation, Workplace hazards (asbestos, chemical industry), Infections.

Non-Modifiable risk factors: Age, Carcinogens, Genetics, Immune System.

Types of cancers

With so many different types of cancers, the symptoms are varied and depend on where the disease is located. However, there are some key signs and symptoms to look out for, including:

Unusual lumps or swelling – cancerous lumps are often painless and may increase in size as the cancer progresses.

Coughing, breathlessness or difficulty swallowing – be aware of persistent coughing episodes, breathlessness or difficulty swallowing.

Changes in bowel habit – such as constipation and diarrhoea and/or blood found in the stools.

Unexpected bleeding – includes bleeding from the vagina, anal passage, or blood found in stools, in urine or when coughing.

Unexplained weight loss – a large amount of unexplained and unintentional weight loss over a short period of time (a couple of months).

Fatigue – which shows itself as extreme tiredness and a severe lack of energy. If fatigue is due to cancer, individuals normally also have other symptoms.

Pain or ache – includes unexplained or ongoing pain, or pain that comes and goes.

New mole or changes to a mole – look for changes in size, shape, or colour and if it becomes crusty or bleeds or oozes.

Complications with urinating – includes needing to urinate urgently, more frequently, or being unable to go when you need to or experiencing pain while urinating.

Unusual breast changes – look for changes in size, shape or feel, skin changes and pain.

Appetite loss – feeling less hungry than usual for a prolonged period of time.

A sore or ulcer that won’t heal – including a spot, sore wound or mouth ulcer.

Heartburn or indigestion – persistent or painful heartburn or indigestion.

Heavy night sweats – be aware of very heavy, drenching night sweats.

Please visit the official World Cancer Day website to find out more about different types of cancers, prevention, early detection and cancer treatment.

Source: www.worldcancerday.org

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International Childhood Cancer Day 15 February

TODAY is International Childhood Cancer Day – a global collaborative campaign to raise awareness about childhood cancer, and to express support for children and adolescents with cancer, the survivors and their families.

ICCD promotes increased appreciation and deeper understanding of issues and challenges impacting childhood cancer and the survivors. It also spotlights the need for more equitable and better access to treatment and care for all children with cancer, everywhere.

Of the estimated 300,000 children who will get cancer every year, 80% live in low- middle income countries and have as little as 10-30% chance of cure (low and middle income respectively), compared to 80% or more in high income countries. Cancer in children is increasing in incidence as communicable disease deaths are reducing worldwide. Learn more at worldchildcancer.org.

In South Africa, an average of 800 to 1000 children are newly diagnosed with cancer each year. Childhood cancers share general symptoms with other illnesses; knowing the warning signs can be vital in early detection and treatment.

Childhood Cancer Awareness Bracelets – Fundraising for a Cause

Knowledge is power! Wearing an “Awareness Bracelet” creates an opportunity to start a conversation and to share information about a particular cause or disease, like cancer. Raising awareness may also lead to more ACTION like research to find a cure! Choose from our collection of Awareness Bracelets to wear in memory of a loved one lost, or as a gift to spoil yourself or someone close to your heart. All proceeds are donated towards the ongoing medical care and expenses, treatments and emergency surgeries of children with cancer, rare diseases, and special needs.

“The world changes from year to year, our lives from day to day, but the love and memory of you, shall never pass away.”

Rest In Peace

Gidion du Toit
Nicole van Rooyen
Cathrin Botha
Erica Rhoode
Alexis Rhoode
Tiana van Blerk
Peet Pretorius
Owen Jansen van Vuuren
Angelo Pereira
Bianca Fourie